HIV and AIDS Policy
HIV and AIDS Policy
HIV and AIDS Policy
Partnerships between
Churches
and
The Lord God is the creator of heaven and earth; the creator of all life
forms in the earth community. He created all life and everything good. In
this HIV/AIDS era, he sees the misery of his people, who are infected and
affected by this disease; He has heard their cry on the account of this
epidemic. He knows their sufferings and he has come down to deliver
them from HIV/AIDS. So he calls to send us to the infected and affected,
to bring his people, his creation, out of the HIV/AIDS epidemic.
Guidelines
Acknowledgements
Many thanks are due to those who suggested ideas, contributed materials and
reviewed text:
Allan Handysides, Director Health Ministries, General Conference of Seventh Day Adventist Church;
Anna Eisenhoffer, Administrative Assistant, Health and Healing, Mission and Ecumenical Formation
Team, World Council of Churches; Anne-Marie Helland, Special Advisor, Department for Advocacy
and International Development Policy Norwegian Church Aid; Bernard Gardiner, Unit Manager,
HIV/AIDS Global Programme, International Federation of Red Cross and Red Crescent Societies;
Canon Gideon Byamugisha, The African Network of Religious Leaders living with or personally
affected by HIV and AIDS (ANERELA+) and World Vision International; Christoph Benn, Director,
External Relations, The Global Fund to Fight AIDS, Tuberculosis and Malaria; Dr Alice Welbourn,
Chair of the Board of Trustees, The International Community of Women Living with HIV and AIDS
(ICW); Dr. Donald E. Messer, Center for the Church and Global AIDS, is Henry White Warren
Professor of Practical Theology and President Emeritus, Iliff School of Theology, Denver, Colorado,
United States; Dr. Mike Negerie, Regional Director for Health Programs in Africa, Adventist
Development and Relief Agency, Africa Regional Office, South Africa; Dr.Simon Mphuka, Director of
Programmes, Christian Health Association of Zambia (CHAZ); Dr Rachel Baggaley, Head HIV Unit,
Christian Aid; Ian Campbell, The Salvation Army; Kate Thomson, Consultant; Linda Hartke,
Coordinator, Ecumenical Advocacy Alliance; Lisandro Orlov, Coordinator, Latin America and the
Caribbean, the Lutheran World Federation Plan on Action on HIV-AIDS; Marie-Claude Julsaint,
Programme Director for the Americas and the Caribbean, World YWCA; Milton B. Amayun, MD,
MPH, Senior Technical Advisor, The Hope Initiative, World Vision International; Nataliya Leonchuk,
Deputy Head of Coordination Council, All-Ukrainian Network PLWHA; Nigel Pounde, HIV/AIDS
Project Co-ordinator, Church of Scotland; Professor Farid, Best Professor in Ethics, Religion and
Society, Xavier University, South Africa; Rachel Stredwick, HIV Programme Funding Officer,
Christian Aid; Rev. Edward Baralemwa, Director, PACANet; Rev. Michael Czerny, F.S.J.,
Coordinator, African Jesuit AIDS Network; Rev Dr Spiwo Xapile, JL Zwane Memorial Church,
Uniting Presbyterian Church in Southern Africa, South Africa; Richard W. Bauer, MM, LCSW, Chief
Executive Officer, Catholic AIDS Action; Rev Johannes Heath, The African Network of Religious
Leaders Living with or personally affected by HIV and AIDS (ANERELA+); Sally Smith, Partnerships
Officer, UNAIDS; Stu Flavell, International Coordinator, The Global Network of People Living with
HIV/AIDS (GNP+)
This document was made possible by the generous support of the United Church
of Canada, Christian AID, Norwegian Church AID, the United Thank Offering
of the Episcopal Church, the World Council of Churches and UNAIDS.
2
Index
Chapter 1 Introduction
Box 1: Breaking the Silence – Declarations by Churches on HIV/AIDS
Chapter 3 Partnerships
3.3. Why Partner with people living with HIV and AIDS organizations?
Box 9: No Preaching before a person living with HIV speaks
Box 10: Religious leaders and communities need to make a realistic
analysis of the context and situation
Box 11: 'Umrah' for Muslims living with HIV/AIDS
Box 12: ANERELA+ and GNP+
Box 13: World Young Women's Christian Association (YWCA) and the
International Community of Women Living with HIV and AIDS (ICW)
Partnering.
3.4 The imperative to work with people living with HIV and AIDS
organizations
3.5 The challenges of partnering with people living with HIV and AIDS
3
3.11 What does building partnerships mean in practice?
Box 14: Partnerships in practice in all the endeavours of churches
Box 15: Providing hope amidst despair – the example of BOCAIP
Box16: Norwegian Church Aid
Annex 4 Glossary
Annex 5 People living with HIV and AIDS networks contact details
Bibliography
4
Chapter 1
Introduction
HIV-related stigma is seen to be at the heart of many failed efforts over the years –
both church and secular – to respond to HIV, particularly to break the silence and
denial surrounding the existence of HIV in communities.1 Many interventions,
whether for HIV prevention, care, support or treatment, have also been less than
effective due to HIV-related stigma. These guidelines are intended to assist churches
in a transformation process that in some cases has already begun and in others is yet
to begin, and to steer that process. They are targeted at all levels of the church,
whether church leaders, parish priest or ministers, people working in faith based
organizations etc. – anyone within a church working on HIV should be able to benefit
from partnering with PLWHA.
1
HIV-related stigma can be defined in the following terms:
HIV/AIDS-related stigma can be described as a ‘process of devaluation’ of PLWHA or
people associated with HIV/AIDS. This stigma often stems from the underlying
stigmatisation of sex and intravenous drug use – two of the primary routes of HIV
infection. HIV/AIDS-related stigma builds upon, and reinforces, existing prejudices. It
also plays into, and strengthens, existing social inequalities - especially those of gender,
sexuality and race. Prejudiced and stigmatizing thoughts frequently lead people to do, or
not do, something that denies services or entitlements to another person. For example,
they may prevent health services being used by a PLWHA, or terminate their
employment on the grounds of their HIV status. This is discrimination.
Stigma and discrimination can lead to depression, lack of self-worth and despair for
PLWHA. But PLWHA are not the only ones at risk from this fear and prejudice.
Negative attitudes about HIV also create a climate in which people become more afraid
of the stigma and discrimination associated with HIV than of HIV itself. When fear and
discrimination prevail, people may choose to ignore the possibility that they may already
be, or could become, HIV-positive – even if they know they have taken risks – and not
seek testing and treatment, if available. And people may decide not to take actions to
protect themselves for fear that in doing so they are associating themselves with HIV and
having been ‘at risk’. All of this helps to create an environment in which HIV
transmission can more easily take place.
UNAIDS. Fact Sheet: Stigma and Discrimination. 2003. www.unaids.org. Also see UNAIDS. A
Conceptual Framework and Basis for Action: HIV/AIDS Stigma and Discrimination. Geneva,
Switzerland, 2002. at 12. http://www.unaids.org
5
Partnerships are an essential part of the process of change. These guidelines aim to
foster partnerships so that both the churches and partnering organizations can nurture
and sustain their collaboration. The focus is on the challenges and ways forward in
creating partnerships between churches and PLWHA organizations, while giving a
broader perspective on partnerships generally. These guidelines are to help churches
to reach out to others skilfully and in a planned way, highlighting the reasons for
forming partnerships, some of the challenges and suggest some ways forward,
including by providing examples of existing partnerships and initiatives. They should
be read in conjunction with World Council of Churches. Working with People Living
with HIV/AIDS Organizations, Guidelines (2005), which provides practical
information on forming and maintaining partnerships with PLWHA networks,
organizations and self-help groups.
Within the text boxes are used to highlight specific issues or to provide examples of
projects or programmes or partnerships that have been successful. The Annexes
contain sections on a list of declarations by churches on HIV, the Covenant Document
on HIV/AIDS, best practice use of HIV- and AIDS-related language, a glossary of
common HIV- and AIDS-related terms, and contact details for PLWHA networks and
organizations. Please note the full texts of the declarations by churches on HIV listed
in Annex 1 are available on the World Council of Churches – health work related
web-site at www.contactforhealth.org If you do not have access to internet; you can
obtain copies from:
Much of the material herein is adapted from the International HIV/AIDS Alliance
Toolkit, Pathways to Partnerships (1998) and it is intended that churches adapt the
materials to suit their local needs2.
Successful partnerships are built on entities understanding why they are entering into
a relationship, and a clear understanding of the rights and responsibilities of each
partner. The power of communication should never be underestimated in keeping
partnerships inclusive, honest and transparent – the hallmarks of a good relationship
and, it is to be hoped, successful programming. Building partnerships is about
working with others to achieve what we cannot achieve on our own. A partnership is a
special kind of relationship, in which people or organizations combine their resources
to carry out a specific set of activities. Partners work together for a common purpose,
coherence and for mutual benefit. The advantage of partnerships is that different
people and organizations have a wide range of resources to offer each other.
2
http://www.aidsalliance.org/eng/
6
In the past twenty-three years, any organization working on any aspect of HIV and
AIDS has encountered the frustration caused by HIV-related stigma, which can limit
the effectiveness of prevention, care, support and treatment interventions. Any
effective intervention, therefore, requires mainstreaming stigma eradication strategies
into all interventions – something that cannot be achieved without forming
partnerships with PLWHA organizations. As stressed above, “building partnerships is
about working with others to achieve what we cannot achieve on our own,” and the
pervasiveness of HIV-related stigma underlines the fact that all organizations
responding to the epidemic need to be in partnership with PLWHA organizations.
For the churches, partnership with PLWHA and their organizations is a gospel
imperative, the very centre of their mission and ministry. It is not an option, it is a
must3. As Matthew 25:31–46 indicates, Christ underlines that the measure of
Christian faith shall be judged according to the believers’ capacity to show
compassion for the poor, the hungry, strangers, the sick, the imprisoned and to
undertake efforts to meet their needs by changing their oppressive situations. In this
passage, Christ presents himself as identical to the suffering and oppressed –
regardless of their faith – thus underlining that one cannot be a Christian, a Christ
lover or follower, without caring for the suffering and doing something to change
their oppressive situation. As He says:
When the Son of Man comes in glory with all the angels, then he will sit on his
throne in heavenly glory. All the nations will be gathered before him, and he
will say to those on his right: Come, you who are blessed by my Father; take
your inheritance, the kingdom prepared for you since the creation of the
world.
For I was hungry and you gave me something to eat
I was thirsty and you gave me something to drink
I was a stranger and you invited me in,
I needed clothes and you clothed me
I was sick and you looked after me
I was in prison and you came to visit me
And the kind will answer them truly I tell you, just as you did it to one
Of the least of these, who are members of my family, you did it to me 4
3
Dube, Musa W. "Towards an HIV/AIDS Christology: Christ the Compassionate Healer and Liberator
in the New Testament," (2b edited--delete) in Dube, Musa W. The HIV&AIDS Bible: Selected Essays,
(Forthcoming in Scanton: Scranton University Press, 2005).
4
Emphasis added.
7
Churches in many countries with high HIV prevalence, particularly those in Africa,
are already suffering from the onslaught of the HIV pandemic. Members of churches
have similar rates of HIV infection as the community in which they live. Churches, as
living organizations, have much to learn and to give to their members who are living
with HIV and AIDS. Churches must go through a transformation process, become
AIDS competent and be a better home for those directly affected by the pandemic.
