Ruud Coolen van Brakel

Today, we presented the main results on the European EUFEMED Survey on Healthy Participant Engagement on the EACPT 2024 conference in Rotterdam via the poster added below. The results show that the healthy volunteer community recognizes the necessity of participant engagement and expresses a willingness to contribute towards this endeavor. We will go more into detail on this topic, and on the preferences and motivation of healthy volunteer trial participants in our webinar on 14 June 2024. https://lnkd.in/ePB5yFFT

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International Foundation for Integrated Care (IFIC) is leading the work package focusing on the Transforming Cancer Prevention for People with Mental Health problems Plan, which integrates Patient Navigation (PN) and the implementation of primary cancer prevention programmes in EU health systems. IFIC is a not-for-profit network incorporated as a Stichting in the Netherlands. IFIC’s mission is to cross organisational and professional boundaries to bring people together to advance the science, knowledge and adoption of integrated care in policy and practice. IFIC seeks to achieve this by developing and exchanging ideas among academics, researchers, managers, care practitioners, policymakers, and people who use services alongside their carers and families throughout the world. A key focus of IFIC is to act as a research and knowledge exchange hub in partnership with its members and academic centres internationally and its involvement in EU-funded projects and commissions for example, from the World Bank and World Health Organisation. IFIC has recently provided technical support and capacity building to countries, regions and specific integrated care programmes through its Integrated Care Solutions initiative. #MentalHealth #Cancer #HealthCare #EUBeatCancer

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🌱 The Power of Collaboration: ZOHRA – Adding Life to the Days! 🌱 Since November 2022, we’ve been part of a special coalition around healthcare education with partners like Surplus, Transvorm , Thebe, Mijzo, Avans Hogeschool, and Curio. Our shared goal? To learn and grow together, and above all: to add life to the days. Thanks to this strong dream and building strong relationships, we’ve succeeded in reconnecting the sector and working towards a collaborative future. As facilitators, we’ve learned how important it is to work directly on relationships and develop a shared language. This ensures that everyone understands each other, regardless of the differences between organisations. Now, bing in the sustain phase of the coalition proces, we are helping ZOHRA—our innovative learning program in healthcare—become embedded in existing systems. What we’ve learned from this experience: 💭 The importance of a strong vision and a shared dream 🔎 The art of zooming in and out: keep dreaming, but also make those dreams come true 🗣️ The power of language and rhythm: a shared language creates connection The next step? Our goal is for the coalition to continue independently from our   Fronteer colleagues, James Veenhoff, Gittan K., Irheen de Vries, and Nina Touw, making ourselves ‘redundant.’ This might sound strange, but a common consultancy pitfall would be to make ZOHRA dependent on us. We genuinely want to ensure that it stands on its own and continues to drive change. Looking further into the future, the ultimate achievement would be for this concept to be adopted in other regions. This month we are highlighting some of our current coalition projects. Want to know more about our approach and experiences? Don't hesitate to reach out! We love to share our learnings. 📲 #innovation #collaboration #healthcare #leadership #fronteer #cocreation

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I will be speaking at #ICHOM2024 on 21-22 October at the Beurs van Berlage, Amsterdam. This year’s conference hosted by International Consortium for Health Outcomes Measurement (ICHOM) will have transformative discussions with the value-based healthcare community. Being newer to this space, I am looking forward to learning about Value Based Healthcare initiatives worldwide, standardized outcome measurement, and discovering practical examples for improving care delivery and outcomes. Learn more: https://lnkd.in/eSk3zzsx #ICHOM #VBHC #PatientCenteredOutcomes

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🌬️🌍 The "State of Global Air 2024" report is in, and it's eye-opening! This report dives deep into air quality issues worldwide.    Despite progress in maternal and child health, according to Kitty van der Heijden: “every day almost 2,000 children under five years die because of health impacts linked to air pollution.”    Chronic diseases and childhood asthma are rising due to air pollution, with kids being especially vulnerable. NO2, an invisible gas from burning fuel that harms your lungs and contributes to smog, is a key culprit. Good news? Death rates for kids under five due to air pollution have dropped 53% since 2000, thanks to better clean energy, healthcare, and awareness. But the fight isn’t over! We need stricter air quality regulations and clean tech investments to combat this invisible threat. 🌱 🔗 Explore the full report: https://lnkd.in/ddUFXn6 #AirPollution #StateOfGlobalAir 

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Inzicht in transformatie

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deze ziekte wordt vaak verspreid in het westelijke kustgebied van Jemen. persoonlijk heb ik verschillende gevallen gediagnosticeerd volgens de conventionele technieken van vóór 2015. Onder de Artikel samenvatten (NVMM 2024) Onchocerciasis is a rare parasitic traveler's infection and is caused by a threadworm (Onchocerca volvulus), particularly in Central Africa. Severe itching, localized swelling (onchocercoma) and finally blindness may occur. In this case report, a subcutaneous swelling is removed in an otherwise healthy woman, which in the pathology laboratory turns out to be an onchocercoma. The patient is treated with doxycycline and ivermectin for onchocerciasis. Presentation with onchocerciasis is extremely rare in the Netherlands. Perform diagnostics for onchocerciasis in patients who had prolonged stays in Central-Africa or Yemen and present with local swelling, severe itching or progressive vision complaints. Treatment comprises doxycycline and ivermectin.

