Klinefelter's Syndrome Association

Absolutely amazing! The KSA were privileged to have been part of an incredible multi-disciplinary team in setting up and running this clinic. https://lnkd.in/ezNQJ4PS

Research opportunity for primary aged children with KS/XXY based in the UK! What are the perceived impacts of school-based counselling on the educational experiences and emotional wellbeing of students aged 8-11 with KS/XXY in mainstream schools? This is the first research of its kind in which children with KS/XXY will have their voices heard. Please see the link below for more information. https://lnkd.in/eBsvAME4

#Chromodiversity Leader Brock Vestrum to Inspire ‘Extra X’ Kids at Ann & Robert H. Lurie Children's Hospital of Chicago 🚀 We are delighted to announce My XXY, Chromodiversity Foundation Director Brock Vestrum will participate in the inaugural KidS Camp at Lurie Children's Hospital designed for children with #Klinefelter’s. Diagnosed with an extra X chromosome at the age of 36, Brock is not only a successful healthcare leader, but also an inspiring role model and mentor for children and families navigating genetic differences, as well as an accomplished triathlete. He will share his personal journey with Klinefelter’s, highlighting how it has shaped his life and how he has overcome challenges. His talk aims to inspire young participants to view obstacles as opportunities, with a focus on resilience, self-acceptance, and the benefits of an active lifestyle. Join us in celebrating this milestone and the important work being done by Lurie’s Children’s Hospital to support children with Klinefelter’s. Click here to listen to “Growing Up With Brock” https://lnkd.in/dbpjb2mf. 👉 Parents of children with X & Y chromosome variations interested in learning more about strengths-based mentorship experiences, please contact Brock at [email protected]. We focus on highlighting and developing the unique strengths of each child. #Chromodiversity #Klinefelter #LurieChildrensHospital #eXtraordinarYeXperiences #eXtraordinarYKids

Journal article by Claire Harkin our research coordinator and Professor James Elander (University of Derby), congratulations 🙌 A qualitative exploration of experiences of gender identity and gender questioning among adults with Klinefelter syndrome/XXY: https://lnkd.in/e9hdaGuH

Claire our research coordinator was representing the KSA at the British Psychological Society Health Division Conference, presenting a poster on ‘Klinefelter’s syndrome/ XXY: qualitative insights into the experiences of those affected’ well done Claire !

As the KSA Research Cordinator I am incredibly grateful and privileged to have been able to contribute towards this publication. With my fellow ePAGs we co-authored Chapter 4, The Patent view on the ERN programme: Share, care, cure and pathways. A big shout out and special thank you to AJ Howard, for his personal account of the psychological impact of a late KS/XXY diagnosis. The book combines information on network developments and clinical and surgical aspects, allowing for better diagnoses, treatments, and patient outcomes. https://lnkd.in/e4NZG-qp

Join our Research Coordinator, Claire Harkin, at the Fertility Conference 2024 next week in Edinburgh, Scotland! Claire will be delivering a short presentation on a study completed with Professor James Elander (University of Derby) and Dr Bryan Woodward (X and Y Fertility) titled Experiences of infertility among people with Klinefelter syndrome/XXY.