Churches, as living organizations, are inseparable from their members. The
worldwide church is one body of Christ. Therefore, for churches, whose theology
holds that, “For in one Spirit we were all baptized into one body…If one member
suffers, all suffer together with it; if one member is honoured, all rejoice together with
it,” (1 Corinthians 12:13 and 26), the church is inseparable from the PLWHA. This
holds true for churches many members who are living with HIV and AIDS and for
their sister churches, which may have few members living with HIV as they are all
part of the one body of Christ.
There is no “us” (the uninfected) and “them” (PLHWA) within the worshipping
community of the church. In being followers of Christ, who identify themselves with
the suffering (Matthew 25:31–46), and recognising that some members of the church
are HIV-positive, the whole body of Christ, the church, is HIV-positive.
5
UNAIDS, A Report of Theological Workshop Focusing on HIV and AIDS Related Stigma, Windhoek,
Namibia, 8-11 Dec 2003, is an excellent resource to employ for churches to eliminate a discriminative
theology. Developed by the UNAIDS in conjunction with church theologians worldwide to counteract
stigma. Forthcoming www.unaids.org keyword search “Religion” under select a topic.
6
For churches that are interested in adopting HIV & AIDS sensitive sermons and liturgy, see Dube,
Musa W. ed. Africa Praying: A Handbook on HIV/AIDS Sensitive Sermon Guidelines and Liturgy.
Geneva: WCC, 2003. http://www.wcc-coe.org/wcc/what/mission/ehaia-documents-e.html
7
Symposium of Episcopal Conferences of Africa and Madagascar, The Church in Africa in face of
HIV/AIDS Pandemic, Message issued by Symposium of Episcopal Conferences of Africa and
Madagascar (SECAM), Dakar, Senegal, 7 October 2003. Emphasis added.
8
Chapter 2
This chapter outlines the response to date of churches and faith-based organizations in
breaking the silence surrounding HIV and AIDS and challenging HIV-related stigma
within churches and faith-based organizations as well as in the wider community. It
begins with the early days of the epidemic, which were characterized by silence,
except in the few examples provided, and goes on to document the tremendous
commitments and moves in the last years by churches to break the silence
surrounding HIV and AIDS.
The response of churches and from members within churches to HIV has been
variable. The following paragraph summarizes both the ignorance and fear of some,
and the humanity of others in responding to HIV in their midst:
Despite the fact that the rejection and scapegoating of people affected by
HIV and AIDS finds no basis in theological scholarship, such incidents
continue to occur. While visiting many different countries to facilitate HIV
and AIDS workshops for pastoral personnel, I have heard the “horror
stories” of pastors refusing to anoint HIV-infected people or forcing them
to publicly confess the “sins” that caused them to be infected. I believe
that members of the hierarchy, clergy, and laity alike have responsibilities
to stop such poor pastoral practices as soon as they occur. I received
much personal inspiration from an archbishop in a Caribbean country
who, upon hearing that his priests were unwilling to visit a woman of
supposed “ill repute” and suffering with AIDS-related illnesses went
himself to visit her in the hospital and continued to do so on a daily basis,
until the woman died. Then he celebrated her funeral Mass in his
cathedral.8
The World Council of Churches (WCC) has been deeply committed and involved in
responding to HIV and AIDS since 1986. It has assisted member churches in:
8
Vitillo, Rev. Robert J., Pastoral and Theological Challenges of HIV and AIDS. National Seminar for
Priests in Ghana, The Centre for Human Development, Accra, Ghana, 16–17 June 2004.
9
During 1986 the WCC gave serious attention to the escalation of the AIDS epidemic
and its implications for the churches. In June 1986 three WCC sub-units (Church and
Society, Family Education and the Christian Medical Commission) called a joint
consultation at which the General Secretary, Dr Emilio Castro, in an opening address,
challenged the view that disease is a punishment from God:
Aids is a disease and should be treated as such... God, who loves all
human beings, cares for the well-being and health of every one of his
children, and does not inflict disease as a punishment 9.
The final statement of the June consultation, called for the Church to be the Healing
Community, expressing its solidarity with those affected by AIDS through pastoral
care, education for prevention and social ministry:
"In the mysteries of life and death we encounter God; this encounter calls
forth trust, hope and awe rather than paralysis and immobilisation. Those
we cannot cure we can support and sustain in solidarity: ' I was hungry ...
thirsty... a strange ... naked... sick... imprisoned, and you fed... clothed...
took care... visited' “(Matthew 25).
In January 1987 the sub-unit on Church and Society organized a Hearing on the
subject for the WCC Central Committee, which recommended:
The Central Committee of the WCC urges all churches to make known the
seriousness of the problem of Aids and to take every opportunity to
cooperate with one another and with medical, social and educational
agencies and the mass media in appropriate educational programmes11.
Churches were largely silent in the first years of the AIDS epidemic, but there were
some notable exceptions. The World YWCA, World Council passed Resolutions on
AIDS (1987)12 and Women and HIV/AIDS (1991)13. At its General Assembly in
9
World Council of Churches. AIDS and the Church Hearing on AIDS. Central Committee, Geneva,
Switzerland, January 1987. (March 1987 No. 1).
10
World Council of Churches. AIDS and the Church Hearing on AIDS. Central Committee, Geneva,
Switzerland, January 1987. (March 1987 No. 1).
11
World Council of Churches. AIDS and the Church Hearing on AIDS. Central Committee, Geneva,
Switzerland, January 1987. (March 1987 No. 1).
12
World YWCA. World Council Resolutions on AIDS. Phoenix, Arizona, United States, 1987.
10
1987, Caritas Internationalis, the Vatican-based, global confederation of Catholic
social service and development organizations operating (at that time) in more than
260 countries of the world, designated HIV and AIDS as one of its priority areas of
reflection and action14. This commitment has continued to the present. Since that
time, Caritas Internationalis has attempted to mobilize a non-judgmental and
compassionate education-focused and service-oriented response to the challenges
posed by this pandemic.
Pope John Paul II has made frequent and emotional appeals to avoid discriminatory
treatment of people living with HIV and AIDS. In his visit to PLWHA in a
Californian hospital in the United States in September 1987, he held out the
unconditional love of God himself as the guideline to be followed:
God loves you all, without distinction, without limit … He loves those of
you who are sick, those suffering from AIDS. He loves the friends and
relatives of the sick and those who care for them. He loves all with an
unconditional and everlasting love15.
The bishops of the United States were among the first to appeal to all the faithful to
respond to those affected by the pandemic with compassion and without fear or
prejudice16. In The Many Faces of AIDS: A Gospel Response, 1987, the
Administrative Board of the U.S. Catholic Bishops Conference mentioned the new
services which should be considered by parishes and institutions sponsored by the
Catholic Church and offered a litmus test for responding to the HIV pandemic:
13
World YWCA. World Council Resolutions on Women and HIV/AIDS. Stavanger, Norway, 1991
14
Caritas Internationalis, General Assembly, 1987. http://www.caritas.org/
15
Pope John Paul II, Address given at Mission Dolores, 1987.
Also see: Pope John Paul II in Tanzania, September 1990
Pope John Paul II, Burundi, September 1990
In The Church responds to HIV/AIDS, A Caritas Internationalis dossier, 1996. Edited by Duncan
MacLaren, Head of International Relations, Caritas Internationalis.
http://www.cafod.org.uk/resources/worship/church_statements/hivaids_statements/ci_aids_dossier
16
See: New Zealand Catholic Bishops, Care, Not Judgment for AIDS, May 1987.
Cardinal Paulo Evaristo Arns, Archdiocese of Sao Paulo, Brazil, 1988.
Bishops of Uganda, AIDS: A Challenge to Church and Society, 1989.
Pastoral Statement on AIDS, Bishops of Uganda, 1989.
Canadian Conference of Catholic Bishops, Beyond Fear: Compassion, Clear-Sightedness, Solidarity,
1989.
Bishops of Southern Africa, AIDS: A Christian Response, June 1990.
Bishops of New Mexico, United States, June 1990
Ghana Bishops' Conference, October 1990.
Components of Parish AIDS Outreach, Seattle Archdiocese AIDS Ministry, June 1993
Bishops' Conference of the Philippines, 1993.
In The Church responds to HIV/AIDS, A Caritas Internationalis dossier, 1996. Edited by Duncan
MacLaren, Head of International Relations, Caritas Internationalis.
http://www.cafod.org.uk/resources/worship/church_statements/hivaids_statements/ci_aids_dossier
Also see: Australian Bishops Conference, Concerning A.I.D.S., 1987.
Australian Bishops Conference, The A.I.D.S. Crisis, 1987.
Australian Bishops Conference, A.I.D.S.: (Pastoral Statement on) A Challenge to Love, 1988.
11
bereavement. In addition, new programs, services, and support systems
need to be developed to deal with unmet and poorly met needs.
Our response to the needs of persons with AIDS will be judged to be truly
effective when we discover God in them and when they, through their
encounter with us, are able to say, in my pain, fear, and alienation, I have
felt your presence, a God of strength, love, and solidarity17.
In a subsequent pastoral letter issued by all the bishops of the United States, Catholics
were reminded of the Gospel-based responsibility to affirm the dignity of those living
with HIV and AIDS and to care for them without hesitation:
Persons with AIDS are not distant, unfamiliar people, the objects of our
mingled pity and aversion. We must keep them present to our
consciousness, as individuals and as community, and embrace them with
unconditional love. The Gospel demands reverence for life in all
circumstances. Compassion - love - toward persons infected with HIV is
the only authentic Gospel response18.
Pope John Paul II said at the Vatican AIDS Conference, November 1989, said:
Those who suffer from AIDS, even in their unique pathology, are entitled
to receive adequate health care, respectful comprehension and complete
solidarity, just like every other ailing person.
The Church, imitating her divine Founder and Teacher, has always
deemed as fundamental to her mission assistance to those who are
suffering. She now feels that she is called upon as protagonist in this new
area of human suffering, aware as she is that suffering man is a "special
way" of teaching and her ministry….
Brothers in Christ, who know the bitter harshness of the way of the cross
do not feel that you are alone. The church is with you as sacrament of
salvation to sustain you in your difficult path. She receives much when
you live your suffering with faith; she is beside you with the comfort of
active solidarity in her members so that you never lose hope. Remember
17
United States Catholic Conference Administrative Board, The Many Faces of AIDS: A Gospel
Response, in Origins, XVII, 28 (December 24, 1987), p. 136.
18
National Conference of Catholic Bishops. Called to Compassion and Responsibility: A Response to
the HIV/AIDS Crisis, as appeared in Origins, November 30, 1989, vol. 19, no. 26.
12
how Jesus invites you "Come to me all of you who are weary and tired,
and I will give you complete rest" (Matthew. 11:28)19.
Perhaps the AIDS crisis is God's way of challenging us to care for one
another, to support the dying and to appreciate the gift of life. AIDS need
not be merely a crisis: it could also be a God-given opportunity for moral
and spiritual growth, a time to review our assumptions about sin and
morality. The modern epidemic of AIDS calls for a pastoral response20.
And the Catholic Bishops in Ghana were also among the first voices to be raised in
appeal for an unconditional and accepting response among Christians to the
brokenness in human relationships that both precedes and results from HIV infection:
AIDS often involves alienation and separation between the person with
the disease and every surrounding system. We are challenged to be
reconcilers, helping to restore a sense of wholeness to broken
relationships between the patient and those near to him or her. We must
build a sense of trust and caring. This requires education, and a change of
heart…
The church should open its doors to all, unconditionally, just as Christ
opened the door to all, irrespective of who they were or what they had
done. Salvation is given to all by grace, through faith, not because of
deeds or behaviour. By accepting everybody Christ gave access to his
forgiveness and to a new life. Today in his church, we receive this new
life through the Word and the sacraments. By excluding somebody from
these sources of life, the church becomes guilty of the gravest form of
discrimination that exists.
