Today, as part of our ongoing Preeclampsia Champions of Change series and in honor of #WorldPreeclampsiaDay we feature a Q&A with Kara Boeldt, Founder and Director of Endpreeclampsia.org, a group who seeks to make an impact in education, advocacy, and support. We’re also honored to have Kara serve as a member of Comanche’s Patient Advisory Board. Kara experienced liver failure, kidney failure, and cerebral edema due to severe #preeclampsia at 31 weeks gestation, resulting in the emergent delivery of her daughter. She ultimately transformed this traumatic personal experience with preeclampsia into an opportunity to help others. Kara decided to build a supportive community to help people navigate through this time of often heightened uncertainty and anxiety, giving them a safe place to share their concerns, frustrations, and grief, and to ask questions of trained peer-educators. Today, this community has over 50,000 members in 115 countries. Read more about Kara’s inspiring story: https://bit.ly/3UUX6xY Photo: Kara with her daughter, born at 31 weeks and weighing just 2.5 pounds. #maternalhealth #patientadvocacy #advocacy #pregnancy
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Thank you, Comanche Biopharma, for all the risk you’ve taken to invest in maternal healthcare when others wouldn’t, to find solutions and modernize how we treat preeclampsia. Thank you for recognizing this vast unmet need and taking action. We are proud to partner with you in moving medicine forward based on science so that someday we can give moms, babies and families better options, and reduce maternal and fetal illness and death due to hypertensive disorders of pregnancy. #Endpreeclampsia #preeclampsia #eclampsia #gestationalhypertension
Today, as part of our ongoing Preeclampsia Champions of Change series and in honor of #WorldPreeclampsiaDay we feature a Q&A with Kara Boeldt, Founder and Director of Endpreeclampsia.org, a group who seeks to make an impact in education, advocacy, and support. We’re also honored to have Kara serve as a member of Comanche’s Patient Advisory Board. Kara experienced liver failure, kidney failure, and cerebral edema due to severe #preeclampsia at 31 weeks gestation, resulting in the emergent delivery of her daughter. She ultimately transformed this traumatic personal experience with preeclampsia into an opportunity to help others. Kara decided to build a supportive community to help people navigate through this time of often heightened uncertainty and anxiety, giving them a safe place to share their concerns, frustrations, and grief, and to ask questions of trained peer-educators. Today, this community has over 50,000 members in 115 countries. Read more about Kara’s inspiring story: https://bit.ly/3UUX6xY Photo: Kara with her daughter, born at 31 weeks and weighing just 2.5 pounds. #maternalhealth #patientadvocacy #advocacy #pregnancy
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Thank you, Comanche Biopharma, for all the risk you’ve taken to invest in maternal healthcare when others wouldn’t, to find solutions and modernize how we treat preeclampsia. Thank you for recognizing this vast unmet need and taking action. We are proud to partner with you in moving medicine forward based on science so that someday we can give moms, babies and families better options, and reduce maternal and fetal illness and death due to hypertensive disorders of pregnancy. #Endpreeclampsia #preeclampsia #eclampsia #gestationalhypertension
Today, as part of our ongoing Preeclampsia Champions of Change series and in honor of #WorldPreeclampsiaDay we feature a Q&A with Kara Boeldt, Founder and Director of Endpreeclampsia.org, a group who seeks to make an impact in education, advocacy, and support. We’re also honored to have Kara serve as a member of Comanche’s Patient Advisory Board. Kara experienced liver failure, kidney failure, and cerebral edema due to severe #preeclampsia at 31 weeks gestation, resulting in the emergent delivery of her daughter. She ultimately transformed this traumatic personal experience with preeclampsia into an opportunity to help others. Kara decided to build a supportive community to help people navigate through this time of often heightened uncertainty and anxiety, giving them a safe place to share their concerns, frustrations, and grief, and to ask questions of trained peer-educators. Today, this community has over 50,000 members in 115 countries. Read more about Kara’s inspiring story: https://bit.ly/3UUX6xY Photo: Kara with her daughter, born at 31 weeks and weighing just 2.5 pounds. #maternalhealth #patientadvocacy #advocacy #pregnancy