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Meet Our Consortium Leader: Prof Wim Goettsch 🎓✨ As part of our initiative to introduce the experts leading SUSTAIN-HTA, we are thrilled to introduce Prof Wim Goettsch, our consortium leader and lead expert at Utrecht University. With a background in Health Technology Assessment (HTA), Wim is a Special Advisor at Zorginstituut Nederland and a Professor for HTA of Pharmaceuticals at Utrecht University. Wim has led several major European projects, including the HTx Project - Next Generation Health Technology Assessment and EUnetHTA - European Network for Health Technology Assessment JA3, contributing significantly to HTA development and implementation of new methods in policy and practice. A quote from Wim on the vision of SUSTAIN-HTA: “SUSTAIN-HTA gathers a consortium of HTA organisations and academic groups to triangulate the scientific and methodological needs of HTA organisations, the current state of the art of HTA methods in use and the new HTA methods being developed by various stakeholders. SUSTAIN-HTA will not develop new HTA methods but will support the implementation of new methods in HTA in Europe. In brief, we must begin continuously recording the needs for new methods within HTA organisations. At the same time, we will need an ongoing record of what new HTA methods are being developed. By structurally linking these needs and developed methods, we can support the timely implementation of state-of-the-art HTA methods in HTA practice. Utrecht University, through its involvement in earlier projects such as H2020-HTx, IMI-GetReal and EUnetHTA JA3 and through our structural link to the Zorginstituut Nederland in the Dutch Academic Research Network HTA, has the knowledge, experience and resources to coordinate this effort." 👉 Stay tuned for more introductions and find out more about our experts here: https://lnkd.in/dmtx6UR5 #SUSTAIN_HTA #HorizonEurope #HealthTechnologyAssessment #HTA #Innovation

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Discussion on the Health Data Acces Body (HDAB) development in the Netherlands to facilitate health innovation and policy development by making health data accessible and reusable. HEALTH-RI "Trusting Forward" conference.

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"The added value of a vendor neutral open data platform". Masterclass openEHR goes live at the ICT&health World Conference. Visit our session on Thursday May 16th in Maastricht. How do we improve data availability? What is a vendor neutral open data platform and what are the benefits? What is the transformative value of openEHR and low-code? The answers to these (and many more) questions are central in our Masterclass openEHR. Sebastian Iancu (CODE24), Erik Vermeulen (EY), Bouwe Koopal (Maarsingh & van Steijn), Stefan Schraps (vitagroup) and Hans Canisius (USoft) will present their vision from 5 different perspectives, followed by a lively discussion with all speakers and you. Data availability, separating data from applications, CDR's, lifetime data, #FIHR, #openEHR, #lowcode, #EHDS, archetypes, federation, vendor neutrality, regional collaboration and (inter)national success stories will be reviewed. openEHR, in combination with FHIR and OMOP, is gaining ground rapidly. In order to make the right decisions now, be smart and registrate: https://lnkd.in/eDsmFzrj In the current situation, healthcare organizations have a high dependence on system suppliers. This limits renewal and innovation. Cooperation between different healthcare organizations is also less efficient. Patients themselves have limited control over their own data. As a result, healthcare organizations are, as it were, still hostage to data and outdated EHRs. They often still have their own EHR that is specifically adapted to the organization and often intertwined with the system that supports the healthcare processes. With the Dutch Integraal Zorg Akkoord, which was drawn up last September in mind, these different care packages are now still being linked together. In practice, however, this is proving difficult, costly and not sufficiently scalable for what the sector needs to be future-proof. openEHR (open Electronic Health Record ) is an internationally embraced standard for building healthcare IT systems. This technical specification describes a way of storing, retrieving, and exchanging medical data without depending on healthcare system vendors, and can support multiple exchange standards (e.g. HL7 FHIR). Meet you in Maastricht! openEHR NL openEHR International openEHR UK openEHR Sverige Stichting HL7 Nederland Health Level Seven International Better Tietoevry HiGHmed Cambio Group Nedap Healthcare Dedalus Agence du numérique en santé Ministerie van Volksgezondheid, Welzijn en Sport Nictiz CumuluZ HEALTH-RI, RSO Nederland Santeon mProve ziekenhuizen EIT - European Institute of Innovation and Technology NFU - Nederlandse Federatie van Universitair Medische Centra NHS Sistema de Salut de Catalunya European Commission Nederlandse Vereniging voor Klinische Informatica (NVKI) VZVZ NVZ | Nederlandse Vereniging van Ziekenhuizen STZ (Samenwerkende Topklinische Ziekenhuizen) HIMSS Europe #IWC24 

