Mission: Cure’s Post

Good Morning LinkedIn! I'm building a case study and I need your help. By help, I mean one click and $5. So, here's the deal. I am the youngest member on the Board of Directors for Sickle Cell Disease Association of America, Inc. — National, a globally recognized leader in advancing initiatives for people affected by sickle cell conditions. In February, we raised $15K in 1 Day. Today, we're raising the bar for #GivingTuesday and have set an ambitious goal of raising $50,000! I mention my "youth" because I firmly believe that the future of fundraising is directly connected to convenience (i.e. quick transactions powered by tech). I don't know that everyone else agrees so I need data! 🤓 Will you help me? Great! Here's my ask (shh, don't tell them we're doing this): 😬 1️⃣ Click this link. https://bit.ly/3VjWseA 2️⃣ Enter $5 (or an amount of your choice). 3️⃣ Click "Donate", and finish the transaction. That's it! (Yes, I know it's actually two clicks - stay focused.) BONUS: Come back - "like" and share this post with your network. Now, if you'd like to donate more or set up a recurring donation, don't let me get in the way of a good time! These dollars will directly benefit and address the multifaceted needs of those living with sickle cell disease. Thank you for your support of this elder millennial fighting for a great cause. #SickleCellDisease #GivingTuesday

Sickle Cell Awareness Month September is here, and it's time to shine a light on a condition that affects millions worldwide—Sickle Cell Disease (SCD). This genetic blood disorder can cause severe pain, fatigue, and a host of other complications, yet many people still don’t know much about it. ✨ **Get Involved:** 1. **Educate Yourself:** Learn more about SCD. Knowledge is power! 2. **Spread the Word:** Share this post, talk to your friends and family, and help us amplify the voices of those living with SCD. 3. **Support Organizations:** Consider donating to or volunteering with organizations dedicated to SCD research and support. Every little bit helps! 4. **Wear Red:** Show your support by wearing red during September and sharing your photos with #SickleCellAwareness! Together, we can make a difference! Let’s raise our voices and spread awareness for those living with Sickle Cell Disease. 💪💙 #SickleCellAwareness #SickleCellDisease #EndSickleCell #HealthAwareness #enddomesticviolence #endsexualviolence #reintegration #hivaidsawareness #housingfirst #communityresource #nonprofit #newjersey #njac_helps

I am co-hosting a fundraising team for for Breakthrough T1D, a non-profit that supports the search for a Type 1 Diabetes cure through research and advocacy. This isn’t my typical LinkedIn post, but I’d love to share this with my professional network, as many of our loved ones or friends are impacted with this disease. Sharing this link if you'd like to join the team and walk with us, or you can simply donate to the cause: https://lnkd.in/gfY6uU8E Type 1 diabetes (T1D) is an autoimmune disease that is diagnosed in both children and adults and has nothing to do with diet or lifestyle. Managing T1D requires constant attention and action—including overnight. Even with a strict regimen, people with T1D can still experience dangerously high or low blood sugar that can lead to complications and, in extreme cases, be life-threatening. Breakthrough T1D, the leading global T1D research and advocacy organization, has played a crucial role in nearly every major T1D breakthrough in history. No organization does more to improve everyday life with T1D—from therapy development and access, to expanding research, advocacy, and community support. Your contribution to Breakthrough T1D Walk charts a path to cure, prevent, and better treat type 1 diabetes and its complications—and ensure access to treatments globally.

There are over 100,000 people on the waiting list for organ transplants in the U.S. This episode delves into the complex landscape of organ donation, exploring both the profound impact it has on saving lives and the hurdles faced in its implementation. My special guest, Jack Lynch, Retired Senior Advisor to the Gift of Hope Organ and Tissue Donor Network, discusses the essence of the struggles, triumphs, and ethical considerations surrounding the donation process, shedding light on the critical need for awareness, infrastructure, and support to overcome obstacles and ensure a brighter future for transplant recipients. Links [email protected] www.BalinADurrMD.com YouTube: https://lnkd.in/geGXvDUZ FB: https://lnkd.in/ggmrCS-g X: https://lnkd.in/gYNheySt IG: https://lnkd.in/gNbcZRau LinkedIn: https://lnkd.in/g7fDAsxe Medical Disclaimer: The information provided does not substitute for professional medical advice. All content, including text, graphics, images, and information, contained on or available through this site is for educational and informational purposes only. Please consult a medical professional or health care provider if users seek medical advice, diagnosis, or treatment. #organdonation #donatelife #organdonationawareness #DDLSS #DrDurrsLivingInTheSweetSpot #organdonationsaveslives #transplant #organdonor #giftoflife #dialysis #love #health #savealife #savelives #organtransplant #organdonorssavelives #donation #transplant #donor #medical #chronicillness #culturalcompetency #truthteller #patientadvocacy #patientadvocate #healthcare #patientrights #patientsfirst #patienteducation #patientcare #healthadvocate #patientvoice #healing #healingjourney #compassion #growth #growthmindset #transformation #empowerment #mindset #explorepage

"To live a healthy life, is something we all deserve, we need every type of person represented in health research” Frustrated by the lack of diverse representation in health research? Discover why your involvement matters and how you can make a difference. #BeVisible #HealthResearch #MakingResearchInclusive #INVISIBLE