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I am so excited to announce that as a part of my TNFI Perinatal & Maternal Health Initiative the Tyler Nicole Foundation in collaboration with the Nassau County Department of Health, Nassau County Perinatal Services Network’s Education and Outreach Workgroup will be putting on an event titled "A Conversation Surrounding Black Maternal & Infant Health". The event will take place on: Date: May 22, 2024 Time: 6:00 pm - 8:00 pm Location: Office of Health Equity 40 Main Street Suite C Hempstead, NY 11550 This documentary is an amazing opportunity for the public to learn about the perinatal loss crisis in this country. The event will include a panel discussion and panelist members including Sharon Turnage, PhD Candidate, LMSW, CASAC T & Woods T Amina to shed light on the perinatal loss crisis in the US and how it impacts families. We'll be screening the documentary "Toxic: A Black Women's Story," a powerful film exploring the impact of stress on pregnant black women. Take advantage of this opportunity to learn and engage on this important topic. Here is the link to register for this event: https://lnkd.in/gdeGxKG4 Please share and repost! #Iam1in4 #perinatal #perinatalloss #perinatalhealth #perinatallossawareness #TNFIevents #maternalandinfanthealth #maternal #maternalhealth #maternalloss #childloss #childlossawarness #babyloss #babylossawareness #research #education #black #blackwomen #BMHW #pregnancy #pregnancyloss #healthdisparities #Northwell #BlackMaternalHealthWeek #nassaucountydepartmentofhealth #tylernicolefoundation #sharonturnage #toxicdocumentary #MountSinai #toxicablackwomensstory
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INTERNATIONAL FASD DAY Today, the Southern Chiefs' Organization recognizes International FASD Day to raise awareness and understanding about fetal alcohol spectrum disorders (FASD). FASD is a term that encompasses a range of conditions caused by prenatal alcohol exposure, which can lead to a variety of physical, cognitive, and behavioral challenges. On this 9th day of the 9th month, we shine a light on the importance of avoiding alcohol for the 9 months of pregnancy to help prevent FASD. Also, to advocate for greater prevention, intervention, and support for individuals and families affected by FASD. Through education and empathy, SCO's Harm Reduction team works with families and individuals struggling with substance misuse as a preventative measure, while our Jordan's Principle team helps to improve outcomes for children living with FASD. SCO believes children are sacred and must be protected before and after coming into this world. To us, every child matters. Learn more about services and provisions SCO's Harm Reduction Program provides at: https://lnkd.in/gs-hQnjW For more information about the work our Jordan's Principle Program is doing visit: https://lnkd.in/egWYhq6h #SCOINCMB #FASD #InternationalDay #children #fetalalcoholspectrumdisorder #substance #addictions #pregnancy #FirstNations #global
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On the importance of creativity as part of building and enhancing engagement with young people, as well as helping them to feel comfortable speaking and sharing, especially when it comes to sensitive or taboo topics. Read about one of our experiences at https://lnkd.in/gkuGigMG #EmpatikaResearch #ParticipatoryResearch #TeenPregnancy #AdolescentPregnancy #GirlsEmpowerment
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🚀 Calling ALL Private Practice Pediatricians & Clinicians🚀 We are thrilled to open up the SupportSpot Early Adopter Program for FIVE Pediatric Private Practices and Clinics. What was once only available in children's hospitals, is now available for a select few private practices through out Early Adopter Program. Here's what we know: 💡 💡Pediatricians and their staff in clinics and practices swork tirelessly to make sure your patients and families get the best care possible. 💡We're child life specialists - experts in trauma-informed, psychosocial care 💡With SupportSpot, we take the heavy lifting off your team and ensure your patients and families have access to the best possible support resources to reduce stress, anxiety and overwhelm that comes with visiting the doctor What’s in it for your practice? 💡 🙌Enhanced Family Experience: Empower your families with tools that reduce stress, improve understanding of medical procedures, and boost patient outcomes. 🙌Exclusive Benefits: Enjoy our best pricing and gain valuable insights into family engagement. 