19
Vatican AIDS Conference - Fourth International Conference organised by the Pontifical Council for
Pastoral Assistance to Health Care Workers, Vatican City, November 1989.
20
Bishops of Southern Africa, AIDS: A Christian Response, June 1990.
21
Ghana Bishops’ Conference. Pastoral Statement on AIDS, October 1990.
22 The Lutheran World Federation, Report from a Consultation: Pastoral Work in Relation to AIDS.
Kaiserswerth, Federal Republic of Germany, 21-25 March 1988
13
The Lutheran World Federation members of Argentina, Uruguay, Paraguay, Chile,
Brazil, Peru and El Salvador in the Declaration of Buenos Aires, in 1998, stated:
We are called to commit ourselves to such pastoral action. This call arises
out of the recognition that a medical diagnosis has often been confused
with a moral judgment affecting the dignity of many brothers and sisters.
We are moved by the suffering of those persons exiled from family and
social solidarity networks, and we are called to be facilitators of the
reconstruction of these networks.
We know that the cost of this identification with those stigmatized by our
society and by our churches is always very high, but that in faithfulness to
the Gospel we cannot avoid it. This price should be paid by all the
faithful, and not only by those who are directly involved. We desire that
this pastoral ministry be previsionary, while we wait for the entire
Christian community to assume it in the near future23.
The fear of AIDS should not compromise our compassion or our witness.
Those who test positive for HIV and who may be sick with the disease
should find acceptance and fellowship in the local congregation. They
should be comfortable in our church services and be welcomed to
23
The Lutheran World Federation: Argentina, Uruguay, Paraguay, Chile, Brazil, Peru and El Salvador.
“AIDS Calls Us To Be Community”. Declaration of Buenos Aires, Buenos Aires, Argentina, 15 April
1998.
14
participate in all activities of the church: baptism, foot washing and the
communion supper. The local church can find many ways to minister to
those with AIDS. Church members can join or form a support group and
become individually involved in a supportive role to meet the needs of
persons and families impacted by AIDS24.
In September 1996, the WCC Central Committee on the basis of the WCC
Consultative Group on AIDS Study Process adopted a statement on HIV and AIDS
outlining the epidemic, the theological basis for a response and possible responses by
churches, including:
24
AIDS Committee of the General Conference of Seventh Day Adventists. AIDS A Seventh-day
Adventist Response, Health and Temperance Department at the General Conference Session.
Indianapolis, Indiana, United States, 1990.
http://www.adventist.org/beliefs/other_documents/other_doc1.html
15
C. The witness of the churches: in relation to long-term causes and factors
encouraging the spread of HIV
1. We ask the churches to recognize the linkage between AIDS and poverty,
and to advocate measures to promote just and sustainable development.
2. We urge that special attention be focussed on situations that increase the
vulnerability to AIDS such as migrant labour, mass refugee movements
and commercial sex activity.
3. In particular, we ask the churches to work with women as they seek to
attain the full measure of their dignity and express the full range of their
gifts.
4. We ask the churches to educate and involve youth and men in order to
prevent the spread of HIV/AIDS.
5. We ask the churches to seek to understand more fully the gift of human
sexuality in the contexts of personal responsibility, relationships, family
and Christian faith.
6. We ask the churches to address the pandemic of drug use and the role this
plays in the spread of HIV/AIDS and to develop locally relevant responses
in terms of care, de-addiction, rehabilitation and prevention.25
In this period, most churches (especially in Africa) were still either silent, or on
denial, or on condemnation, with only a few examples of positive response to HIV
and AIDS. Since then there has been a massive change both at the individual and
denominational level and at the ecumenical level. From 2000 to the present, the work
of the Anglican Communion, Lutheran Communion, Roman Catholic Church (to
name a few), the work of United Evangelical Mission (UEM), United Church of
Christ (UCC), the Ecumenical HIV/AIDS Initiative in Africa (EHAIA), All Africa
Conference of Churches (AACC), World Young Women's Christian Association
(YWCA), World Alliance of Reformed Churches (WARC) and several National
Christian Councils have made a great exodus from Egypt, crossing the Red Sea into
the wilderness, where many have made a covenant with God to respond to the AIDS
crisis. Of course, some members of churches are crying “we were better in Egypt” and
some still are building up idol calves. However, sadly, some churches are still in
Egypt denying the reality of HIV, and the need for their church to change and
respond.
While churches have not entered the Promised Land in so far as the struggle against
HIV and AIDS is concerned; “the church has crossed the Red Sea” and is in the
wilderness, struggling and working out their relationship with God. This analogy is
very much dependent on which church and continent is being discussed. While many
flaws remain, while the full potential and commitment of churches is yet to be
unleashed, a great move has occurred. The greater church, especially in the
developing world, has heard God’s voice saying, “I have seen the suffering of my
25
World Council of Churches. The Impact of HIV/AIDS and the Churches' Response. A statement
adopted by the WCC Central Committee on the basis of the WCC Consultative Group on AIDS Study
Process. Geneva, Switzerland 12-20 September 1996. Document No. 6.2B.
16
people, I have heard... I know… come let me send you to deliver my salvation to
them.”
Vision
With this Plan of Action, the ecumenical family envisions a transformed and
life-giving church, embodying and thus proclaiming the abundant life to
which we are called, and capable of meeting the many challenges presented
by the epidemic. For the churches, the most powerful contribution we can
make to combating HIV transmission is the eradication of stigma and
discrimination: a key that will, we believe, open the door for all those who
dream of a viable and achievable way of living with HIV/AIDS and
preventing the spread of the virus.
Commitments
26
The Ecumenical Response to HIV/AIDS in Africa (EHAIA), Plan of Action, Global Consultation on
Ecumenical Responses to the Challenges of HIV/AIDS in Africa, Nairobi, Kenya, 25-28 November
2001. http://www.wcc-coe.org/wcc/what/mission/ehaia-e.html
EHAIA describes the AIDS competent church through five main objectives:
• The teaching and practice of churches indicate clearly that “stigma and discrimination against
PLWHA is sin and against the will of God”.
• Churches and ecumenical partners have a full understanding of the severity of the HIV/AIDS
pandemic in Africa.
• Churches in Africa reach out and respond to collaborative efforts in the field of HIV/AIDS.
• Churches find their role in prevention of HIV/AIDS taking into consideration pastoral,
cultural and gender issues.
• Churches use their resources and structures to provide care, counseling and support for those
affected.
• EHAIA is present in Africa through four regional co-ordinators and a theology consultant.
Their addresses can be found on the last page.
27
The Ecumenical Response to HIV/AIDS in Africa, Plan of Action, Global Consultation on
Ecumenical Responses to the Challenges of HIV/AIDS in Africa, Nairobi, Kenya, 25-28 November
2001. http://www.wcc-coe.org/wcc/what/mission/ehaia-e.html
17
Since 2001, a number of churches and faith based organizations have stated their
commitment to break the silence around HIV and AIDS and challenge the stigma and
discrimination faced by PLWHA. Box 1 “Breaking the Silence – Declarations by
Churches on HIV/AIDS” provides examples from different religions and from around
the world.
The Bishops’ Conference, Church of Norway, in April 2001, stated that “in our own
country, too, there is a lack of openness about the disease and HIV victims are also
suffering from condemnation and exclusion. As fellow human beings in the church and
in the community, each one of us is being challenged to examine our own attitudes. For
the church, it is important to keep to the principle that Christian charity commits us to
support, not condemn, those who are suffering. We must help people who are infected
with HIV to live openly in the community” 28.
The bishops of the Southern Africa Catholic Bishops’ Conference, in July 2001, left no
room for any possibility of stigmatization or marginalization based on the false premise
that God has “willed” AIDS for sinful individuals. “AIDS must never be considered as a
punishment from God. He wants us to be healthy and not to die from AIDS. It is for us
a sign of the times challenging all people to inner transformation and to the following of
Christ in his ministry of healing, mercy and love29.
The Christian Conference of Asia, in November 2001, stated that “the church at all
levels, international, regional, national and local, has an important role to play in:
• challenging the negative, judgmental attitudes that still exist towards people with
HIV/AIDS
• decreasing fear and misconceptions about of HIV/AIDS
• providing accurate information about HIV/AIDS, including prevention information,
and information about HIV services that may assist PLWHA”30.
In April 2002, the Primates of the Anglican Communion stated: “We raise our voices to
call for an end to silence about this disease - the silence of stigma, the silence of denial,
the silence of fear. We confess that the Church herself has been complicit in this silence.
When we have raised our voices in the past, it has been too often a voice of
condemnation. We now wish to make it clear that HIV/AIDS is not a punishment from
God. Our Christian faith compels us to accept that all persons, including those who are
living with HIV/AIDS, are made in the image of God and are children of God”31.
The Pan-African Lutheran Church Leadership, in May 2002, stated:
28
Church of Norway, Statement from the Bishops’ Conference. April 2001
29
Southern African Bishops Conference. A Message of Hope to the People of God from the Catholic
Bishops of South Africa, Botswana, and Swaziland. Pretoria, South Africa, 30 July 2001.
30
Christian Conference of Asia, Consultation on HIV/AIDS: A challenge for religious response:
Statement. Chiang Mai, Thailand, 25-30 November 2001.
31
Anglican Primates, Report of the Meeting of Primates of the Anglican Communion: Appendix III
Statement of Anglican Primates on HIV/AIDS, Canterbury, United Kingdom, 17 April 2002.
18
We commit ourselves to breaking the silence.
We recognize the many willing people who are currently engaged in and
outside our churches in giving care and support. We will, however, publicly
confess and acknowledge that we have too often contributed to
stigmatization and discrimination and that our churches have not always
been safe or welcome places for people living with or affected by
32
Pan-African Lutheran Church Leadership, Breaking the Silence, Commitments of the Pan-African
Lutheran Church Leadership Consultation in response to the HIV/AIDS pandemic. Nairobi, Kenya, 2–
6 May 2002.
33
World Council of Churches (WCC) and Christian Conference of Asia (CCA). Report of the WCC-
CCA Consultation on ‘An Ecumenical Agenda to combat HIV/AIDS in South Asia’. Colombo, Sri
Lanka, 24 - 26 July 2002.
34
Council of Anglican Provinces in Africa (CAPA). Statement from CAPA AIDS Board Meeting.
Nairobi, Kenya, 19-22 August 2002.
35
Council for World Mission. Assembly Statement. Ayr, Scotland, 15 - 25 June 2003.
36
Symposium of Episcopal Conferences of Africa and Madagascar, The Church in Africa in face of
HIV/AIDS Pandemic: Message issued by Symposium of Episcopal Conferences of Africa and
Madagascar (SECAM), Dakar, Senegal, 7 October 2003.
37
Church of Nigeria (Anglican Communion). Communiqué, National HIV/AIDS Strategic planning
and policy development workshop. Abuja, Nigeria, 10 - 14 November 2003.
38
Catholic Bishops of Myanmar. Pastoral Letter on HIV/AIDS and the Response of the Church.
December 2003.
39
Indian Catholic Bishops. Pastoral Letter from Indian Bishops for World AIDS Day 2003: The
challenge to be his Light today. 1 December 2003.
