Mission: Cure

At the 2024 American Pancreatic Association meeting, Mission: Cure CEO Megan Golden met with Honit Piplani of Greenstone Biosciences, a company at the forefront of developing treatments for acute and chronic pancreatitis. Excited to see what the future holds! #APA24 #Pancreatitis

Our son, Atlas's story was recently featured, and it is such an honor to share his journey in the hope of inspiring others. With #GivingTuesday coming up, it’s a reminder of how important community and support are in all of our journeys, but especially for those fighting rare diseases. Every illness that has ever been cured was cured because there were people who stepped up to provide resources, commitment, and hope to building a better future. 💜 https://lnkd.in/gKzHYnvc Please consider Mission: Cure this Giving Tuesday - https://lnkd.in/gHu7DrAG

Meet Atlas, a courageous 9-year-old battling chronic pancreatitis. For over 5 years, he's faced debilitating pain that keeps him from being just a kid. This #GivingTuesday, join Mission: Cure in transforming lives. We're: - Partnering with 3 biotech partners to advance groundbreaking treatments  - Shaping patient-centered clinical trials in 2025 - Supporting 10,600+ pancreatitis warriors with vital resources - Leading critical FDA advocacy for patient needs - Providing life-changing education programs for families "Awareness without action is empty." - Crystal, Atlas's mom Your donation provides hope for Atlas and over 1 million others living with pancreatitis. 💙 Make your impact today. (🔗 link in comments)

Last month, our co-founders Megan Golden and Linda Martin were at the Chan Zuckerberg Initiative 2024 meeting, joining an incredible community of patient advocates, researchers, and leaders! With representatives from 93 patient-led rare disease organizations, 25 research institutions, and 7 countries, Megan spoke about Mission: Cure’s quest to end pancreatitis and our participation in a CZI-funded project to use smart watches and smart rings to help pancreatitis patients understand and manage their symptoms. She was joined by Moderator Terry Jo Bichell from COMBINEDBrain, Stephen Friend from 4YouandMe, and Natacha Pires from APBD RESEARCH FOUNDATION. We are grateful to 4YouandMe for leading this work.

Mission: Cure’s co-founder, Linda Martin, with Sunitha Malepati from the Buffalo Initiative and CACNA1A Foundation, led a packed session on innovative funding for rare disease drug development at the Chan Zuckerberg Initiative Science in Society meeting in San Jose! Linda presented Mission: Cure’s experience with impact investing in pancreatitis therapies.

We are excited to announce that Mission: Cure's annual Moments of Hope Virtual Gala will be held on October 10th at 5:45 PM PT / 8:45 PM ET. This free, virtual event will bring together patients, families, healthcare professionals, researchers, and supporters to celebrate the progress we've made and continue our push for better treatments and a cure for pancreatitis. This event is free, and we encourage anyone with an interest in pancreatitis or a passion for making a difference to join us! If you're unable to attend, you can still contribute—your support will help drive breakthroughs in treatment and care for pancreatitis patients. Register or donate today at https://lnkd.in/ed2-25xs

We’re honored to share that our co-founder, Megan Golden, is speaking at this year’s RARE Advocacy Summit hosted by Global Genes in Kansas City! 🎉 The summit, themed “There’s No Place Like Hope,” is one of the world’s largest gatherings of rare disease patients, caregivers, advocates, healthcare professionals, researchers, drug developers, and allies. Megan is speaking about innovative funding strategies for rare disease cures. We’re so excited to see Megan share her insights alongside so many dedicated advocates and changemakers. #GGSummit24 #WeekInRARE #RAREAdvocacySummit #RareDisease #Pancreatitis

We encourage clinicians to check out the Harvard Medical School course "Management of Pancreatic Disorders for the Practicing Clinician," featuring a comprehensive list of topics and 36 esteemed gastroenterologist and surgeon speakers!

Congratulations to Mission: Cure CEO, Megan Golden, on her nomination for the Rare Champion in Advocacy Award by Global Genes! We are proud of her dedication and leadership.