I'm Fay, the Digital Communications, Marketing and Fundraising Assistant at Immunodeficiency UK, and I've got some exciting news to share! 🎉 Recently, I took a big step and signed up for the UK Blood Stem Cell Registry. Why? Because I believe in the power of small actions to make a huge difference. 💪 Working at Immunodeficiency UK has opened my eyes to the critical need for stem cell donors. For some people with immunodeficiency, a stem cell transplant is their best hope for survival. By joining the registry, I might one day have the chance to save a life. I understood the critical need for increased diversity in the stem cell donor pool. As someone of mixed British and Jamaican heritage, I recognised that my participation could help address the underrepresentation of minority backgrounds on the register. It was quick, easy, and painless to sign up. If you are aged between 17 and 55 years and in general good health, I encourage you to consider joining too. Together, we can give hope to those waiting for a match. Learn more about becoming a donor at: https://lnkd.in/gCFwWWYK DKMS UK #StemCellDonor #SaveALife #ImmunodeficiencyUK
Immunodeficiency UK
Fundraising
Supporting families affected by primary and secondary immunodeficiency.
About us
Immunodeficiency UK, launched on the 1st April 2021, is a charity supporting individuals and families affected by a primary and secondary immunodeficiency in the UK. The charity’s day-to-day operations are funded entirely by donations and grants. Our aims are to help ensure that those affected by a primary and secondary immunodeficiency have the knowledge needed to manage their condition effectively and to ensure that their health needs are understood and addressed by those involved in policy and delivery of healthcare. Immunodeficiency UK's registered charity number is 1193166. Our history For the period from 2013 to the 1st April 2021 we were known as the organisation Primary Immunodeficiency UK and managed as part of the charity Genetic Disorders UK.
- Website
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http://www.immunodeficiencyuk.org
External link for Immunodeficiency UK
- Industry
- Fundraising
- Company size
- 2-10 employees
- Headquarters
- London
- Type
- Nonprofit
Locations
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Primary
London, GB
Employees at Immunodeficiency UK
Updates
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Your company can make a real difference in the lives of those affected by immunodeficiency. Our corporate partnerships offer various ways to support our cause, from sponsorship opportunities to employee engagement programs. Learn how your business can demonstrate social responsibility while helping a vital cause. Visit our 'Corporate Support' page to explore partnership options and start making an impact today. https://lnkd.in/g4fWHraF
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Immunodeficiency UK is seeking at least two exceptional individuals to join our Board of Trustees and help steer the growth of our impactful patient organisation over the coming years. We are a small charity supporting individuals and families affected by primary or secondary immunodeficiency in the UK. Our mission is to provide support, advocate for patients, and encourage research into these often-misunderstood conditions. To strengthen our board, we are particularly interested in candidates with expertise in one or more of the following areas: - Living with or caring for someone with an immunodeficiency disorder - Experience within the charity sector - Organisational governance - Risk management As a Trustee, you will ensure robust governance and oversight of our services. Board meetings are currently held online every two months on Monday evenings. This is a voluntary role, but reasonable expenses are covered. To apply, please send a cover letter outlining your motivations and relevant experience along with your CV to [email protected] by 12th June 2024. For an informal discussion about the roles, contact our CEO Dr. Susan Walsh at [email protected]. Help us ensure no one faces an immunodeficiency journey alone. Join our dedicated team and be part of improving lives today. #CharityTrustee #VolunteerRole #PatientOrganisation #RareDiseaseUK
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Thanks so much for fundraising to support us. It is so appreciated and will be so vital in our work supporting those with immunodeficiency.
A Friday #shoutout to our team across the #UnitedKingdom who hosted a very successful #CraneCares charity day, raising funds for Immunodeficiency UK this week. With fun games, raffles and quizzes, it was a great effort by all involved! Many thanks to our partners for the donations of prizes! 🙏 💡 From contract logistics to freight forwarding expertise, our UK team offer a full suite of supply chain solutions, get to know us: https://lnkd.in/eTzdAc4f #London #Manchester #Aberdeen #Midlands Louise Coveney Jade Keyes Paula Jones (Broekman) David Burck David Hennessy Chris Lee Jamie Evans Ewan Alexander Anthony Finn
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We are proud to have taken part in this amazing event. Great to see so many MPs getting behind the importance of plasma for those with an immunodeficiency.
Our Public Affairs team held a very successful Parliamentary Event, focused on plasma. in the House of Commons yesterday. Over 50 MPs attended, representing a host of diverse constituencies and demonstrating cross-party support for plasma donation. The event highlighted the life-saving potential of plasma and emphasised the need for self-sufficiency in plasma production. There were speeches by Munira Wilson MP, who sponsored the event, Lord Markham, Gerry Gogarty, Director for Plasma for Medicines, and Dr. Stephen Thomas, Director at JPAC, along with heartfelt testimonies from our charity partners and recipients. MPs in attendance have been invited to our three plasma donor centres in Birmingham, Twickenham and Reading, where they can witness first-hand the impact of their support on patients' lives. The event was delivered in partnership with Immunodeficiency UK and Societi – the UK Kawasaki Disease Foundation. #Plasma #GivingType #SaveLives #NHS #ParliamentaryEvent
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We're at the House of Commons today with @NHSBT, advocating for patients with immunodeficiencies. We're part of a crucial roundtable discussion on the urgent need for increased plasma donations. Help us raise awareness by sharing this post! #immunodeficiencies #plasmadonation #advocacy
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The Prescription Charges Coalition, which represents over 50 charities and organisations, including Immunodeficiency UK, is calling on the UK government to freeze the prescription charge in England in 2024 and 2025. Working age people living with long-term conditions like primary immunodeficiency, Parkinson’s, Multiple Sclerosis, arthritis, asthma, cystic fibrosis, motor neurone disease and HIV, who require multiple medications a day, cannot apply for an exemption and we’re worried that the increased cost will force people to choose between eating, heating and taking their vital medication. Add your name to the open letter and let the government know they need to #FreezeTheCharge. Link: https://lnkd.in/eAVTQaKU