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Today Task Force Health Care (TFHC) presented the “Ukraine Healthcare Financing report – March 2024 edition” to Anatolii Solovei and Valerii Motylov of the Embassy of Ukraine in the Kingdom of the Netherlands. The "Ukraine Healthcare Financing" report describes the opportunities and barriers for healthcare financing and infrastructure in Ukraine. Micha Van Lin: "This document emphasizes the urgent need for sustainable, demand-driven healthcare solutions, showcasing the power of Dutch expertise alongside national and international financial instruments aimed at Ukraine's healthcare system's recovery." The report recommends to: 🏥 Sustain and Adapt Funding Facilities: Continue the Ukraine Partnership Facility, considering adjustments to make it more accessible and effective for Dutch companies. 🏥 Enhance Information Accessibility: Improve the availability of detailed information about funding instruments, including eligibility and application procedures. 🏥 Support Tender Participation: Develop knowledge and capacity regarding tender platforms and procedures, assisting Dutch healthcare companies in navigating these opportunities.| 🏥 Foster Public-Private Collaboration: Encourage the formation of partnerships and consortia to tackle the challenges of project size and complexity, leveraging both public and private sector strengths for healthcare recovery in Ukraine. The full Ukraine Healthcare Financing report - March 2024 Edition can be accessed through: https://lnkd.in/ekpmvE4Z. The report was made possible through funding from Frank Eyssen | NLWorks. Ukraine - Netherlands collaboration for healthcare recovery is shaped through the Public-Private Healthcare Recovery Platform. The secretariat is formed by Sven Walraven | Netherlands Enterprise Agency and Pieter van Beers | Task Force Health Care (TFHC) (more information and registration via: https://lnkd.in/eddX2zht) In collaboration with Netherlands Enterprise Agency an NL lounge will be organized during the Rebuild Ukraine Health & Rehabilitation Conference (24-25 June) (https://lnkd.in/dK4gqRXH). More information on the conference and registration for the NL lounge via the RVO website: https://lnkd.in/emc3SE6u We will continue our unfaltering support to Ukraine and its people!

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Yes we can! We’re thrilled to announce that integration of BINGLI into EHRs is now a reality, and we’re taking the first steps together with Sanday.   💡 Better prepared patients, doctors, and nurses? It’s now possible with Bingli’s advanced solution for consultation preparation and triage!   This integration brings smarter care pathways by: ✅ Providing better insight into the patient’s needs. ✅ Exploring options (self-care or a quick call may be all that’s needed!). ✅ Ensuring consultation time is reserved for those who truly need it. ✅ Equipping healthcare professionals with the best preparation for every conversation.   The result? Optimized consultations and empowered care teams—all while enhancing patient outcomes.   The future of efficient, patient-focused care is here. https://lnkd.in/ezDMgK4R

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Day 3️⃣ of this exciting conference week 📢 Today, Danielle Revers and I will present "A European Trilogy – ​The fellowship of digital mental healthcare" What we learned when implementing digital solutions in different European countries and health care markets. ​ Will we see each other at the ICT&health World Congress in Maastricht? #digitalmentalhealthcare #digitalhealthcare #digitaleversorgung

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Last week, we announced our collaboration with Healthcare SMPLX. 🔥 Want to learn more on how we're planning to optimize care pathways? Dive into our detailed brochure! 📄 #CareOptimization

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My Takeaways from the 2024 VBHC Prize Event: Do you know what is the role of Digital Twins in Health (DT4H)? During the Opening keynote of the 2024 VBHC Prize event, Professor Fred van Eenennaam, Chair of the Value-Based Health Care Center Europe - News & Events, adressed this innovative concept, applied in different industries, which involves creating a virtual replica of a person, a process or even a system. When it comes to healthcare, DT4H promises to revolutionize the way healthcare is delivered & managed, patients are treated and disease is prevented. If you want to know more about DT4H, you can also check this recent and very insightful review article on the current applications of DT4H, authored by Evangelia Katsoulakis et al and published on the Nature Portfolio, available at: https://lnkd.in/dxMrJ2cv #VBHCPrize2024 Steven Buijs Larissa Pinho, RN, VBHC Green Belt MAK Valor Mentoring AcademiaVBHC