40
Lutheran World Federation and the United Evangelical Mission. "Covenant of life" Statement of
Commitment of the Asian Church Leadership Consultation on HIV/AIDS. Batam Island, Indonesia, 1-4
December 2003.
41
Memorandum of Intention, Strategy consultation on Churches and HIV/AIDS in central and eastern
Europe. St. Petersburg, Russia, 15–18 December 2003.
42
Romanian Orthodox Church. His Beatitude Teoctist, Patriarch of the Romanian Orthodox Church. A
message, urging to love and tolerance for those suffering from AIDS/HIV. Romania, 27 January 2004.
43
Regional Meeting facilitated by the Latin American Council of Churches (CLAI) and supported by
the World Council of Churches (WCC), The Church and HIV/AIDS in Latin America and the
Caribbean, Panama City, Panama, 27 January – 1 February 2004.
44
World YMCA. YMCA Global Capacity Building Forum on HIV/AIDS: YMCA Movement Statement
on HIV/AIDS. Durban, South Africa. March 2004.
45
World Council of Churches’ Pacific Member Churches, The Nadi Declaration: A statement of the
world council of churches’ Pacific Member Churches on HIV/AIDS. Nadi, Fuji, 29 March – 1 April
2004.
46
Pontifical Council for Health Pastoral Care, Message for the World Aids Day, 1 December 2004.
47
The Cairo Declaration of Religious Leaders in the Arab States in Response to the HIV/AIDS
Epidemic. Cairo, Egypt, 11–13 December 2004.
19
We recognize that it is especially important for the bishops, presidents and
other church leaders to publicly speak and provide leadership in breaking the
silence32.
The Council of Anglican Provinces in Africa (CAPA) stated, in August 2002, that:
Stigma is a sin! Stigma is the silent killer decimating our continent and is
spreading disease. We call for an end to stigma and discrimination against
those who are HIV+ and their families. Our sisters and brothers living with
AIDS experience silence and rejection. Silence feeds denial and shame.
This, too, is stigma. We know the Church has been complicit in silence.
That silence is ended! Our Church has declared stigma as a sin before God
and Human kind. We will uphold the dignity and worth of all people as
Children of God, especially those living with AIDS. Therefore each
Province is being asked to implement a Pastoral Plan for eradicating stigma
as soon a possible34.
The Council for World Mission, in June 2003, stated: “We recognize the need to become
more caring, welcoming and healing communities that no longer stigmatize, exclude and
discriminate against our brothers and sisters living with HIV/AIDS. We acknowledge
the value of personal encounters with people infected and living with HIV/AIDS to
enrich our understanding, and strengthen our ability to be professionally competent,
spiritually sound and socially relevant in dealing with the human dimensions of the
pandemic”35.
20
In November 2003, the Church of Nigeria (Anglican Communion) stated “it shall be
HIV/AIDS friendly and shall ensure greater involvement of people living with
HIV/AIDS in all aspects of church ministry”37.
• Every Sunday, priests and bishops have an opportunity to speak out. They can
use their sermons to condemn any form of discrimination against people affected
by HIV, to educate their communities about HIV and AIDS, and to address some
of the root causes of infection in Myanmar.
• Bishops and priests can make sure that they and their parishioners are not
judgemental in their words or actions, and that people living with HIV and their
families are always welcome in the liturgies and wider activities of their Church
communities.
• Bishops and priests can enable and encourage the HIV-related work of sisters
and lay catechists. There are many examples where clergy say, “our people don’t
need to know about HIV/AIDS”, or “our people would be scandalised if we
talked about sex”. In other instances, priests or bishops have stopped lay people
from raising awareness about HIV, telling them they are not qualified to discuss
these moral questions and even preventing them from giving scientifically
proven sexual health information about HIV prevention. Such negative attitudes
need to change if the Church is to offer any meaningful response to
HIV/AIDS”38.
The Indian Catholic Bishops released a Pastoral Letter on World AIDS Day 2003,
stating:
7. Proper awareness on HIV/AIDS should help us to overcome our
prejudices and fears. Those who contract HIV/AIDS, whether by accident or
by consequences of their own actions, carry with them a heavy burden of
social stigma, ostracism and condemnation. The infected and affected
persons deserve all the compassion and care offered by Jesus. Those who
feel morally superior to those living with HIV/AIDS may remember that
self-righteousness is condemned more than any other sin by Jesus in the
pages of the Gospel…
8. Let us help those people living with HIV to come out of the shadow of
despair, gloom and guilt and enter into a joyful hope and acceptance. Those
among us who are living with HIV/AIDS must not feel that they are alone
and abandoned. We, who are their sisters and brothers, must walk in
solidarity with them on their journey. In the words of Pope John Paul II,
“Solidarity is not a feeling of vague compassion or shallow distress at the
misfortunes of so many people. On the contrary, it is a firm and persevering
determination to commit oneself to the common good; that is to say, to the
good of all and of each individual because we are really responsible for all.”
As the body of Christ, the Church needs to take care of those infected and
help them to ‘live positively’ with HIV/AIDS39.
The Lutheran World Federation and the United Evangelical Mission in the “Covenant of
21
life”, in December 2003, stated: “We commit ourselves as part of the body of Christ to
make HIV/AIDS a priority in our mission and diakonia through formulation and
implementation of a policy that empowers local congregations and communities to:
• Combat and defuse stigma and discrimination against people living with
HIV/AIDS by first and foremost breaking the socio-cultural barrier of shame or
“losing face” by openly talking about HIV/AIDS, human sexuality and drug
addiction”40.
The strategy consultation on Churches and HIV/AIDS in central and eastern Europe, in
December 2003, organized by Christian Aid, Christian Interchurch Diaconal Council of
St. Petersburg, Norwegian Church Aid and the World Council of Churches stated that
“persons living with HIV/AIDS are often severely stigmatized and subject to various
forms of discrimination. As Christians, we believe all human beings are created in the
image of God and therefore have intrinsic value and dignity. Any form of stigmatization
or discrimination perpetrated against human beings violates this divine image and is
therefore a sin. We believe as Christians that all people are called to resist this offence
against God-given human dignity anywhere it occurs” 41.
The Romanian Orthodox Church has joined the national campaign of fighting HIV-
related intolerance, which is being run by USAID, in cooperation with the Romanian
Government and some Romanian and international NGOs active in Romania. On 27
January 2004, His Beatitude Teoctist, Patriarch of the Romanian Orthodox Church,
addressed a message to all Romanians, urging to love and tolerance for those suffering
from AIDS/HIV, specifically stating:
It is a duty of every Christian to look for the good of the neighbour, thus
following the great and holy law given to us by Christ: “Love your
neighbour as you love yourself!” (Luke 10: 27)…
We have, therefore, the duty to accept them among us and to help all those
suffering. In this sense, our Church offers everyone an example of self-
sacrificing service for the good of one’s neighbour, through the pastoral and
spiritual activity of the devout priests unfolded in social establishments and
hospitals, especially in the wards for AIDS treatment. Following the
example of the Saviour Jesus Christ, day by day, they watch over the sick,
giving them comfort and encouraging them to face the disease. This is, many
times, the only help, but the greatest proof of the love we can offer them.
Even so, from different unsustainable reasons, some of us avoid them. That
is why we believe that the example of these servants of the holy altars is an
urge to be followed by all those among whom people suffering from AIDS
live.
Christ identifies Himself with these brothers and sisters of ours, when He
says: “I was sick, and you visited me” (Matthew 25:36), or “I tell you,
whenever you did this for one of the least of these my brethren, you did it for
me” (Matthew 25:40). We are all Christ’s friends. He loves us all, in the
same degree. If we banish them, we banish Him! If we do not care about
them, we do not care about Christ! If we do not love them, it is Christ we do
not love! We should never forget that they are our neighbours and they need
love and understanding42.
22
The Regional Meeting facilitated by the Latin American Council of Churches (CLAI)
and supported by the WCC, in January–February 2004, stated:
In March 2004, the World YWCA stated, “Therefore, the YMCA around the world
herby commits itself to work to eliminate stigma and discrimination in its communities,
promoting the use of friendly language in every day communication and interaction”44.
The Pontifical Council for Health Pastoral Care, on World AIDS Day 2004, stated “we
must banish the stigma that so often makes society harsh in relation to the AIDS victim.
In order to dissipate the prejudices of those who fear the proximity of AIDS victims
because they want to avoid contagion, we should remember that AIDS is only
transmitted through the three routes of blood, the link between a mother and her unborn
child, and sexual contact. All these routes of transmission must be combated effectively
and thereby eliminated” 46.
Religious Leaders in the Arab States, in December 2004, vowed to “break the silence
around HIV/AIDS: We emphasize the need to break the silence, doing so from the
pulpits of our mosques, churches, educational institutions, and all the venues in which
we may be called to speak. We need to address the ways to deal with the HIV/AIDS
epidemic based upon our genuine spiritual principles and our creativity, and armed with
scientific knowledge, aiming at the innovation of new approaches to deal with this
dangerous challenge. We reject and emphasize the necessity to abolish all forms of
discrimination, isolation, marginalization, and stigmatization of people living with
HIV/AIDS we insist on defending their basic freedoms and human rights” 47.
23
Breaking the silence around HIV and AIDS also involves respecting the rights of
marginalized groups. For example, members of the World Alliance of Reformed
Churches (WARC) have different views on homosexuality but Christians can agree
that it is wrong to violate human rights because of sexual orientation, WARC General
Secretary, Setri Nyomi, told delegates at the WARC’s General Council Meeting in
Accra, Ghana. WARC’s Executive Committee has engaged in a study of where
member churches stood. "While it is clear they have a variety of views on gays and
lesbians, the executive committee came to the conclusion that we can together as
Christians at least agree on the fact that it is wrong to violate the human rights of
anybody for any reason - including sexual orientation," Nyomi said48.
In addition to such statements, actions have been taken by churches to break the
silence around HIV and AIDS within churches and to tackle HIV-related stigma.
Some examples of churches responses include:
48
Sexual orientation no reason to violate rights, WARC delegates told. Ecumenical News International
04-0496, Accra, Ghana, 2 August 2004.
49
Carol Fouke with Dave Wanless, AACC. The United Methodist Newscope, Volume 31, No.
49/December 5, 2003.
50
Okema, Michael. So Far From God, So Close to Temptation, The East African (Kenya), 1
November 2004.
51 AIDS calls for holistic response, says HIV-positive cleric 1 December 2004 Nairobi/Bangkok,
Ecumenical News International, http://www.eni.ch/ [657 words, ENI-04-0784]
For more information on Rev Gideon, see box 20 “Canon Gideon Byamugisha – the Anglican Church
stands behind its pastors” in 4.3 Confidentiality of World Council of Churches, Working with People
Living with HIV/AIDS Organizations: Guidelines, 2005.
24
church against people living with HIV/AIDS. The pastors from churches in the
townships of Tafara and Mabvuku in Harare became the biggest group of
church leaders ever to take an HIV test in Zimbabwe52.
Faith-based organizations are joining many other actors in the global fight
against this devastating pandemic and can offer our specific resources and
strengths. At the same time we acknowledge that we have not always
responded appropriately to the challenges posed by HIV/AIDS. We
deeply regret instances where FBOs have contributed to stigma, fear and
misinformation.
