Steven Hoffman

Your regular reminder of the importance of inclusive data stewardship. Examples such as the below reveal how far we have to go until data governance truly works for everyone. And of course the implications are significant, given the acceleration of AI technologies driven by data. Initiatives like Biobank rely heavily on social contracts and data donation, and careful thought and consideration about how data sets might be used. I hope this sparks a more thoughtful conversation about rights, safeguards, access and control, and also about who best to engage in these conversations. https://lnkd.in/ecwczYSy

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The Duke-Margolis Institute for Health Policy has released a comprehensive white paper detailing the critical role of #RWE in supporting #causalinference in #noninterventionalstudies. Read at The Evidence Base® #heor #healtheconomics #outcomesresearch #rwd #realworldevidence #realworlddata #healthdata

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Do mobile health researchers engage with digital rights? Not really, it turns out. Our recent scoping review highlights a significant lack of acknowledgement and discussion of crucial digital rights topics in mHealth research in Southeast Asian low- and middle-income countries. https://lnkd.in/gR65BhA4 #HumanRights #DigitalHealth #Privacy #mHealth University of Sydney Brain and Mind Centre Leiden University Eduard Fosch Villaronga Haley LaMonica Ian Hickie AO

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If you are searching for a book about Methods for the Economic Evaluation of Health Care Programmes, I recommend buying Drummond's book. To learn how to implement #economic_evaluation_techniques (#CEA and #CUA) using decision analytic models, including #decision_trees and #Markov_models in a one-to-one setting: https://lnkd.in/dqTpcvTM.

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Michelle O'Brien gives guidance on how researcher can translate their research into an agent-based model. Key considerations include policy, data aspects and implementation. Many people build on existing framework, including open source which saves designing from scratch. #AgentBasedModelling #InfectiousDiseases #HealthModelling

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It has been a real joy coming alongside the Tony Blair Institute for Global Change as they work to design a digital health ecosystem we can all believe and trust in. Consulting on their new report, “New National Purpose: Harnessing Data for Health with a Data Trust” has been a professional highlight and the final product has my full endorsement. That said, the following key challenges remain: 1. Terms of engagement: exactly how will we support the public to cultivate deep digital health literacy to allow them to be the best possible check and balance on this new service? How will we guarantee their line of sight into cash flows and frontline re-investments to ensure the National Data Trust lives up to its mission of prioritising trust over data? 2. Widening the talent pool: as per the Goldacre report, where exactly will our talent be coming from to reap the benefits of NHS data safely and securely? Private sector candidates will not be easily swayed from six figure salaries, and in-house public sector digital talent requires significant investment to manage the complexities and sensitivities of our health data. 3. Tackling the data gatekeepers: how exactly will General Practitioners and existing Trusted Research Environments be convinced to share their data domain and supporting controllership agreements? It will take the entire UK health data hive mind to come together to resolve some of these remaining blockers. It will be worth it, though. As a researcher within Orchid_ Oxford, I know full well the unique opportunity the UK has at its fingertips: a meshed health data ecosystem that can map patient risks and outcomes from genotype to phenotype. This is the engine for precision and personalised medicine and, if properly supported through initiatives such as The National Data Trust, could see the UK propelled to pole position for digital health globally. We must look to innovation such as this to secure the #FutureofBritain that our patients and people deserve. Dr Charlotte Refsum Henry Li Benedict Macon-Cooney

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https://lnkd.in/eHT2Wz6d Let s deepen the way in which digitalisation could lead towards higher standards in terms of integrated social and medical care in UK <<Digital transformation of health and social care is a top priority for the Department of Health and Social Care (DHSC) and NHS England (NHSE). The system’s long-term sustainability depends on it. We are directing this document at leaders in the health, social care and technology sectors so that together we can succeed in laying the foundations of a brighter digital future by 2025 and beyond.>> #integratedservices #social #medical #care #digital #UK #bestpractices #DHSC #future #technology #leadership #CIOSUERD #lifelonglearning

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In the latest blog of our series on the European Health Data Space, Kristof Van Quathem discusses governance and enforcement: https://okt.to/g1hQBH #EHDS

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💡 Health technologies that affect several care pathways or have multiple uses are challenging to evaluate in a robust and proportionate way. A new report from NICE - National Institute for Health and Care Excellence’s HTA Innovation Laboratory (HTA Lab) recommends prioritising key indications for economic modelling using structured expert elicitation. You can find the report here: https://lnkd.in/exDAfY9F #healthtech #HTALab

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😷 Do national innovation projects shape citizens’ public health behaviours? A recent paper, co-authored by Prof Martin Bauer, investigated whether, in the context of rising nationalism, drawing attention to national innovation strategies influences public health behaviours, such as vaccine uptake. 📊 Results showed no significant impact of national framing on vaccine willingness, even among those with nationalist or science-sceptical views, suggesting that public health authorities should be cautious with nationalist framing as it may be ineffective, or even counter-productive. 🔗 Read the paper: https://lnkd.in/ebegVWdm #OpenAccess #Research #PublicHealth #Science #Vaccine

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📣 Call for Papers on participatory governance in #DigitalHealth and #MedicalAI in Frontiers in Sociology! Editors: Cláudia de Freitas, Kira Allmann, Vera Lucia RAPOSO, Simeon Yates and Carlo Botrugno ⏰ Abstract submission deadline extended to July 31st! 💡 Themes of interest include: • Digital health governance gaps, public (dis)trust in digital health, and data diversity deficits • The social, ethical, legal, and personal implications of algorithmic decision-making, including how algorithmic biases are uncovered, exposed, and resisted during algorithmic training and up to the point of care (e.g. in clinical settings) • The disruption, (re)shaping or transformation of patterns of exclusion through digital health technologies and services • The emergence of new forms of advocacy, community mobilization, participation, and citizenship linked to health digitization and the (re)production of inequalities • Opportunities, tensions, and limits to public involvement in digital health governance • Participatory approaches to digital health technologies’ design, implementation, usage, and adaptation. More info: https://lnkd.in/eU_rCPJu

