Workshop MigHealthCare Strengthening
Workshop MigHealthCare Strengthening
Workshop MigHealthCare Strengthening
align health-related big data research with established regula- The importance of ensuring artificial intelligence and
tory frameworks such as data protection regulation, regulation machine learning can be understood at the human
on human subject research and ethics review. Based on this level
analysis, suggestions will be made on how to maximise the Sudha Ram
Downloaded from https://academic.oup.com/eurpub/article/29/Supplement_4/ckz185.260/5624240 by Universitaets- und Landesbibliothek Duesseldorf user on 25 October 2023
benefits of big data for public health while minimizing ethical S Ram1
risks. 1
College of Management, University of Arizona, Tucson, USA
Contact: [email protected]
Cloud-computing and precision medicine: Big data With rapid developments in big data technology and the
offers big opportunities prevalence of large-scale datasets from diverse sources, the
Alain April healthcare predictive analytics (HPA) field is witnessing a
dramatic surge in interest. In healthcare, it is not only
A April1
1
Department of Software and IT Engineering, ETS University, Montreal,
important to provide accurate predictions, but also critical to
Canada provide reliable explanations to the underlying black-box
Contact: [email protected] models making the predictions. Such explanations can play a
Research on large shared medical datasets and data-driven crucial role in not only supporting clinical decision-making
research are gaining fast momentum and provide major but also facilitating user engagement and patient safety. If users
opportunities for improving health systems as well as and decision makers do not have faith in the HPA model, it is
individual care. Such Open Data can shed light on the causes highly likely that they will reject its use. Furthermore, it is
of disease and effects of treatment including adverse reactions extremely risky to blindly accept and apply the results derived
side-effects of treatments, while also facilitating analyses from black-box models, which might lead to undesirable
tailored to an individual’s characteristics, known as persona- consequences or life-threatening outcomes in domains with
lized or precision medicine. Precision medicine treatments will high stakes such as healthcare. As machine learning and
take personalization to the next level and be effective for artificial intelligence systems are becoming more capable and
individual patients based on their genomic, environmental, ubiquitous, explainable artificial intelligence and machine
and lifestyle factors. High-throughput sequencing technologies learning interpretability are garnering significant attention
and open databases have made precision medicine possible but among practitioners and researchers. The introduction of
up to now only large research centres could handle the large policies such as the General Data Protection Regulation
scale technology needed for its processing. Aside from issues (GDPR), has amplified the need for ensuring human
such as user trust, data privacy, transparency over the control interpretability of prediction models. In this talk I will discuss
of data ownership, and the implications of data analytics for methods and applications for developing local as well as global
personal privacy with potentially intrusive inferences, recent explanations from machine learning and the value they can
advances by Berkeley using open source Big Data technologies provide for healthcare prediction.
and Cloud Computing Services has allowed precision medicine
studies to be conducted by small and agile research labs and
researchers around the world.