However, it is also fair to say that FBOs have often played a positive role
in the global fight against HIV/AIDS. Countries such as Senegal,
Uganda, and Thailand which have involved religious leaders early on in
the planning and implementation of national AIDS strategies have seen
dramatic changes in the course of the epidemic. For example, religious
communities in Uganda, working hand in hand with AIDS service
organizations and the government, have championed peer education,
counselling and home care programmes. A church leader has led the
National AIDS Commission in Uganda since 1995. In Uganda, Zambia
and Tanzania, prevention efforts have resulted in changed sexual
behaviour including delayed sexual activity among adolescents, and a
reduction in the number of sexual partners. These modifications of
behaviour have been part of the message of many FBOs. In Thailand,
Buddhist and Christian groups have introduced home based care services
and greatly contributed to the destigmatization of the disease53.
52
Zimbabwe pastors take HIV tests in stand against prejudice 2 December 2004 Geneva Ecumenical
News International, http://www.eni.ch/ [388 words, ENI-04-0787]
53
Statement by Faith-based Organizations facilitated by the World Council of Churches. Increased
Partnership between Faith-based Organisations, Governments, and Inter-Governmental
Organizations. UN General Assembly Special Session on HIV/AIDS, New York, United States, 25 -
27 June 2001.
http://www.unaids.org/en/events/un+special+session+on+hiv_aids.asp
25
HIV-positive. However, as more believers fall victim to the disease, the
position of many religious leaders has evolved.
20. It was noted however that faith-based programmes operate within the
framework of religious values that emphasized abstinence, fidelity and
compassion towards the ill. For religious leaders present at these
meetings, this has meant that certain prevention methods, including
condom use outside of marriage or needle exchange programmes, could
not be supported. In some regions, faith-based organizations are important
providers of health services and this includes the treatment of individuals
with AIDS. Few are currently able to offer treatment with antiretroviral
drugs, a situation that is only likely to be corrected through the provision
of considerable and sustained external assistance. In other regions, faith-
based organizations considered health service provision to be beyond their
limited resources and capacity and therefore something best left to
others54.
54
United Nations General Assembly. Follow-up to the outcome of the twenty-sixth special session:
implementation of the Declaration of Commitment on HIV/AIDS. Implementing the Declaration of
Commitment on HIV/AIDS: building partnerships and expanding national responses to HIV/AIDS.
Fifty-eighth session A/58/150. Item 48 of the provisional agenda, 2003. UN General Assembly Special
Session on HIV/AIDS, New York, United States, 25–27 June 2001.
http://www.unaids.org/en/events/un+special+session+on+hiv_aids.asp
55
The Ecumenical Response to HIV/AIDS in Africa, Plan of Action, Global Consultation on
Ecumenical Responses to the Challenges of HIV/AIDS in Africa, Nairobi, Kenya, 25-28 November
2001. http://www.wcc-coe.org/wcc/what/mission/ehaia-e.html
26
The experience of the WCC in being a partner in the Communities Responding to the
HIV/AIDS Epidemic (CORE) Initiative56 has also broadened the scope of faith-based
organizations involvement in working in partnerships with PLWHA organizations.
More recently, the WCC has been part of a wider coalition in the drafting and
promotion of a Code of Good Practice for Nongovernmental Organizations (NGOs)
56
The Communities Responding to the HIV/AIDS Epidemic (CORE) Initiative
http://www.coreinitiative.org/ is a USAID-funded global program, whose mission is to support an
inspired, effective and inclusive response to the causes and consequences of HIV/AIDS by
strengthening the capacity of community and faith-based groups worldwide. The main approach of the
CORE Initiative is to leverage existing efforts, while catalyzing and encouraging new efforts through
diverse and innovative partnerships in the areas of community-based prevention, stigma reduction, and
care and support to PLWHA and their families. Leading this initiative is CARE International in
partnership with the World Council of Churches (WCC), the International Center for Research on
Women (ICRW), the International HIV/AIDS Alliance, and the John Hopkins Bloomberg School of
Public Health, Center for Communication Programs (CCP). With a global network of partners, the
CORE Initiative provides state-of-the-art technical support and organizational development to
community and faith-based organizations and other USAID partners to design, implement, and
evaluate comprehensive community HIV/AIDS programming. Through the following principles, the
CORE initiative strives to ensure that innovations are tested, best practices transferred and scaled up,
and lessons learned documented.
• Applied innovation: encouraging and rewarding innovation among CBOs and FBOs.
• Learning and excellence: supporting and expanding excellence in HIV/AIDS programming
defined by commitment, sustainability and impact.
• Partnering and collaboration: working with and through the full range of community, national,
and regional implementers and donors.
• Responding to community need: creating mechanisms for engaging community actors in all
aspects of HIV/AIDS programming.
• Taking a multi-sectoral approach: strengthening community capacity to address HIV/AIDS in
the context of livelihood security, human rights, economic development, food security,
education, health, and gender equity.
The CORE Initiative brings together key stakeholders, including PLWHA, CBOs and FBOs, non-
governmental organizations (NGOs), private voluntary organizations, and donors to enable holistic
programming and excellence in HIV/AIDS prevention, care and support at the community level. The
CORE Initiative engages these stakeholders through eight strategic, interrelated program elements that
provide funding, technical assistance, and information.
1. Close partnerships with various local, regional, international and U.S-based groups, including
people living with HIV/AIDS - this will include consultations with CBOs and FBOs and
associations of PLHA to identify needs and mechanisms for partnership.
2. Small Grants to provide seed money and technical support to build capacity and expand
programmes.
3. Demonstration projects to scale-up and/or transfer successful innovations.
4. Knowledge management and learning.
5. Capacity-building support to CBOs and FBOs and their regional and international
coordinating bodies.
6. Technical support to USAID Missions in how to effectively and appropriately support a multi-
sectoral response of CBOs and FBOs to the HIV/AIDS epidemic.
7. Donor and implementer coordination.
8. Monitoring and evaluation mechanisms at all levels that effectively and accurately capture the
strengths and weaknesses of community and faith-based. Working with partners to insure the
Greater Involvement of People Living with HIV/AIDS (GIPA) Guidelines are applied will be
significant to the response.
Over 50 resource organizations, including the International Community of Women Living with
HIV/AIDS, Islamic Medical Association of Uganda, Salvation Army, World Conference on Religion
and Peace, and YMCA have pledged their support to this effort. The CORE Initiative will be
implemented in a spirit of mutual learning, sharing, and partnership, involving PLWHA and their
support organizations in the hope of preventing and mitigating the impact of HIV/AIDS epidemic.
27
responding to HIV and AIDS (the Code).57 The drafting process has again raised the
need to bring about specific changes in the life of churches and faith based
organizations in order to promote and uphold the Greater Involvement of People
Living with HIV and AIDS (GIPA) Principle (see 1.4 The Imperative to Work with
PLWHA Organizations).
The WCC, and some 30 related networks and member organizations signed the Code
at the end of October 2004. Their signature makes these faith-based organizations
accountable to the norms contained in the Code. A focus on assisting member
churches to work more closely with PLWHA in a measurable manner is an essential
follow-up process after signature. This will ensure that the gains made by the
churches in the realm of HIV prevention, HIV and AIDS care as well as HIV/AIDS
advocacy will be owned by the whole community and will be rooted in the life of
churches.
The lessons learned for partnerships from the above initiatives have been:
57
Renewing Our Voice: Code of Good Practice for NGOs Responding to HIV/AIDS
http://www.ifrc.org/what/health/hivaids/code/
28
Chapter 3
Partnerships
This chapter explores partnerships in general including those between churches that
have existed for many years. In relation to forming partnerships between churches and
PLWHA organizations issues such as why form such partnerships, covering gospel
imperatives and the benefits to both parties; sources of funding; and some of the
difficulties faced by both churches and PLWHA and their organizations in forming
partnerships, are covered. Other issues such as the relationship between partnerships
and programmatic work as well HIV- and church-related issues which may impact
upon a church/PLWHA organization partnership are also covered. The chapter
concludes with a section outlining concretely what partnerships between churches and
PLWHA organizations look like at various levels i.e. church leadership, theological
training, parish priest or minister, women’s groups etc.
Building partnerships is about working with others to achieve what we cannot achieve
on our own. A partnership is a special kind of relationship, in which people or
organizations combine their resources to carry out a specific set of activities. Partners
work together for a common purpose, coherence and for mutual benefit. The
advantage of working in partnerships is that different people and organizations have a
wide range of resources to offer each other.
NGOs use different words to refer to building partnerships. For example, some talk
about “external relations” or “strategic alliances”. It is important that churches define
for themselves the meaning of key words such as “collaboration”, “strategic
alliances”, “partnerships” etc. that they commonly use.
Building partnerships is about relationships that are in-depth, involve a few carefully
selected targets, and have specific, practical goals. It is different from “public
relations” or “networking” – where activities are likely to be less in-depth, involve
many more targets and have the general purposes of information sharing and
solidarity. Although building partnerships and “public relations” are different, they
can both help a church and its HIV/AIDS work in communities. Partnerships can be
time limited or task driven.
In building partnership, it will be helpful for the churches to recapture the creation
theology of Genesis 1-2. That is, God is the creator of everything and of all life; that
God created all things good (Genesis 1:4,10,12,18,31). Further, that God gave human
beings stewardship – to maintain the earth’s goodness (Genesis 1:28). HIV and AIDS
destroy God’s created life and its goodness. By working with all stakeholders in the
HIV/AIDS struggle and particularly with PLWHA organizations, churches can see
themselves as being co-creators with God in fighting to maintain life and its goodness
in the face of HIV/AIDS plunder.
29
Almost all churches already have experience in building partnerships – many have
decade long partnerships with sister churches. Many of these partnerships have been
between churches in the North and those in the South. However, the relationship
between partners has often been unbalanced with power over finances and direction
residing in northern churches. Partnerships between churches on HIV/AIDS offer an
opportunity to redress this imbalance, to create an equitable relationship. The greatest
needs are in developing countries, and responses should reflect the lived need and
experience of PLWHA and their churches.
The United Church of Canada, Canada's largest Protestant denomination instituted the
two year (December 2002 – December 2004) Beads of Hope Campaign designed for
HIV awareness raising, advocacy, and fundraising campaign, hoping to:
• take action to improve policies which impact the lives of people living with or
affected by HIV/AIDS;
• increase awareness and engagement in HIV/AIDS related issues in the church
at all levels; and
• raise one million Canadian dollars to support global partner responses to the
HIV/AIDS crisis.
Congregations were invited to make use of the Beads of Hope materials to raise
awareness about the HIV/AIDS pandemic in their own congregations. The Beads of
Hope Campaign was inspired by the beaded pins made by women's groups in South
Africa, and Zambian men and women who are living with HIV/AIDS, and have
become a sign of support for the millions of people with HIV/AIDS. Just before
World AIDS Day, the UCC reported that the campaign had netted two million dollars,
double its original objective59.
The Beads of Hope Campaign supports global partner work in a number of areas:
• raising awareness about how HIV/AIDS is spread;
• advocacy to improve policies that impact HIV/AIDS and people living with
AIDS;
• providing accessible HIV/AIDS testing and counselling;
• supporting people with HIV/AIDS and affected families (including HIV/AIDS
orphans);
• training leaders to help communities better respond to the virus; and
• increasing the capacity of organizations to better engage in the fight against
HIV/AIDS.
58
See http://www.united-church.ca
59
Canadian church's AIDS campaign doubles fundraising objective. Ecumenical International News,
Ottawa, Canada, 30 November 2004.
30
The UCC is in partnership with councils of churches, denominations, and non-
governmental agencies in more than 40 countries in Africa, Asia, and the Caribbean
and Latin America. Partners have developed programs, expertise, and become
prominent national actors in the fight against the spread of HIV/AIDS. As partners,
they receive ongoing support through the UCC’s Mission and Service Fund (M&S),
but the need is beyond the support that is possible through M&S. Hence the
campaign.