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Upcoming #Event: Cross Living Labs visit Amsterdam! Professionals from various living labs will come together to share insights and successes and tackle challenges: ✔ Juanita Devis from AMS Leadership Institute will start with a social activity designed to foster meaningful connections and insightful discussions about the diverse experiences in our Living Labs. ✔Mark Frederiks from AMPED will lead an interactive workshop on the GAIN Transition Model, focusing on onboarding journeys, dynamisation strategy, and essential rules and principles. ✔ Redouan Boussaid will showcase an initiative connecting farmers, entrepreneurs, and citizens to promote local food in neighbourhoods and foster regional collaboration. ✔Arun Swami Persaud will highlight the blend of cross-cultural urban agriculture, where city and countryside converge to enhance sustainability. ✔Mark Frederiks will take us back in time, illustrating how systemic solutions harnessing nature's power protected our cities and food production. ✔Jacqueline Broerse from Athena Institute will present the vital role of Living Labs in EU programming and share insights from the FoodClic-EU4-Advice collaboration. ✔Katherine Flynn from Iseki will discuss e-learning, training, and gamification strategies to enhance onboarding journeys and connect projects. 🗣️ Reflecting with Experts and Policy Makers: A panel of experts, including Dennis Kerkhoven, Juliane Kürschner, Arnold van der Valk, Baiba Prūse, and others, will reflect on the necessary structures, processes, and functions to unlock Living Labs' potential. 💡 Co-Creation and Governance: The final session, facilitated by Juanita Devis from AMS, will focus on co-creating solutions based on governance cases from each Living Lab, exploring how to scale, resource, organise, and integrate knowledge effectively. ...And more! Stay tuned to know how it went. We will keep you posted! #LivingLabs #Collaboration #Innovation #Sustainability #LocalFood #UrbanAgriculture #CoCreation #Gamification

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The Dutch State Committee on MDMA recently submitted their report “MDMA: Beyond Ecstasy” to the Dutch Minister of Medical Care. The committee was tasked in assessing the public health implications of ecstasy in the Netherlands, and in advising the government on the medicinal use of MDMA. The 233-page report details the findings of their investigation.  On the recreational use of ecstasy: 💊 Effective harm reduction measures have led to infrequent use per user, low pill consumption per session, and minimal ecstasy-related deaths. 💊Recreational ecstasy use has limited harm, with low addiction risk and few serious incidents, thanks to successful harm-reduction efforts.  💊MDMA should stay classified as a hard drug due to its ties to organised crime. However, the committee suggests considering future reclassification to a soft drug and reviewing the criteria and process for classifying substances under the Dutch Opium Act. On the clinical use of MDMA: 💊 MDMA-assisted therapy appears effective and safe for treating chronic and treatment-resistant PTSD. 💊 Currently, there isn't enough evidence to prove its effectiveness for other mental health conditions. 💊 The Dutch government should facilitate the introduction and use of MDMA-assisted therapy as soon as possible to address the large unmet need for PTSD treatment. 💊 A formal application for marketing authorization is unlikely in the near future. Therefore, the committee suggests starting a comprehensive naturalistic study to monitor PTSD patients undergoing MDMA-assisted therapy. Read Committee Co-chair Wim van den Brink’s full summary of findings, available now on the Drug Science website:  https://lnkd.in/d9m7t4tM

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The 2024 annual CaRe Days in Eindhoven, organized by Research School CaRe, a collaboration of the institutes Nivel, Amsterdam Public Health, Radboudumc, and Care And Public Health Research Institute (CAPHRI), were attended by Anam Ahmed, PhD and Ysanne de Graaf. They were so thoughtful to share the following observations for you: 🤓 A lof of talk during the CaRe Days was about how to transform healthcare to make it future-proof. To enable transitions in healthcare, we must acknowledge that traditional science alone cannot answer complex questions. 🤝 We need to use a variety of knowledge sources from different disciplines and practices to create a comprehensive and interconnected picture, that connects to what works in different settings. Moreover, we need to work together to prevent knowledge silo's from coming into being. 🤞 Government agreements like the Integraal Zorgakkoord (IZA), Gezond en Actief Leven Akkoord (GALA), Toekomstbestendige Arbeidsmarkt Zorg & Welzijn (TAZ), and Wonen, Ondersteuning en Zorg voor Ouderen (WOZO) aim to support these transitions. 🔎 Research can indeed be supportive in monitoring, evaluating, adapting and implementing these most needed transformations towards future-proof healthcare and improved health outcomes for everyone. 🎆 At PANAXEA we are dedicated to researching how these transitions can be made possible, both in and outside the Netherlands. Our work, for example, includes studying task sharing and task shifting by incorporating multi-stakeholder perspectives, employing realist research by identifying mechanisms, and conducting health technology assessments. 😀 Interested to find out more about what we do? Visit our website or feel free to contact us: www.panaxea.eu #CaReDays #HealthcareInnovation #HealthcareTransformation

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