Dear Members and Partners, as the year draws to a close, we want to take a moment to express our heartfelt gratitude for your unwavering support, dedication and involvement with GlobalSkin and our vision. 👏 Together, we've made incredible strides in advancing our mission, and none of it would be possible without your engagement and collaboration. On behalf of the entire team at GlobalSkin, we wish you a safe, healthy and fulfilling holiday season. Happy Holidays! 🌲✨ P.S. Tell us in the comments what your favourite moments of the year were! 🥰 #GlobalSkin2024
GlobalSkin - International Alliance of Dermatology Patient Organizations
Wellness and Fitness Services
Ottawa, ON 2,243 followers
A Global Alliance Serving Patient Organizations to Improve the Lives of Dermatology Patients Worldwide.
About us
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) envisions a world in which people living with dermatological diseases and skin traumas can easily access the care and treatment they need, when they need it, and can live without stigmatization, persecution, or economic disadvantages due to their conditions. GlobalSkin is a not-for-profit organization working with more than 165 patient association members ─ located in over 50 countries representing more than 60 disease areas ─ to improve the lives of those affected by dermatological conditions throughout the world by: - Initiating dialogue and advocating for access to new and existing treatments, and dermatological care to improve patients’ quality of life; - Raising the awareness of the incidence of, and the challenges for, people living with serious dermatological diseases to create better understanding; - Supporting our Members, not-for-profit dermatology patient organizations, through education, global campaigning, sharing of best-practices and beneficial networking opportunities to strengthen support for patients and build a strong, inclusive movement; - Building special focus communities; and conducting patient–initiated research. We appeal as one voice to the World Health Organization and other key influencers to recognize the debilitating nature of dermatological disease so that more resources for research and treatment options are made readily available to those afflicted and in need of help. The common thread through these important initiatives is credible data, which we will collect in the first-ever global patient-initiated 'impact of skin disease’ research project, expected to have a profound and lasting impact on key decision-makers. By collecting data from the dermatology patient perspective to represent various real-life conditions around the world, the dermatological community will gain better awareness, making it easier to truly help patients.
- Website
-
https://www.globalskin.org
External link for GlobalSkin - International Alliance of Dermatology Patient Organizations
- Industry
- Wellness and Fitness Services
- Company size
- 2-10 employees
- Headquarters
- Ottawa, ON
- Type
- Nonprofit
- Founded
- 2015
- Specialties
- Skin Health, Dermatology Patient Alliance, patient organization, advocacy, dermatology, skin disease, eczema, psoriasis, vitiligo, skin cancer, rare disease, acne, Hidradenitis suppurativa, albinism, birthmark, Pemphigus & Pemphigoid , Alopecia , XERODERMA PIGMENTOSUM, and Epidermolysis Bullosa
Locations
-
Primary
Get directions
43 Florence Street
Ottawa, ON K2P 0W6, CA
Employees at GlobalSkin - International Alliance of Dermatology Patient Organizations
Updates
-
Earlier this month GlobalSkin, the @ildsderm, Health Diplomacy Alliance and other key partners co-hosted a public webinar "Skin Diseases as a Global Public Health Priority", which focused on education and awareness around our campaign for a proposed All-Skin Diseases Resolution at the 2025 World Health Assembly. This webinar garnered great interest with 440 registrations from people in 82 countries. Watch the recording of the full webinar here: https://lnkd.in/e7N-ciWk #ResolutionForAllSkin #WHA
-
-
