SUDEP Action

Nicki Walker’s Christmas Craft and Gift Fair raised £1,500 for SUDEP Action, in memory of her sister Tania Knight who sadly died 18 months after getting married. “It was a superb day… We had 563 people through the door from 12-5pm and everyone had a great afternoon. Fabulous feedback from the customers and stall holders. I know my beautiful sister would have loved it, raising money for such a great cause and helping to raise awareness.” #SUDEP #epilepsy

Join us again for Light Up the Sky in Memory on December 13th – 10th January to honour and remember those we have lost to epilepsy. Light Up the Sky is for anyone who has lost a loved one to epilepsy and wishes to share their memories and photos on our online dedication wall. Watch this space for details to come. 💜 🌠 #LightUptheSky #SUDEP #sudepaware #epilepsyawareness

Could you take on the Bath Half marathon? There's only a few places left so sign up today: https://lnkd.in/g9JxX54R The race will take place on Sunday 16th March 2025. If you want more information, please email [email protected] 🏃♀️🏃 #bathhalf #bath #epilepsyawareness

SUDEP Action are thrilled the new government is setting up a UK Neuro Forum. It’s a win for the #BackThe1in6 campaign we have supported as part of The Neurological Alliance. We must make sure it makes urgent change happen for people with #epilepsy and all with a neurological condition. #neurology #seizures #sudepaware

Our support line is open through the run-up to Christmas. We know that this time of year is difficult for many and it’s important to know there is no right or wrong way to grieve. You're not alone, we're here to help. Contact us on 01235 772852 or email [email protected] #SUDEP #epilepsy

A £20 donation could provide the use of our EpSMon app to 10 people with epilepsy for a whole year. EpSMon helps track personal epilepsy risks and provides key information to GPs. The Big Give Christmas Challenge will match-fund all donations meaning the impact of our free and award-winning resources, like the EpSMon app and the SUDEP and Seizure Safety Checklist, will double. Please note that all donations must go through our Big Give page: https://lnkd.in/e_sjK5PP #SUDEP #epilepsy #sudepaware #seizures

A huge thank you to Making Websites Better in their fundraising over Autumn! They managed to raise over £1,600 in memory of their CEO Paul Warren’s sister, Nicki, who sadly passed away from epilepsy. Thank you to everyone who got involved 🧡 #SUDEP #epilepsy #sudepaware

“Rachel never wanted to be defined by her dissociative seizures or her epilepsy. On a daily basis, she showed and taught me resilience, strength, selflessness, and positivity.” Read Rachel’s story, written by her fiancée Ewan Duff: https://lnkd.in/eAp3CJ5v #SUDEP #epilepsy #epilepsyawareness

A warm welcome to Pierce Hallett-James who has joined the SUDEP Action team as our Bereavement Services Officer! “With experience supporting bereaved families within the NHS, I’ve learned the profound impact of simply being a listening ear and a source of guidance. My mission is to provide comfort and understanding to those in need and foster connections that can help navigate the difficult journey of loss. I believe in the power of empathy and support. I’m here to make a difference one conversation at a time.” For queries about what our support team offer, please head to: https://lnkd.in/eYMH2tmX #sudepaction #SUDEP #epilepsy

“SUDEP Action works tirelessly to reduce unnecessary deaths in young people whose futures were snatched away by epilepsy and supports those they leave behind with compassion.” Rachel Sumaria, SUDEP Action Trustee Every donation to our Big Give page from 3rd – 10th December midday will be match-funded meaning we could reach twice as many people who need our support. Please help us reach our ambitious £10,000 target to reach those in need. 🧡 Bookmark our page: https://lnkd.in/e_sjK5PP #SUDEP #epilepsyawareness