Patriarch Paulos has become an outspoken leader on the challenge of HIV in Ethiopia,
holding large "Save the People" rallies each year. The Church also regularly promotes
its anti-AIDS message in worship services, Bible studies and Sunday school classes.
Because of its size, the Ethiopian Orthodox Church is uniquely equipped to deliver
this message to a large segment of the population. With 35 000 churches and
monasteries, and 500 000 clergy, including priests, deacons and monks, the Church
has access to the most remote parts of Ethiopia.
Now, that campaign is getting a boost from International Orthodox Christian Charities
(IOCC), the humanitarian aid agency of Orthodox Christians. The new IOCC program
will strengthen the anti-AIDS efforts of the Ethiopian Orthodox Church and its
humanitarian arm, the Development and Inter-Church Aid Commission (DICAC).
"This battle requires the cooperation of everyone within Ethiopia, and from outside,
who has the resources and expertise to help," said His Holiness Abune Paulos,
Patriarch of the Ethiopian Orthodox Church. "Saving life is the Church's fundamental
obligation and its sacred duty and responsibility.”
The three-year, US$ 6 million project, supported by the U.S. Agency for International
Development (USAID), aims to:
• Build the Church's capacity to care for AIDS orphans and to give palliative
and hospice care to PLWHA. By 2006, the project plans to extend faith-based
community care to nearly 9000 orphans and vulnerable children, providing
them with adult supervision and access to education, health care, food, shelter
60
IOCC, Ethiopian Orthodox Church expand anti-AIDS Campaign - new $6 million agreement with
USAID will strengthen efforts, 5 February 2004. www.iocc.org
31
and other forms of assistance.
• Reduce the incidence of HIV infections in Ethiopia through an educational
campaign that promotes the importance of abstinence and/or faithfulness to
one partner, especially among young people ages 15 to 24.
• Training of counselors who will spread the message of AIDS prevention
beyond the life of the program, and who will train others. With this model of
"trained trainers," thousands of counselors will be available to support the
anti-AIDS campaign by 2006.
• Expand the Church's network of "Hope Centers" for AIDS orphans -
increasing the number of centers from the current 13 to 200.
• Expand hospice care for people living with HIV/AIDS – increasing the
number of community-based programs to 250 by the year 2006.
In response to the global HIV/AIDS pandemic, The United States United Methodist
Church adopted a resolution at the 2004 General Conference to establish a Global
AIDS Fund, stating:
Whereas, to date, the response of Christians, including United Methodists, has been
minimal, particularly in comparison to our resources and other commitments.
Therefore, be it resolved that the 2004 General Conference, therefore, commits itself
to establishing the United Methodist Global AIDS Fund (UMGAF). During the 2005-
2008 quadrennium, United Methodists will raise US$ 8 million through Advance
Specials.
Be it further resolved, of the total money raised in each annual conference for
UMGAF, 25 percent shall be retained by the annual conference that raised it, to be
used in programs combating HIV/AIDS in their region and in other global
connectional projects. Each annual conference shall designate an appropriate agency
for the promotion and distribution of these funds.
32
AIDS assignment.
Reflection
Then I heard the voice of the Lord saying: “Whom shall I send, and who will go for
us? And I said, “Here am I; send me” (Isaiah. 6:8).
Identify the key words that are used when talking about building partnerships outside
the church world, and make a statement or a drawing that expresses the meaning of
each word by linking it with some of the biblical ideas in the above mentioned verse.
Health-care professionals are key partners for religious leaders as they can fill in
important gaps in knowledge, expertise and experience, and provide information
about services, symptoms, treatments and psychological needs.
The media are also critical partners. Churches need to take the initiative to build
relationships with journalists, encouraging them to better understand the church’s
perspective and to focus more on solutions and less on sensationalism. An example of
this is the media workshops held as part of the Ambassadors of Hope Programme
undertaken by Churches United against HIV/AIDS in southern and Eastern Africa
(CUAHA)61 in conjunction with African Network of Religious Leaders Living with or
61
CUAHA http://www.cuaha.info/web/ is an ecumenical network of churches and faith-based
organizations involved in capacity building of its partners working with people affected by HIV/AIDS.
The overall objective of the project is to reduce the number of new HIV infections and improve care
through integrating HIV/AIDS work as a part of the work by churches, church related organisations
and faith based organizations. The aim is to reduce high-risk behaviour and, at the same time, fight
against social exclusion and stigmatisation that PLWHA deal with.
The project’s goal is to strengthen the capacities of its partners through providing conditions where the
partners can share their materials, best-practices, innovations and know-how to create common
strategies and methods, as well as to create common projects and campaigns in their HIV/AIDS
programmes. These include preventive, supportive and caring work as well as tolerance-building.
Emphasised are actions and projects crossing borders between countries, cultures or denominations.
CUAHA consists of members from 24 Catholic, Lutheran, Anglican, Pentecostal and Orthodox
churches and organizations in twelve African countries: Angola, Botswana, Ethiopia, Kenya, Malawi,
Namibia, Rwanda, South Africa, Swaziland, Tanzania, Uganda and Zimbabwe as well as partners from
Finland. Started in 2002, CUAHA responded to requests from churches, church-related NGOs and
faith-based organizations in Eastern and Southern Africa to their Finnish partners to join efforts and
resources in the fight against the HIV/AIDS pandemic. The project is supported by the development
cooperation funding for non-governmental organizations, provided by the Ministry of Foreign Affairs
of Finland. Funding is also provided by several Finnish church-related organisations. The network
33
personally affected by HIV and AIDS (ANERELA+). In the media workshops time is
spent sharing with journalists and clergy the important role that they can play in
overcoming stigma and giving accurate information. Journalists and clergy are also
challenged with regard to stigmatizing language.
Many churches already have long-term partnerships with sister churches some of
whom provide financial support. For example, the Ethiopian Orthodox Church is to
receive US$ 6 million from International Orthodox Christian Charities (IOCC), the
United States-based Orthodox Christian aid agency, to boost the church's struggle
against HIV/AIDS62.
Churches need to recognize their own weakness in organizational structures and the
need for technical support from UN agencies and NGOs in developing materials and
capacity. Many churches need financial support but must also acknowledge their own
responsibility to contribute their own resources. Donor organizations, in turn, need to
recognize that churches can, and do, contribute resources including personnel and
meeting facilities. Box five below “Where are all the big church projects?” raises
builds on already functioning Finnish – African cooperation contacts and existing networks, both
South-South and South-North.
CUAHA has defined six thematic components in which they are concentrating their efforts:
• Advocacy: 'Ambassadors of Hope' where CUAHA supports a group of infected or affected
volunteers who will advocate publicly for positive living in hope, and support local groups in
their work. The first CUAHA video, “Ambassadors of Hope”, was launched in Dar es Salaam,
on November 30, 2003. The video is available now in both English and Swahili. For the
video, contact Maria Owen [email protected] Contact Euni Motsa, Lutheran Development
Service, P.O. Box 388, Mbabane, Swaziland H100. Tel: +268-404-2562 [email protected]
• Information, Communication and Networking, the purpose of which is to achieve
strengthened an improved information sharing and communication capacity and well-
functioning communications within CUAHA in collaboration with other co-existing networks.
One of the activities has been media sensitisation seminars. Contact through CUAHA regional
office, Maria Owen [email protected] For further information about media sensitisation
workshops: Mari Teinila, [email protected]
• Diaconia (Caring Ministry), social services and pastoral care. The purpose is to strengthen the
churches to carry their social responsibility and empower them as healing communities.
Contact through CUAHA Regional Office: Maria Owen, Regional Network Coordinator. P.O.
Box 105647, Dar es Salaam, Tanzania. Tel/Fax: +255-22-2667657 [email protected] or
[email protected]
• Theology and Ethics with the purpose to agree upon and work on a common agenda on
theological understanding and ethics in issues regarding HIV and AIDS. Contact Dr. Veikko
Munyika, CUAHA Co-Chairperson, Evangelical Lutheran Church in Namibia, P/Bag 2018,
Ondangwa, Namibia. Tel: +264-65-240241 [email protected]
• Education and Training, with the purpose to achieve capacity building by improved skills and
knowledge of the clergy and professional church workers, including volunteers to deal with
issues related to HIV and AIDS. Contact Rev. Simon Mureithi, Full Gospel Churches of
Kenya, P.O. Box 28272, Nairobi, Kenya. Tel: +254-20-785273 [email protected]
• Arts and Culture with the purpose to use arts and culture as an integrated element in CUAHA
activities. Contact Olli Pitkanen, Fida International, P.O. Box 50, 00421 Helsinki, Finland.
[email protected]
CUAHA Helsinki Team: Birgitta Rantakari, CUAHA Chairperson, Helsinki Deaconess Institute,
Alppikatu 2, 00530 Helsinki, Finland. Tel: +358-9-7750-4730
[email protected]
62
Ethiopian church to receive million-dollar boost for anti-AIDS work, Nairobi, Kenya. ENI-04-0066,
9 February 2004.
34
questions about the lack of proposals being submitted by churches and faith-based
organizations to donors.
While sometimes certain churches may feel shy or incompetent to work in partnership
with UN agencies, NGOs and governments or to tap their skills and resources, it is
time for churches to remember that, “the earth is the Lord’s and all that is in it, the
world and all those who live in it,” (Psalms 24:1). These other stakeholders must be
seen as God’s people, using God’s gifts and equally labouring to maintain the
goodness of the earth. Partnership should therefore be sought and developed.
Nobody in the church denies that HIV/AIDS is in the church, and that even if it were
not, churches must respond to the suffering of the world. But very few quality projects
that match the challenge are submitted to big donors by churches. Why?
Because churches feel they do not have the capacity to run huge projects?
Maybe, but some of the medium-size and small donors even offer training to build up
capacity for planning and managing. In a very decentralized way, churches handle
quite a lot of people and money already, especially in the field of health care and
charity. A few examples show that church organizations can indeed scale up to be
meaningful and professional national players. For example, the Christian Health
Association of Zambia (CHAZ) has become a principal recipient of Global Fund
money in the country, which means that it receives sizeable amounts for its own use
and to pass on to other members of the national country coordinating mechanism. And
not only that, CHAZ was visited and praised by international authorities during the
63
EHAIA News No. 4, http://www.wcc-coe.org/wcc/what/mission/ehaia-news-e.html
35
last World AIDS Day for its superior quality work.
But then, where are all the big projects to help the ailing church hospitals, the
orientation-seeking youth, the isolated and stigmatized women who care for the sick,
the orphans and impoverished children resulting from HIV? I can see only a few; they
give hope, but are only drops in the ocean of the epidemic.
Churches must also face the challenge of entering new arenas of activity - arenas that
they have previously generally ignored or felt lay outside their responsibility,
including the political arena. Access to treatment must be high on churches’ agenda.
