We need your help tomorrow in our Big Give Christmas Challenge. Every donation you make from midday tomorrow up to midday on December 10th will be doubled. Every donation will make a real difference to those living with or bereaved by epilepsy. Check out our donation page to see where your money will go: https://lnkd.in/e_sjK5PP #SUDEP #epilepsy #epilepsyawareness #sudepaware
SUDEP Action
Research
Wantage, Oxfordshire 1,047 followers
Dedicated to raising awareness of epilepsy risks & tackling #epilepsy deaths including #SUDEP www.sudep.org
About us
SUDEP Action is a reporting and support centre for all epilepsy deaths. The charity is the leading voluntary organisation in the UK and internationally, on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy-related deaths. The charity works with leading experts to prevent deaths from epilepsy through research education and awareness. There are five key strands to our work: - Providing information on SUDEP and risk in epilepsy - Offering support when someone has died - Involving people to effect change - Sponsoring research and education to prevent further deaths - Capturing data through The Epilepsy Deaths Register www.sudep.org www.sudepactionday.org - global awareness day on 23 October 01235 772850 01235 772852 (Support line) Facebook - @SUDEPAction.org Twitter - @SUDEPAction SUDEP Action, registered charity 1164250 (England & Wales), SC047223 (Scotland). Epilepsy Bereaved (founded 1995) is part of SUDEP Action.
- Website
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http://www.sudep.org
External link for SUDEP Action
- Industry
- Research
- Company size
- 11-50 employees
- Headquarters
- Wantage, Oxfordshire
- Type
- Nonprofit
- Founded
- 1995
- Specialties
- Epilepsy Research, Bereavement Support, Epilepsy Awareness, SUDEP Awareness, SUDEP Research, and SUDEP Information
Locations
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Primary
18 Newbury Street
Wantage, Oxfordshire OX12 8DA, GB
Employees at SUDEP Action
Updates
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If you have any questions following an epilepsy-related death or simply need someone to talk to, our experienced team are here for you. Call 01235 772852 or email in at [email protected] #SUDEP #epilepsy #grief
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Nicki Walker’s Christmas Craft and Gift Fair raised £1,500 for SUDEP Action, in memory of her sister Tania Knight who sadly died 18 months after getting married. “It was a superb day… We had 563 people through the door from 12-5pm and everyone had a great afternoon. Fabulous feedback from the customers and stall holders. I know my beautiful sister would have loved it, raising money for such a great cause and helping to raise awareness.” #SUDEP #epilepsy
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Join us again for Light Up the Sky in Memory on December 13th – 10th January to honour and remember those we have lost to epilepsy. Light Up the Sky is for anyone who has lost a loved one to epilepsy and wishes to share their memories and photos on our online dedication wall. Watch this space for details to come. 💜 🌠 #LightUptheSky #SUDEP #sudepaware #epilepsyawareness
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Could you take on the Bath Half marathon? There's only a few places left so sign up today: https://lnkd.in/g9JxX54R The race will take place on Sunday 16th March 2025. If you want more information, please email [email protected] 🏃♀️🏃 #bathhalf #bath #epilepsyawareness
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SUDEP Action are thrilled the new government is setting up a UK Neuro Forum. It’s a win for the #BackThe1in6 campaign we have supported as part of The Neurological Alliance. We must make sure it makes urgent change happen for people with #epilepsy and all with a neurological condition. #neurology #seizures #sudepaware
BREAKING: Government launches the first-ever UK-wide Neuro Forum, following the #BackThe1in6 campaign, which was supported by 19,000 people & 100 organisations. When we work together, we CAN achieve real change. Thank you. Learn more https://bit.ly/417Ces7 #BackThe1in6
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Our support line is open through the run-up to Christmas. We know that this time of year is difficult for many and it’s important to know there is no right or wrong way to grieve. You're not alone, we're here to help. Contact us on 01235 772852 or email [email protected] #SUDEP #epilepsy
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A £20 donation could provide the use of our EpSMon app to 10 people with epilepsy for a whole year. EpSMon helps track personal epilepsy risks and provides key information to GPs. The Big Give Christmas Challenge will match-fund all donations meaning the impact of our free and award-winning resources, like the EpSMon app and the SUDEP and Seizure Safety Checklist, will double. Please note that all donations must go through our Big Give page: https://lnkd.in/e_sjK5PP #SUDEP #epilepsy #sudepaware #seizures
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A huge thank you to Making Websites Better in their fundraising over Autumn! They managed to raise over £1,600 in memory of their CEO Paul Warren’s sister, Nicki, who sadly passed away from epilepsy. Thank you to everyone who got involved 🧡 #SUDEP #epilepsy #sudepaware
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“Rachel never wanted to be defined by her dissociative seizures or her epilepsy. On a daily basis, she showed and taught me resilience, strength, selflessness, and positivity.” Read Rachel’s story, written by her fiancée Ewan Duff: https://lnkd.in/eAp3CJ5v #SUDEP #epilepsy #epilepsyawareness