Register today for the next Patient Education Series webinar with Dr. Zachary Hopkins! He will give a foundational overview of #pemphigus and #pemphigoid. Register here: https://loom.ly/JDLbeMs #healourskin
International Pemphigus Pemphigoid Foundation
Non-profit Organizations
Roseville, California 1,873 followers
Improving the quality of life for all people affected by pemphigus and pemphigoid through early diagnosis and support.
About us
The International Pemphigus & Pemphigoid Foundation (IPPF) is a registered 501(c)(3) not-for-profit organization and the preeminent global organization dedicated to improving the quality of life of all people diagnosed with, or affected by, pemphigus or pemphigoid. Pemphigus and pemphigoid are autoimmune blistering diseases where the blisters form on the body, mouth or eyes as a person’s immune system attacks itself. The IPPF serves patients through a network of trained Peer Health Coaches (PHC). PHCs cover different disease types, time zones, genders and languages to answer questions and guide patients through an ongoing “health management” experience. The IPPF engages in awareness and education projects focusing on patients, caregivers, and medical professionals. The IPPF also provides resources for research addressing mechanisms, relapse-trigger identification, disease treatment,and ongoing pharmaceutical and bio-scientific exploration. MISSION: The IPPF provides direct access to innovative and effective support that promotes the very best health care, improves quality of life, stimulates community resources, advocates for favorable government policies, accelerates the pace of scientific discovery and is the world’s best source of information on pemphigus and pemphigoid. We are compassionate in understanding, tireless in service, and relentless in advocating. One person at a time, we make a difference, building a community of care and hope.
- Website
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http://www.pemphigus.org
External link for International Pemphigus Pemphigoid Foundation
- Industry
- Non-profit Organizations
- Company size
- 2-10 employees
- Headquarters
- Roseville, California
- Type
- Nonprofit
- Founded
- 1994
- Specialties
- patient support, awareness, advocacy, physician referral, outreach, and education
Locations
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Primary
Get directions
915 Highland Pointe Dr
Roseville, California 95678, US
Employees at International Pemphigus Pemphigoid Foundation
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Joel Laudenbach DMD
Diplomate, American Boards of Oral Medicine & Dental Sleep Medicine
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Marc Yale
Peer Health Coach at International Pemphigus Pemphigoid Foundation
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Marc Yale
Advocacy & Research Coordinator at International Pemphigus Pemphigoid Foundation
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Janet Segall
Patient Support
Updates
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International Pemphigus Pemphigoid Foundation reposted this
#RareDiseaseDay 🌍💜 is a global movement shining a light on rare medical journeys. Held every year on the last day of February, it’s coming up on Feb 28, 2025! As the official U.S. partner for Rare Disease Day, the National Organization for Rare Disorders (NORD) invites you to kick off the countdown to the celebration with us. RSVP for next week's webinar to learn how you can #ShowYourStripes in support of everyone with a #RareDisease: https://bit.ly/4f8HI9n 🦓 #RareDiseases #Healthcare #Medicine #Disability #Disabilities #Health #RareDiseaseAwareness
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International Pemphigus Pemphigoid Foundation reposted this
The Autoimmune Association along with partners in the autoimmune patient advocacy community hosted a luncheon featuring Victoria Shanmugam, MD, director of the Office of Autoimmune Disease Research within the Office of Research on Women's Health at the The National Institutes of Health. With an introduction by Dr. Nina Luning Prak, chair of the Autoimmune Association’s Medical and Scientific Advisory Council, Dr. Shanmugam provided a fascinating look into emerging developments in autoimmune disease research: 🔸 Blood tests might spot autoimmune diseases up to 6 years before symptoms start, helping with early treatment. 🔸A new research plan for myositis could be a model for other autoimmune diseases. 🔸Hearing loss linked to autoimmunity is being overlooked in research. 🔸They’re finding ways to use existing health data more efficiently. 🔸CAR-T therapy holds promise but has challenges to scale up. We are excited about the progress and future directions in autoimmune research!
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This week, we kicked off a friendly fundraising competition between our Board of Directors and our Medical Advisory Council. Thank you to Dr. David Fivenson for being the first to sign up! You can support the IPPF by donating via Dr. Fivenson's fundraising page here: https://lnkd.in/gFkmBpBD #pemphigus #pemphigoid #fundraising #raredisease #dermatology
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International Pemphigus Pemphigoid Foundation reposted this
As the end of #Medicare open enrollment approaches, make sure to consult with the International Pemphigus Pemphigoid Foundation's resources to better understand upcoming changes to out-of-pocket spending caps and a monthly payment option. Check it out here. https://lnkd.in/gDVEqvyM
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Our community is resilient. Give Hope, Change Lives: Support the IPPF: https://loom.ly/8AqoDCM #healourskin #pemphigus #pemphigoid #GivingTuesday
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“We are Warriors! Even though I have been in remission for years, I remember the pain. I remember what it's like to not have anyone around to talk to who understood. I am not alone anymore.” Support the IPPF on #GivingTuesday: https://loom.ly/8AqoDCM #healourskin #pemphigus #pemphigoid
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Today is #GivingTuesday! Give Hope, Change Lives: Support the IPPF: https://loom.ly/8AqoDCM #healourskin #pemphigus #pemphigoid
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