🌟 #FollowFriday Spotlight 🌟 This week, we’re highlighting Live Together as Family Association (L-TOFA)! 🌍 This organization from Burundi, Africa envisions an inclusive future, enabling people with albinism and their families to fully integrate into society. ✨ Why Follow L-TOFA? ➡️ Access the latest information on advocacy programming to help support people living with albinism ➡️ Connect with albinism communities globally ➡️ Join their mission to make a meaningful impact on the protection and empowerment of people living with albinism. 🌐 Learn more and show your support at https://lnkd.in/eRXAdekm 👉 Follow them on Facebook: https://lnkd.in/eSscZN-6 LinkedIn: https://lnkd.in/eCnYCF8z #Albinism #AlbinismAfrica #Burundi #BurundiAlbinism #GlobalSkinMemberLove #SkinMatters
-
-
During our upcoming GlobalSkin Conference CHAMPION 2025, we will honor the exceptional leadership demonstrated by our Members at national, regional, & global levels. 💫 To celebrate their achievements, GlobalSkin will uphold its tradition of presenting the Patient Leader Awards 🏆 to recognize Members' dedication to Championing, Innovating, Collaborating, and Elevating the patient voice. To learn more, check your inbox for details on submission. #GlobalSkinConference2025
-
-
🌍 2024: A Year of Progress and Impact with GlobalSkin 🌟 As we reflect on an incredible year, we’re thrilled to share our 2024 Year in Review! This document highlights key achievements, groundbreaking initiatives, and powerful collaborations that made a difference for dermatology patients worldwide. 📖 Read the full report here: https://lnkd.in/e96_AYFS 💬 We’d love to hear from you! Add your message to this post to let us know what was your favorite GlobalSkin moment in 2024? Let’s celebrate these milestones together and continue to drive change for dermatology communities worldwide. #YearInReview #GlobalSkin2024 #PatientVoice #DermatologyImpact #GlobalCollaboration #GlobalSkinElevates #GlobalSkinChampions #GlobalSkinUnites #GlobalSkinExcellence #GlobalSkinMemberLove #SkinMatters
-
-
As an international alliance, we are committed to the principles of diversity, equity, inclusion, and belonging. We are striving to ensure patient organizations from all parts of the world are seen, heard, and valued. 🌏💪 In 2024, GlobalSkin has grown 📈13% by welcoming 36 new patient organizations to our organization, bringing our membership to 293 Member organizations, representing 59 disease areas and 71 countries. We are looking forward to continued growth and collaboration into 2025! ✨ Put a ❤️ in the comments if you were one of the new organizations to join us this year! Learn more about GlobalSkin here: https://lnkd.in/gBDihWV #GlobalSkin2024 #PatientVoice #GlobalCollaboration #GlobalSkinElevates #GlobalSkinMemberLove #SkinMatters
-
-
📢 Attention GlobalSkin Members! Seats are filling up fast for GlobalSkin Conference 2025 happening April 24–27, 2025, in Prague! With over 50% of spots already booked, register now to join our flagship event. 🖊️🌍 Interested in becoming a speaker? Submit your presentation proposal by Jan 13, 2025. Check your email for details. 📧📝🎤 #GlobalSkinConference2025 #Champion #GlobalAdvocacy #PatientLeadership #Dermatology #ConferenceAlert
-
-
GlobalSkin is thrilled to see skin diseases on the global health policy agenda this week at the WHO. We applaud Côte d’ Ivoire for their leadership in bringing this important topic the forefront and encourage all Member States to get involved in the discussions. #ResolutionforAllSkin
-
-
🌟 #FollowFriday Spotlight 🌟 This week, we’re highlighting the Center For Ichthyosis Related Members Foundation, India. This national patient-led organization represents the collective voice of all Ichthyosis patients, with the mission of educating medical professionals and the general public on the subject of ichthyosis and its implications. ✨ Why Follow CIRM? ➡️ Connect with the ichthyosis community in India. ➡️ Access research into the management of the condition. 🌐 Learn more at https://cirmindia.org/ 👍 Join them on Facebook: https://lnkd.in/eqxURy37 Join their WhatsApp & Social Groups: https://lnkd.in/erTaQH4T #Ichthyosis #IchthyosisIndia #India #GlobalSkinMemberLove #SkinMatters
-
-
GlobalSkin's December 2024 Newsletter is out now! Hear from our Board President, read our Year in Review report, discover key 2024 achievements highlighted by our CEO, learn about GlobalSkin's recent advocacy initiatives on the global stage and more. If you haven't subscribed to our Newsletter yet, sign up here: https://lnkd.in/giysgTA #GlobalSkin #Newsletter #Dermatology #December
-