Our new Systemic JIA / Still's disease leaflet will be soon landing on doorsteps of those who have told us have this sub-type of JIA when they requested their original Little Box of Hope support pack. New requests for A Little Box of Hope will also include this information for those affected by this sub-type. This resource was developed in response to families and medical professionals telling us that patient-facing materials were needed when someone is first diagnosed with Systemic JIA / Still's disease. Before we began to develop the resource, we spoke to adults with the condition as well as children, young people and parents / carers of those affected by this subtype of JIA to find out what information they wanted to see included, what format the resources should be, and how the important messages about signs and symptoms of Macrophage Activation Syndrome (MAS) should be given. We also worked with doctors to ensure that the resource contained the key information that they wanted patients and families to know and then the resource went through further stages of checking and PPIE (patient and parent involvement and engagement) before being printed. At this stage, a small print-run has been done so that those receiving the resource this week will also have the opportunity to give feedback before a bigger print-run happens in future. We are very grateful to everyone involved in creating this much needed resource. Find out more on our dedicated Still's disease website at www.stillsdisease.uk #JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #JuvenileArthritisResearch #Kipo #Arthritis #ChildhoodArthritis #ChronicIllness #AutoimmuneDisease #JARProject #JIAWarrior #ArthritisAwareness #charity #CharitableCause #JIAVIP #Donate #Support #JIAVIPResearchPanel #fundraising #philanthropy #KidsWithArthritis #KidsGetArthritisToo #DontBeAloneWithJIA #InstaCharity #RaiseAwareness #ThinkJIA #AwarenessIsEverything #PaediatricRheumatology #JIAResearch #PPIE

Such an inspiring project and such a powerful video! Medical research needs representation from people from a wide variety of backgrounds to help with funding prioritization, outcome evaluation, and key decision-making. There is a real imbalance of race, ethnicity, age and socio-economic status in research advocates and participants, and it can only change with your help. The poetry in this video explains why perfectly. I have the pleasure of being on the Scientific Advisory Council at Breakthrough T1D (JDRF) and their Insight and Experience Panel plays a key role in shaping the development of support services and innovative research projects. But that too needs more diversity. If you live with Type 1 Diabetes (or care for someone who does) please consider getting involved - https://lnkd.in/eRAQiV-m.

🎗️ Childhood cancer affects millions of families worldwide. Let's shed light on the latest statistics 📊 and stand together in the fight against this devastating disease. 💬 Share Your Thoughts: What steps can we take as individuals and communities to support children battling cancer and their families? Share your ideas and experiences in the comments below! 🌟👶 Visit 🌐 www.humanata.ca and ✅ follow👉Humanata. For enquiries, write to us at 📩 [email protected] Humanata | #CancerAwareness #CancerTreatment #MakeAnImpact #HealthCare #HealthTech #MedicalResearch #Nonprofits #Community #Leadership #Philanthropy #SocialImpact #DataAnalytics #Aiforgood #NonProfitOrganization #Networking 

🌟 Transform the Future of Sickle Cell Disease 🌟 The Foundation for Sickle Cell Disease Research (FSCDR) envisions a world where 100,000 Americans living with sickle cell disease experience no pain but only possibilities. This vision can only become a reality with your support. Sickle cell disease has long been underfunded and overlooked, yet with every breakthrough in research, treatment, and education, we step closer to changing this narrative. Whether you're donating in honor of a loved one or to shine a light on this community, your investment fuels hope, innovation, and the promise of a pain-free future. Join us in making a difference. Together, we can provide the attention and resources needed to fight this disease. www.fscdr.org/donate-now #EndSickleCellPain #FSCDRMission #InvestInHope #SickleCellAwareness #BeTheChange #SupportSickleCellResearch #SickleCellSupport #HopeForHealing #FightSickleCell #HealthEquity #ResearchForCure #CommunityStrength

I rarely to never post personal posts on here, but this was worthy. #coatsdisease #coatsdiseaseawareness #coatsstrong #curecoats https://lnkd.in/eCXGeagG another year, another Coats' 5k! Help support B in finding a cure for Coats! Another year, another Coats' 5k! For anyone whose interested in supporting B's 5k team, donating for research towards a cure, or learning more in general, especially if you work with children, I highly encourage you to check out Jack McGovern Coats' Disease Foundation - you never know whose sight you could help save! We included his story over the years in his page, but here's an update since the last Coats' post! Present day (May 6, 2024): Today is B's 5th Birthday. He was officially diagnosed with Coats' the day before his 3rd birthday, marking today as his 2 yr and 1 day anniversary of his diagnosis. Between then and now, he has undergone 4 surgeries, and been declared legally blind in his right eye. Coats' was something we had never heard of, and there are few things scarier in the world than being told your child has a rare disease with no known cause or cure. As a parent your whole instinct is to protect and guide your kids, but how do you do that when your kid is diagnosed with a rare disease that has virtually no answers....insert Jack McGoverns Coats Disease Foundation. The single most feeling I remember during the diagnosis was overwhelmed. We had SO MANY questions, with virtually no answers. And not even the most experienced medical professionals could give them to us. I encourage every one to research #knowtheglow and check out Jack McGoverns foundation - you never know whose sight you could help save! And if you're able to support, every cent helps! While there is no cure today, we are forever hopeful that in the future we can find a cure and a treatment for B and others with Coats'.