Churches have a legitimate, even essential role in advocating for policies, laws and
programmes that prevent HIV infection and provide care for PLWHA. This means
using a full range of advocacy efforts for being involved in policy discussions right
through to direct action on the street. For example, on World AIDS Day 2003, in
Washington, D.C., interfaith leaders held a vigil at the United States Treasury
building and a press conference to send a call to President George W. Bush and
Treasury Secretary John Snow for greater leadership on global AIDS and debt. In
letters addressed to both Snow and Bush, the religious leaders called for an increase in
funding to at least US$ 5.4 billion for global AIDS, tuberculosis, and malaria relief in
the President’s 2005 budget request, along with full debt cancellation for
impoverished nations in order to free up resources to fight the HIV/AIDS pandemic.64
Entering the political arena will open the church to new partners working on HIV and
AIDS, and ultimately draw churches into the Global Fund for AIDS, TB and
Malaria’s (Global Fund) 65 funding process. Some church-related networks such as
Churches Health Association of Zambia as well as international church-related
organizations such as Caritas Internationalis and World Vision have already
64
Newscope, A Newsletter for United Methodist Leaders, Vol. 31, No. 49/December 5, 2003.
http://www.umph.org/resources/publications/newscope/viewIssue.asp?id=211
65
For more information: http://www.theglobalfund.org/en/
36
succeeded to a great extent in this area. Boxes six to eight, which follow, provide
details of the processes undertaken by three different faith-based organizations in
relation to the Global Fund.
The Global Fund and CHAZ signed grants totalling nearly US$ 10 million for HIV
and TB in March, and Malaria in September 2003. CHAZ oversees the
implementation of these programmes, which aim to make significant inroads into the
disease burden in Zambia. Through comprehensive treatment and prevention efforts,
the HIV and AIDS programme plans to reduce HIV prevalence in youth aged 15–19
by 4 % and decrease the number of mothers passing the infection to their children by
over 20%. The malaria programme plans to decrease morbidity and mortality by
distributing over 1.5 million insecticide treated bed-nets and scaling up distribution of
Artemisinin Combination therapy – the most effective malaria treatment, particularly
in areas with drug resistance. The TB programme is increasing the number of health
centers providing Directly Observed Treatment Short-course (DOTS), the agreed
international standard for TB control in order to increase the cure rate of new cases to
57%.
66
Communication with Dr.Simon Mphuka, Churches Health Association of Zambia (CHAZ),
[email protected]
37
Box 7: Caritas Internationalis67
Some Catholic agencies have received funding through the Global Fund. In
Madagascar, Catholic Relief Services serves as the conduit for Global Fund monies in
the absence of a Country Coordinating Mechanism (CCM); while in Rwanda, the
national Caritas organization serves on the CCM. In some other countries, however,
the Catholic agencies report many difficulties with the application process for Global
Fund monies, including a lack of understanding of non-governmental organizations
by the CCM and more pointed discrimination against faith-based organizations.
World Vision International (WVI) is a faith-based global NGO that has offices in 100
countries, a mix of developed and developing countries. Long before policy gets
translated into calls for proposals, WVI was involved in the processes, which led to
the establishment of the Global Fund.
A public-health physician, Dr. Milton Amayun, was designated the WVI focal point,
participated in the consultations that led up to the Global Fund's establishment, and
primed the network of WVI offices on this new, potential funding source. He
developed a strategy of engagement and maintained relationships with various
organizations with interest in HIV/AIDS. Finally, he presented WVI's work in
different forums on HIV/AIDS.
In early 2002, information about the Global Fund was gradually spreading. WVI's
national offices were encouraged to be ready with their programmes and staff, who
could participate in the proposal writing process. In a meeting of African staff on
HIV/AIDS in Johannesburg, presentations on the Global Fund and training in
HIV/AIDS programme development was undertaken.
67
Communication with Fr. Robert J. Vitillo, Special Adviser for HIV and AIDS, Caritas
Internationalis. [email protected]
68
Communication with Milton B. Amayun, MD, MPH, Senior Technical Advisor, The Hope Initiative,
World Vision International, [email protected]
38
When the Global Fund's first call for proposals was issued, many WV staff around the
globe had known about it for several weeks. Due to their ongoing relationships with
Ministries of Health, a number of national directors were invited to sit on Country
Coordinating Mechanisms (CCM) or to write parts of the country proposal.
WVI's policy has been to help CCMs write quality proposals, offering WVI's
resources in whatever way possible. Local staff in Armenia, Cambodia, Dominican
Republic, Democratic Republic of Congo, East Timor, Lesotho, Philippines,
Tanzania, Thailand, Uganda and Zambia were actively involved in developing
country proposals. In Sierra Leone, WVI co-sponsored the proposal writing team. In
the Democratic Republic Congo, WVI supplied a TB expert from Canada. Dr.
Amayun assisted in writing proposals for Lesotho, Mali, Mozambique and Sierra
Leone - "countries that could not afford technical assistance for their proposals."
Over the last three years, WVI's approved Global Fund portfolio has grown to around
US$ 100 million. This sum includes acting as the Principal Recipient for HIV/AIDS
in Armenia (US$ 7 million) and Guatemala (US$ 40 million), and for TB in Somalia
(US$ 13 million).
The resources are budgeted for a variety of interventions, including HIV prevention,
orphan care, purchase of pharmaceuticals, and support for grassroots initiatives. For
TB, community-based treatment is the main intervention; for malaria, prophylaxis and
treatment, bed nets and laboratory support are the principal interventions.
Mozambique is a country which suffered 16 years of civil war, cyclic floods and a
severe drought. An estimated 13% of the population is living with HIV and AIDS.
Some 40% of the population has no access to health services, the illiteracy rate is 60%
and there are 300 000 orphans. In the midst of this poverty, the HIV/AIDS Christian
Network has taken the bold stand of "Faith as an Instrument of Change" with a
declaration, approved by the Council of Churches for Mozambique and the
Evangelical Association, October 2002 that encapsulates a deep commitment to
respond to HIV/AIDS.
69
Parry, Dr Sue. Responses of the Faith-Based Organizations to HIV/AIDS in Sub Saharan Africa,
Southern Africa Regional Co-ordinator: World Council of Churches, Ecumenical HIV/AIDS Initiative
in Africa (EHAIA), 2003. http://www.wcc-coe.org/wcc/what/mission/ehaia-documents-e.html
39
awareness, hands-on programmes of care, support, training and follow-up. They are
building capacity within the church and the local community to develop and maintain
their own programmes.
In Namibia, Catholic AIDS Action can be seen as a unique but highly replicable
model of a national HIV/AIDS programme built within church structures. With the
support of the Namibian Catholic Bishops Conference, Catholic AIDS Action has
fourteen offices nationwide and utilizes the existing structures of the 90 parishes, 300
Christian communities, hospitals, clinics, schools and hostels as a basis for spreading
the message of prevention and care. Home based family care, voluntary counseling
and testing services, community mobilization, support for orphans and vulnerable
children and support for PLWHA are all based on the Christian values of human
dignity and provide spiritual, emotional, social and physical care and support. In
collaboration with Catholic Health Services and the Namibian Ministry of Health,
Catholic AIDS Action volunteers provide support and encouragement for individuals
receiving antiretroviral therapy. This model served as an inspiration for the Lutheran
communities who also took up the challenge, within their own spheres of influence,
and collaborated significantly with the Catholics70.
Muslims have networks that are replicable models for other countries and regions for
example: The Islamic Medical Association is a network which deals with HIV/AIDS
health issues. The Islamic Leadership Association, South Africa, a network for HIV-
positive Muslims http://positivemuslims.org.za/ has a telephone hot-line to support
community members in their hour of need. The collaboration between Muslims, State
and other faiths in Senegal has become recognized as UNAIDS 'Best Practices"71.
In Botswana, with the government providing for most needs, it took a long time for
churches to take up the challenge of HIV and AIDS. However, when they did, they
formed Botswana Christian AIDS Intervention Programme (BOCAIP), a
collaborative effort between denominations to fill the gaps, to supplement and
complement government efforts, and established a counselling service and network
that is second to none and has now become a regional initiative stretching to Liberia.
See box 14 “Providing hope amidst despair – the example of BOCAIP” in section
3.11 What does building partnerships mean in practice?
Ethiopia has formed 'The Organization for Social Service for AIDS in Ethiopia'
bringing in religious organizations and HIV/AIDS focused NGOs to support the
Ministry of Health. Its training of religious leaders, formation of anti-AIDS clubs, and
other services is having considerable impact.
70
For further information, contact Richard W. Bauer, MM, LCSW, Chief Executive Officer, Catholic
AIDS Action, P.O. Box 11525, Windhoek, Namibia. Tel: +264 61 276350; email: [email protected],
www.caa.org.na
71
UNAIDS, Acting early to prevent AIDS: The case of Senegal, (1999) at 12
http://www.unaids.org/NetTools/Misc/DocInfo.aspx?href=https%3A%2F%2F2.gy-118.workers.dev/%3A443%2Fhttp%2Fgva%2Ddoc%2Dowl%2F
WEBcontent%2FDocuments%2Fpub%2FPublications%2FIRC%2Dpub04%2Funa99%2D34%5Fen%2
Epdf
40
Kenya hosts numerous faith-based associations, councils, organizations, secretariats,
consortia and networks that are not only national but also regional and international.
Because they are umbrella organizations, or have chapters in many countries, they
represent a huge constituency of some millions of believers and as such have the
potential for enormous influence.
Early in the epidemic, the Government of Uganda exhibited a high level of political
commitment to addressing the emerging problem. The external help that Uganda
received may have had an impact but this was not the only determinant in turning the
tide of HIV. The government and the people themselves recognized, from the
beginning, that the response to HIV lay in their own hands and could only be truly
effective if they united and took responsibility. Churches in Uganda, to their credit,
stood side-by-side with the government and put their full weight behind the
campaigns. Whilst the secular response was 'condom promotion' and responsible
behaviour, the message from churches was 'abstinence and fidelity'. Alongside the
government’s educational campaign entitled "Love Carefully," churches developed
their own "Love Faithfully" campaign. These two leading focuses of influence and
authority agreed not to undermine the efforts of each other nor contradict the
messages, but to do what each could do best within their own spheres of influence. In
Africa, this was a unique response.
41
Reflection
Then he said to them, “Is it lawful to do good or to do harm on the Sabbath, to save
life or to kill? (Mark 3:1–6)
In the light of the above scripture, consider all of the potential partners who are
responding to HIV in your local area. Of these who could your church establish
partnerships with?
In addressing stigma, PLWHA are the churches’ most precious resource. They have
been described as the ‘wounded healers’ of our time. Their full inclusion in all aspects
of the church’s life is the best possible strategy for changing attitudes and removing
fear. The experience of living with HIV or AIDS raises profound questions about the
meaning of suffering and the nature of God and in sharing these insights, the
spirituality of the whole worshipping community may be enriched. PLWHA have
commented that the liturgies and rituals of the Church have been a great source of
strength, particularly when they are combined with the support of the worshipping
community73.
Within churches, involvement can be a powerful tool for breaking down barriers,
whether subjective or objective. For example, since 1996 the JL Zwane Memorial
Church, named after the founder Rev. Jeremiah Lafangaye Zwane, see box nine
below, a constituent member of the Uniting Presbyterian Church in Southern Africa,
in Guguletu, Cape Town, South Africa, has adopted a policy of “No Preaching before
a PLWHA speaks” and the impact has been evident in reducing HIV-related stigma
through creating a supportive environment.
72
This and the following section are adapted from UNAIDS. From Principle to Practice: Greater
Involvement of People Living with or Affected by HIV/AIDS (GIPA), 1999.