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🙋‍♀️ From todays editorial in The Lancet Digital Health; "Consistently and transparently reporting the representativeness of health datasets is pivotal to improve the quality of research evidence, and to bolster patient and public trust." 👇 #healthdata #TheLancetDigitalHealth

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We are pleased to share the freshly published project report: Addressing Health Determinants in a Digital Age – a continuation of the joint project between LSE Health and WHO Regional Office for Europe that explored individual determinants of health in a digital context. Spearheaded by our Digital Health Unit, colleagues contributed research that identified key individual digital, social, political, and commercial determinants of digital health. This report expands on that foundation by investigating how these determinants are interlinked within a rapidly evolving digital ecosystem. Key highlights from the report: ✨ A novel conceptual framework based on 127 determinants of health in the digital age, organized into person-specific, community, technology-related, policy, and societal categories. ✨ Insights into how digital determinants like internet access, data infrastructures, and AI policies intersect with traditional determinants, reshaping health outcomes. ✨ Action points for the health determinants that were considered most urgent to address. The report emphasizes that health outcomes in the digital era are no longer shaped by isolated factors—they are the result of intricate networks of determinants that require cross-sectoral strategies and collaboration. 🔗 You can explore the full report here: https://lnkd.in/eP_nB5ph 🔗 The corresponding scientific article here: https://lnkd.in/eDEbEJCd 🔗 And read the accompanying news story summarizing the findings here: https://lnkd.in/e8PutSzf #DigitalHealth #PublicHealth #DigitalRegulation #AI Robin van Kessel Laure-Elise Seghers George Wharton Michael Anderson Giovanni Monti Madeleine Haig Jelena S. Monique Mrazek Elias Mossialos

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Interested in public engagement in data and statistics research? Shayda Kashef reflects on her involvement in the Public Engagement with Data Research Initiative (PEDRI) and the opportunities for you and your organisation. https://shorturl.at/GQFA2 #HealthData #HealthResearch

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Have a read of our Tony Blair Institute for Global Change paper published today demonstrating how the new government can invest in preventative healthcare. This paper, lead by Andrew J Scott and in collaboration with Yannick Schindler Ines Hassan, John Bell, John Deanfield CBE and Tamsin Berry analyses the macroeconomic effect of disease prevention and GDP growth. We report a 20% reduction in incidence in 6 chronic diseases that keep people out of work could raise GDP by an estimated 0.74 per cent within five years – an annual boost of £19.8 billion – and by 0.98 per cent within ten years, equating to £26.3 billion annually. We also look at how specific available and likely future interventions can have a sizeable impact on GDP. We suggest that the new government can can tackle the challenge of rising age-related diseases, and increased pressure on health budgets by proactively shifting to preventative-health measures. Read the paper in full in the link below!

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https://lnkd.in/dJ4CYyfX A very interesting read on the use of AI in Public Health, and as Behavioural Scientists we now need to invest further learnings in the use of AI to predict and model behaviours. AI is surely here to stay. So how do Behavioural Scientists leverage the power of AI to predict behaviours from randomised controlled trials? Have they been accurate from your experience thus far? Are there any any AI tools specifically developed for our field ? More questions than answers, but welcome your views and thoughts. #behavioralscience #dubai #australia #changemanagement #AI

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We know anecdotally that #PatientsUseAI but what can we learn from more rigorous examinations, evaluations, and explorations? If you are in the world of participatory medicine, #codesign, and #AIforHealth, please consider submitting your paper to this important supplemental issue of the Journal of Participatory Medicine! Signed, your friendly co-guest-editors! Grace Cordovano, PhD, BCPA Matthew Hudson Susan Woods, MD MPH #participatorymedicine #coproduction #patientcenteredcare #patientpartnered #health #AI #medicine #patients

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Launch of the OECD-GDHP Policy Repository Tool 🌱 🌐 Around the world, the advancement of digital health technologies and health information systems have provided tools to address shared #healthsystem challenges – if effectively harnessed. 📊 The GDHP #PolicyEnvironments Workstream and the Organization for Economic Co-operation and Development (OECD - OCDE) have created the OECD-GDHP Policy Repository Tool to map and connect existing and new policy frameworks. 📄 Find the Policy Repository Tool and more information here: https://lnkd.in/eKZPnQhy 💻 The joint #PolicyRepositoryTool builds upon the OECD’s existing Policy Checklist and serves as an international digital health policy repository. On a global level, this dynamic Tool allows countries to identify leading practices worldwide around a variety of topics, such as interoperability and secondary use of data. 📈 It will allow #digitalhealth leaders to understand experiences internationally and pick the best lessons to apply in their context. There are a variety of use cases for the Policy Repository Tool, including the ability to focus on specific digital health initiatives and country mapping – enabling comparators across countries. 🤝 Most importantly, the Policy Repository Tool can help facilitate conversations across GDHP member countries and partner organizations to share learnings and further disseminate leading practices in digital health policy around the world. 📄 Find the accompanying news article here: https://lnkd.in/eWyimigp Rishub Keelara Eric Sutherland Simon Hagens Mitchell Nono Ronan O'Kelly Christopher Ng-Fletcher OECD - OCDE Canada Health Infoway Department of Health - Ireland #bestpractices #DigitalTransformation #healthinformationsystems

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