⏳ Only 4 days remain.... Your voice matters in shaping a brighter future for those affected by epilepsy worldwide. Participate in the Global Epilepsy Needs Study and share your perspectives to help inform research, policy, and support services. The International Bureau for Epilepsy (IBE) is leading a groundbreaking research study, the Global Epilepsy Needs Study (GENS), to better understand the diverse needs and challenges faced by individuals living with epilepsy and their caregivers worldwide. Learn more and take the survey by clicking on the link below 💜 https://bit.ly/3ApPVXZ #epilepsy #EpilepsyFoundation #GlobalEpilepsyNeedsSurvey #GENS #EpilepsySupport #epilepsyresearch
Australian Epilepsy Project
Research Services
Heidelberg, Victoria 809 followers
Improving the lives of people living with epilepsy from day one.
About us
The AEP (Australia Epilepsy Project) aims to improve the outcomes of people living with epilepsy. Through advanced testing (imaging, cognition and genetics) and through the use of Artificial Intelligence (AI) to create precision diagnosis, the AEP aims to break down treatment silos, create advanced diagnostic tools and reduce the uncertainty that characterises epilepsy care today. Up to a quarter of a million people in Australia live with epilepsy - a condition that severely impacts a person's quality of life, from health, safety and independence through to employment limitations and poor mental health outcomes. Epilepsy is the second most burdensome neurological condition after dementia and is estimated to cost $12.3 billion a year in public healthcare. Currently a five-year study, the AEP will evolve to become a health platform that will transform the delivery of health care in epilepsy, with the potential for application across other brain health conditions. A network roll out of AEP hubs has already begun and will continue across Australia to enable participants access to the best diagnostic testing, alongside at-home testing. “I want every Australian living with epilepsy to be free from seizures. This is my life’s work. The AEP team will make this a reality.” Prof. Graeme Jackson, Chief Investigator What began as a proof-of-concept pilot study, AEP received a $30Million grant from the MRFF in 2021 - the single largest government investment into epilepsy research in Australia.
- Website
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http://www.epilepsyproject.org.au
External link for Australian Epilepsy Project
- Industry
- Research Services
- Company size
- 11-50 employees
- Headquarters
- Heidelberg, Victoria
- Type
- Nonprofit
Locations
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Primary
Get directions
245 Burgundy St
Heidelberg, Victoria 3084, AU
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Get directions
Melbourne, AU
Employees at Australian Epilepsy Project
Updates
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🌏 Help Shape the Future! The International Bureau for Epilepsy (IBE) is leading a groundbreaking research study, the Global Epilepsy Needs Study (GENS), to better understand the diverse needs and challenges faced by individuals living with epilepsy and their caregivers worldwide. Participate in the Global Epilepsy Needs Study and share your valuable insights. Your voice matters in shaping a brighter future for those affected by epilepsy worldwide. Learn more and take the survey by scanning the QR Code below 💜
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📢 DOUBLE DONATION DAY 📢 Donate to #WalkForEpilepsy today and double your Impact 💰 💰 That's right, $1 = $2, $5 = $10, $50 = $100!! To support our wonderful Amanda Anderson, Lived Experience Ambassador and Participant Lead, and Team, please donate via the link below 🙏 💜 Funds raised will ensure that individuals, families, schools and workplaces receive the epilepsy information, support, and education and training they need 💜 #WalkForEpilepsy #EpilepsyFoundation #DoubleYourImpact #LivedExperience #EpilepsyAwareness
Lived Experience Ambassador & Participant Experience Lead, Australian Epilepsy Project
It's Double Donation Day!! If you have been thinking of donating to my team at The Australian Epilepsy Project for the walk for Epilepsy, today is the day. Every donation will be matched by the #WalkForEpilepsy sponsors, which doubles your donation and impact 💜 Link below for donations.
