IFPA

Caregivers play a crucial role in supporting those with psoriatic disease, yet their own needs are often overlooked. 💙 Our brochure, Family Well-being in Psoriatic Disease: Caring for the Caregiver, highlights their vital role, addresses their challenges, and offers an action plan to support their personal and professional well-being. Available in multiple languages for wider access. 🌍 Download it here: https://lnkd.in/dShge8_i #PsoriaticDisease #CaregiverSupport #familywellbeing #psoriaticawareness #psoriaiscommunity

Psoriatic disease affects entire families, not just individuals. 💙 Raising awareness and fighting stigma are key to improving family well-being. Our brochure, Advocating for Family Well-being in Psoriatic Disease, shares key actions, resources, and an action plan based on real family insights to help foster understanding and support. 🌟 Available in multiple languages for wider access. 🌍 Download it here: https://lnkd.in/drk5TsJq #PsoriaticDisease #FamilySupport #familywellbeing #psoriaticawareness #psoriaiscommunity

Missed our IFPA Webinar on The Path to Pleasure: Shedding the Stigma of Psoriatic Disease and Intimacy? 🎥 Join Dr. Mitchell Tepper as he shares expert insights on overcoming challenges, enhancing intimacy, and boosting self-confidence while living with psoriatic disease. Catch the recording now: https://lnkd.in/dgjvpyyM #PsoriaticDisease #Intimacy #SelfConfidence #HealthAndWellness

It's #UHCDay! Today we call on governments to invest in health and protect people with psoriatic disease from catastrophic health expenditures. Not convinced yet? Read IFPA's resources on #UniversalHealthCoverage here: https://lnkd.in/d9r3J8eF

At the IFPA Conference 2024, interim results from the POSITIVE Study- The study goes beyond looking at the severity of psoriasis and showcased the benefits of a with focus on well-being . This groundbreaking research highlights not only improvements in physical symptoms but also in overall patient wellbeing, shedding light on the significant psychosocial burden of psoriasis. The study emphasizes how effective treatment can enhance daily activities and improve quality of life, going beyond symptom relief. The POSITIVE study is unique in its focus on patients' overall wellbeing, using the WHO-5 wellbeing index to assess mental and emotional health. This patient-centered approach is paving the way for dermatologists to take a more holistic view of treatment, considering both physical and emotional aspects of care. The study also evaluates the impact of psoriasis on families and physicians, emphasizing the importance of a comprehensive approach to disease management. #POSITIVEStudy #Psoriasis #PatientWellBeing #ClinicalResearch #Dermatology #IFPA2024

Psoriatic disease is more than skin deep. Treatment needs to do more than clearing the skin lesions. Improving the quality of life of those with the disease needs to be an essential measured outcome. In a recent study, almost 50% of participants receiving treatment reported that the disease had no longer an impact on their quality of life. Learn more about the POSITIVE Study: Click Here :https://lnkd.in/dv3J4sZs Positive Study Implementing Well being in Psoriasis Care #psoriaticdisease #psoriaticarthritis #positivestudy

Ever wondered how people living with psoriatic disease feel about their care? Psoriasis and Beyond research study- with nearly 5000 participants survey reported that : 59% feel uninvolved in deciding treatment goals, and 40% say the mental well-being impact isn't fully understood by healthcare professionals. Of those surveyed, less than 1/3 of those living with psoriatic disease are aware of its linked comorbidities like cardiovascular disease, diabetes, depression and anxiety, and psoriatic arthritis. Psoriasis and Beyond is a joint research initiative between IFPA, 16 national psoriasis organizations and Novartis AG. The joint study is overseen by an independent Steering Committee of patient advocates, dermatologists and rheumatologists Click below to explore the global and country specific Psoriasis and Beyond publications and learn more about the data. Dive into the insights at the Psoriasis and Beyond portal - https://lnkd.in/gJPZz5tx IFPA is at the #Gene to Clinic 2024. Visit the booth to more about IFPA's advocacy work using data from the psoriasis and beyond study. #psoriasisandbeyond #psoriasislife #psoriaticdisease #ACR2024

Celebrate inclusion, advocate for accessibility, and honor the strength of diversity on International Day of Persons with Disabilities 2024! 🌍💙 Together, we can break barriers and create a world where everyone thrives. Let’s not forget to uplift those navigating challenges like psoriatic disease as we champion a more inclusive future. #IDPD2024 #AccessibilityForAll

Masanori Okuse, IFPA's board member, recognizes IFPA's work that lead to the adoption of the #WHOPsoriasisResolution. "There are still lots of things that we have to do to make people with #psoriaticdisease happier". Read the full article - https://lnkd.in/dRM27vqZ #WHA #10YearsOfAction

In close collaboration with IFPA we're excited to announce the publication of the peer-reviewed Conference Proceedings from the IFPA 7th World Psoriasis & Psoriatic Arthritis Conference, held 27-29 June in Stockholm, Sweden. One of the conference highlights was the Hot Topic debate featuring Dr. Soriano and Dr. Ogdie, discussing whether treating psoriasis can help prevent the development of psoriatic arthritis. You can read more about this compelling discussion here: https://lnkd.in/e84egHwV Additionally, the publication shines a light on crucial research regarding mental health, genetics, and pain management in psoriatic disease. Dive into these insights and download a free copy of the Proceedings on the Medicom Conference Portal: https://lnkd.in/eVMR5zry Let’s continue to inspire change and forge pathways for better care together. The journey towards a brighter future for those living with psoriatic disease starts here! #Psoriasis #PsoriaticArthritis #IFPA #Research #PatientCare #Medicom #ConferenceProceedings