🙌Free Course Offer Just in Time for Flu Season: All your practice families will get access to our highly-rated "How to Prepare, Support & Respond to Your Child During Shots" course for free ($150 value per student) for ALL your patients and families. Interested? 🙌 This is a limited-time opportunity for just 5 practices to lead the way in family-centered pediatric care. The window to join closes on October 31. Next Steps: Fill out the interest form to register: https://lnkd.in/gCCYPuT4 Program details below: https://lnkd.in/gTFtCGDA Let’s partner together to enhance the psychosocial support for your families! 🌟 #pediatrics #privatepractice #pediatrician #childlifeservices #familysupport #whatreallymatters #digitalhealth #pediatricnp #pnp #pediatricPA
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Dive into an enlightening conversation with Ashley Parker a licensed social worker and founder of Compassionate Consulting, on The Alignment Project with Amy Adams. Ashley shares her extensive experience in geriatric care management, discussing essential topics such as elder care advocacy, the importance of long-term care planning, and the emotional challenges faced by families. Learn practical advice on navigating healthcare systems, understanding geriatric care options, and preparing for the future with compassion and foresight. Don't miss this valuable resource for anyone involved in elder care or planning for their loved ones' needs. #HealthcareAdvocacy #geriatrics #geriatriccare #GeriatricCareManager #seniorliving #seniorcare #surrogate #longdistancecaregiving The Alignment Project alignmentproject.org
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You are not alone 💙🧡 Whether you’re recently bereaved, or you experienced loss long-ago, we are here. 📧 helpline@sands.org.uk 📞 0808 164 3332 Find out more about the types of support we offer ⬇️ sands.org.uk/support #SandsHereToSupport #Babyloss #PregnancyLoss
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Our this week topic is “Pregnancy loss” little bit sensitive topic. : Instead of worrying about if I am going to hurt our families, it was an eye opening lesson, after I attended @drdrewmoffrey & @pinkelephantssupport charity event, Samantha (co-founder & CEO) says, Sharing these conversations allows the topic of pregnancy loss to be normalised and shows those who are grieving, that they are not alone. Let’s learn about this topic and be the best support. : Let’s bring awareness in this important topic to amplify the voice of families, who have been and going through this situation. : If you have interest in this topic and like to collaborate, be our paid partnership please DM Anj (GC women’s health networking page). : Reminder that your post has to be educational and awareness focuses. 🙏🏽 : To become our paid partnership, information down below.⬇️ 1. Please put your information on our this week topic 2. Please put your information through CANVA. 3. Send your bio in separate paragraph so, I can include in the content for our community to know about you and your wonderful services. If you have any more question please do not hesitate to DM Anjali - GC women’s health networking page thank you. : #topic #womenhealth #goldcoasthealth #collaborate #gcwomenshealthnetworkingpage #womenshealth #womenempowerment #womensupportingwomen #educate #awareness #childloss #pregnancyloss ##supportwomen #paidpartnership #babyloss #sensitive
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In this one meeting we had 15 Oregon counties represented! Leaders, facilitators, researchers, direct service providers and all around smart and big-hearted humans from around the state gathered as part of their participation in the #UpstreamInitiative. Our design pilots and learning communities discussed what is happening in their region as they intentionally design a local Child Success Model that addresses the needs and buttress the protective factors for families in the First 1000 Days of life (pregnancy, birthing, postpartum, 0-2 years). It is clear that each community has overlapping and unique needs and strengths, highlighting why this type of place-based cross-sector collaboration is so important as we mobilize to conceptualize a Child Success Model, focused on this precious time period of the First 1000 Days, that is flexible and resourced enough to ensure every child, family and community have what they need to thrive.
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Global Head of Patient Advocacy and Engagement
7moThank you Kara for your tireless advocacy work! You have created an AMAZING community of support and education for individuals who experience preeclampsia.