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Australian Epilepsy Project reposted this
Around 30 percent of people live with unpredictable seizures. That's more than 24 million people worldwide. Despite taking anti-seizure medications, some are unable to maintain seizure control. This condition is known as uncontrolled, intractable, refractory, or drug-resistant epilepsy. For these individuals, alternative treatments like neurosurgery or vagal nerve stimulation may be offered to reduce or eliminate seizure activity. What do you wish more people understood about drug-resistant epilepsy? If you would like more information on drug-resistant epilepsy, please contact the National Epilepsy Support Service on 1300 761 487 or [email protected] Face-to-face meetings are by appointment only. #EpilepsyFoundation #Epilepsy #DrugResistantEpilepsy #EpilepsySupport #EpilepsyAwareness #EpilepsyResources
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🔔 Reminder Get your tickets today for Thinking Outside the Box Epilepsy Symposium: https://lnkd.in/gi9M5_kv
The Keynote for the 14th Thinking Outside the Box Epilepsy Symposium will be delivered by Dr Rowena Mobbs, sports and cognitive neurologist, alongside Wally Lewis. Dr Mobbs is one of Australia's leading clinicians in the management of concussion and related disorders. Her primary research focuses on the development of novel approaches to chronic traumatic encephalopathy (CTE).She recently diagnosed Wally Lewis with probable CTE and together they have been advocating for more research into the condition. Dr Mobbs' Keynote Address will dive into the Intersectoral Global Action Plan, setting the stage for the theme of this year's program. Linking the vision of the IGAP to its ten global targets, Dr Mobbs' presentation will be an insightful illustration of what the path to better brain health for all will look like. Don't miss your chance to hear this special Keynote live, in-person or virtually. Get your tickets today: https://lnkd.in/gi9M5_kv #ThinkingOutsideTheBox #IGAP #EpilepsySymposium #CTE #BrainHealth
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Congratulations Remy Pugh on the publication of your latest research paper 👏 If you're interested in learning more about Remy's research exploring long-term memory function in people newly diagnosed with epilepsy, check out the link below.
My latest research paper, exploring long-term memory function in people with newly diagnosed epilepsy, is now published and available open access! Link below if you're interested. https://lnkd.in/g7qeY2yX
Memory compromise at extended delays in people with new‐onset epilepsy
onlinelibrary.wiley.com
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Great insights into how the Australian Epilepsy Project (AEP) at The Florey is using advanced technology and A.I. to accelerate epilepsy research. By leveraging Amazon Web Services (AWS) cloud technology, the AEP strives to reduce the time it takes for people living with epilepsy to gain seizure control, shortening the journey from 18 years to just 2. Thank you Graeme D Jackson, Donna Hutchison and Anton de Weger for showcasing the incredible progress and ambitions of the AEP. #superchargingmedtech #changinglives #epilepsyresearch #neuropsychology #AI #Machinelearning #cloudtechnology
Aussies building world’s largest epilepsy database
theaustralian.com.au
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Australian Epilepsy Project reposted this
Lauren first experienced what she thought (through her own research) might be epilepsy at 19 years of age. Despite this, she was not officially diagnosed until six years later. Feeling like she was not taken seriously by both doctors and friends alike, has been the most difficult part of her journey. She recently participated in the Australian Epilepsy Project, gaining access to advanced testing to aid more precise diagnostic and treatment pathways. What would she say to encourage others to participate in the Australian Epilepsy Project (AEP)? “I'd say you’ll only benefit from signing up. Not only is it cool to know you are potentially helping other people living with epilepsy, but it's also important to know more about your own diagnosis, so you can better handle it and be as safe and healthy as possible.” Read her story: https://ow.ly/6FtG50Sv8fa Find out if you’re eligible to join the Australian Epilepsy Project via our website: https://ow.ly/j4MR50Sv8fc #EpilepsyWarrior #EpilepsyResearch #Neuropsychology The Florey
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🎤 Looking forward to seeing Donna Hutchison present a Keynote at today's Amazon Web Services (AWS) Public Sector Symposium in Canberra. Anton de Weger and Juan Mejia will also be presenting at the Modern Data Strategies Track breakout session 👏 #changinglives #medtech #machinelearning #genai #epilepsyresearch The Florey
I can’t wait to share the story of the Australian Epilepsy Project on the big stage at today’s AWS Public Sector Symposium in Canberra. #changinglives | supercharging #medtech. Anton de Weger and Juan Mejia will also be presenting a break out session as part of the Modern Data Strategies Track to showcase our innovative approach to #machinelearning and #genai.
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What should people with epilepsy avoid? Find out from Dr David Vaughan, Imaging Lead at the Australian Epilepsy Project (AEP). Ask an Epilepsy Expert is a video series taking on some of the common questions asked about epilepsy. Follow the series on the AEP social channels. #Epilepsy #EpilepsyResearch #BreakTheStigma The Florey