73
Vitillo, Rev. Robert J. HIV and AIDS: The Challenge and the Context. Why Should Churches
Respond to Issues of Stigma and Discrimination in Reaction to HIV and AIDS? In UNAIDS, A Report
of Theological Workshop Focusing on HIV and AIDS Related Stigma, Windhoek, Namibia, 8-11 Dec
2003. www.unaids.org
42
Box 9: No Preaching before a PLWHA speaks74
In the JL Zwane Memorial Church, has allowed and requested PLWHA or those
affected to speak in church every Sunday just before the sermon and share their
experiences. Sometimes there has not been a single dry eye in church. The
congregation has learnt to respond to those who share their experiences by giving
much needed support. This way the whole congregation is challenged to reflect
theologically on the implications of this epidemic. For example, last Sunday a woman
whose husband left her on finding out her HIV status was speaking with her mother-
in-law. She told the congregation how afraid she was to disclose her status and how
well and lovingly she was received by her mother-in-law. She has three children, a
twelve year old who is HIV negative and twin girls who are HIV positive. Her
husband left them and they are happy with their mother-in-law who is taking good
care of her son's family. They both pleaded with mothers in law not to quickly put the
blame on daughters in law but learn to be more accepting.
PLWHA can also instruct churches in the language of AIDS and in creating a
response which reflects the local realities of the epidemic. Box 10 highlights one
example of this:
74
Communication with Rev Dr Spiwo Xapile, JL Zwane Memorial Church, Uniting Presbyterian
Church in Southern Africa, South Africa, [email protected]
www.jlzwane.sun.ac.za
43
Box 10: Religious leaders and communities need to make a realistic analysis of
the context and situation, and often, they need assistance to do this.75
When mapping the churches’ involvement, no church was addressing the needs of any
of these groups. Churches were focusing on either orphans, who in terms of numbers
were a marginal problem, or care projects among rural poor where prevalence rates
was barely detectable. NCA saw a clear difference in the response of the secular
partner organizations, which were without exception working with the hardest-hit
populations and were addressing prevention and care as well as advocacy against
stigma and discrimination.
Further examination of the churches’ project portfolio showed that the grassroots
workers were actually aware of this apparent misfit between needs and action. As one
of the Catholic sisters said:
I know that you all think that we don’t work with MSM because our
tradition disapproves with their way of life, and that we don’t work with
prevention because we can’t promote condoms. But our main problem is
that most of us don’t have the language to talk about sexuality. Since we
don’t have the language, we very rarely talk about sexuality in our
church. On the rare occasions we do talk about it, we are in a way forced
to stick to the limited knowledge and language we have and that is really
not suitable for the context and situation right now. Somebody needs to
teach us how to talk about sexuality in a real manner, without necessarily
condemning us for the views we have on, for example, condoms.
75
Communication with Anne-Marie Helland, Special Advisor, Department for Advocacy and
International Development Policy, Norwegian Church Aid. [email protected]
44
as we are…
In this situation, a strong network of PLWHA can be invaluable. NCA asked the
Catholic Diocese to set up a team to look at these issues, and linked them with the
national branch of GNP+, which in turn was able to set up a team among their
members, consisting of amongst others a Catholic theologian, a male former
commercial sex worker and a teenage girl, who was active in her local church.
Together, they started on a journey to explore how they could help each other out.
Reflection
Read the story of the Good Samaritan (Luke 10:29–37). Samaritan people were
despised due to their ethnic identity, but they are re-valued by Jesus, far beyond
religious leaders and other outstanding ethnic groups, due to their capacity to be
moved by compassion and to care for the sick. Similarly, the church, which tends,
sometimes, to be sidelined by the NGO world, agencies and some governments can
prove its worth by its commitment to the well being of PLWHA.
All humans PLWHA need physical, mental and spiritual strength. After living for
years as outcast of society, the Umrah would be the place where they will be reunited
with Allah, receive his blessings and return to Islam as a way of life.
This would be the first time that HIV-positive Muslims are going as a group for
76
Rainer Rotthoff, [email protected] [AIDS_ASIA] 'Umrah' for Muslims living with HIV/AIDS,
03 January, 2005.
45
Umrah (a visit to Holy Places to seek guidance and mercy from Allah). A fund raising
campaign has been developed under the theme “Oh ye God, we are thirsty of your
guidance and your mercifulness” to make the wish a reality.
Pelangi's mission is to ensure that all homeless PLWHA have access to basic medical
care and treatment for:
• opportunistic infections; and
• ensure that all homeless PLWHA will be able to live and die with pride and
dignity.
70% of Pelangi’s expenses ar covered by the Missionszentrale der Franziskaner in
Bonn, Germany. See http://www.pelangifoundation.org
Boxes 12 and 13 describe how international PLWHA networks are partnering with
faith-based organizations.
The forerunner to ANERELA+ was isolated church leaders speaking out about HIV
and AIDS. ANERELA+ is interfaith, pan-African network, open to religious leaders,
people living with or personally affected by HIV and friends of ANERELA+.
ANERELA+ held its first meeting in 2002 and aims to:
• support without judgement;
• live positively, healthily and openly; and
• fight stigma, denial, discrimination and inaction around HIV and AIDS
UNAIDS and the World Council of Churches (WCC) are assisting ANERELA+ in
identifying potential members in other African countries. As a result, in addition to
members in Kenya, Malawi, Mozambique, South Africa, Swaziland, Tanzania,
Uganda, Zimbabwe and Zambia, ANERELA+ has members in Angola, Democratic
Republic Congo (DRC), Ethiopia, Namibia, Nigeria, Rwanda and Togo. ANERELA+
currently has a membership of over 500 in the countries within which it is operating,
and has been challenged by various groups to expand to become a truly international
organization.
Within ANERELA+, a new model of responding to HIV has been developed, called
SAVE (Safer practices, Available medications, Voluntary counselling and testing, and
Empowerment through education). HIV and AIDS prevention will never be effective
without a care component and the SAVE model combines both prevention and care
46
components as well as providing messages to counter stigmatization.
For a more comprehensive explanation of SAVE, see box 10 “HIV Prevention and
Care: An Alternative Model” in 3.1 HIV Prevention – Sexual Transmission in World
Council of Churches, Working with People Living with HIV/AIDS Organizations:
Guidelines, 2005.
In the life of churches, ANERELA+ works towards breaking the silence surrounding
HIV and AIDS, including bringing the realization to churches that they have AIDS,
demonstrates positive living by example, assists in developing, modify and
implementing existing church policies, declarations and workplace policies, and runs
support groups.
• lobbying: for the development of sound policies that protect and care for
HIV+ people;
• linking: through international conferences to showcase the strengths and needs
of people with HIV, and to working with the scientific, medical, government,
and media sectors as well as with fellow civil society; and
• sharing: capacity-building to strengthen organizations of HIV+ people at the
local, national and regional levels to serve the interests of HIV+ people
effectively.
GNP+ has been organizing International Conferences for People Living with
HIV/AIDS since 1987. The Global Advocacy Agenda, drawn up by PLWHA at the
9th International Conference in Warsaw, August 1999, consists of:
• developing policy advocacy on access to care and treatment,
• ending HIV-related stigma and discrimination, and
• promoting the greater and more meaningful involvement of people living with
HIV/AIDS.
GNP+ has been active in the formation of the Global Fund to Fight AIDS,
Tuberculosis and Malaria, advocating for effective PLWHA participation in the
Country Coordinating Mechanisms and is also responsible for the Global Fund Board
delegation of Communities living with the three diseases.
GNP+ formed a partnership with the International Federation of the Red Cross and
Red Crescent Societies in 2001. During the 11th International Conference for People
Living with HIV/AIDS in Kampala, Uganda, in October 2003, ANERELA+ was
officially launched. ANERELA+ sees itself as a bridge between what are falsely
perceived as two different worlds – churches and PLWHA organizations. With
members belonging to both constituencies it hopes to bridge gaps in the relations
between churches and PLWHA.
47
While this partnership is in its infancy, the WCC is using the expertise of both
organizations to assist it in developing and promoting the Framework of Engagement:
HIV/AIDS workplace policy, fostering partnerships between churches and PLWHA
organizations, and advocating for a declaration on HIV and AIDS at the World
Council of Churches’ General Assembly in Porto Allegre, Brazil, 14–23 February
2006.
GNP+ and ANERELA+ are also working closely in the preparation of the 12th
International Conference for People Living with HIV/AIDS, Lima, Peru, 9–14
October, 2005 under the banner Living with HIV Partnership, and will in the coming
months sign a Memorandum of Understanding (MoU).
48
Box 13: World Young Women's Christian Association (YWCA) and the
International Community of Women Living with HIV and AIDS (ICW)
Partnering77
In the response to HIV/AIDS, the World YWCA strongly believes that partnerships
with other organizations working on the issue are critical. One of these organizations
is the International Community of Women Living with HIV and AIDS (ICW). The
World YWCA and ICW are sharing information, undertaking joint advocacy work,
exchanging and training personnel, developing resource materials, sharing space for
meetings and jointly applying for funding.
Since 2001, the World YWCA and ICW have shared information and resources that
speak to women. In the context of the UNAIDS Global Coalition of Women and
AIDS, the two organizations are together developing key advocacy messages on
women’s leadership in the area of HIV and AIDS. Training materials and resources
designed for women relating to stigma and discrimination are also being developed.
The World YWCA consults with ICW to ensure that the messages are sensitive and
non-discriminatory.
The World YWCA and ICW co-operate on workplace issues. In this regard, ICW
shared with the World YWCA workplace policies that include PLWHA and will be
training World YWCA staff on workplace behaviour towards staff and colleagues
living with HIV. In addition, a former YWCA intern from Zimbabwe is currently a
staff member of ICW and the two organizations plan to continue identifying young
women for staff exchange and volunteer roles as well as providing training
opportunities through ICW and World YWCA programmes.
ICW http://www.icw.org/tiki-view_articles.php
World YWCA http://www.worldywca.org/
77
Communication with Marie-Claude Julsaint, Programme Director for the Americas and the
Caribbean, World YWCA [email protected]
78
See “2.2. Looking Inside the PLWHA Movement” in World Council of Churches, Working with
People Living with HIV/AIDS Organizations: Guidelines, 2005, for a more detailed history of the
GIPA Principle.
49
our commitment and support to the development of the joint and co-
sponsored United Nations programme on HIV/AIDS, as the appropriate
framework to reinforce partnerships between all involved and give
guidance and world-wide leadership in the fight against HIV/AIDS. The
scope of each initiative should be further defined and developed in the
context of the joint and co-sponsored programme and other appropriate
fora:
1. support a greater involvement of people living with HIV/AIDS through
an initiative to strengthen the capacity and co-ordination of networks of
people living with HIV/AIDS and community-based organizations. By
ensuring their full involvement in our common response to the pandemic
at all -national, regional and global- levels, this initiative will, in particular
stimulate the creation of supportive political, legal and social
environments79.
As the WCC executive committee noted in 1987, "through their silence, many
churches share responsibility for the fear that has swept our world more quickly than
the virus itself'80. Sometimes churches have hampered the spread of accurate
information or created barriers to open discussion and understanding. Further,
churches may reinforce racist attitudes if they neglect issues around HIV and AIDS
because HIV infection occurs predominantly among certain ethnic or racial groups.
These groups may be unjustly stigmatized as the most likely carriers of the
infection.81
In some churches a ‘them and us’ paradigm still prevails. We the churches provide the
service; they, the PLWHA, receive them. However, the fact is that “they” are our
brothers and sisters in our parishes and congregations, our choirs and on our pulpits,
in our offices and youth clubs. Over the past two decades, churches have provided a
79
See UNAIDS, From principle to practice: greater involvement of people living with or affected by
HIV/AIDS (GIPA), Report (1999), for full text. www.unaids.org
80
World Council of Churches, Quoted in the Minutes of the 38th meeting of the WCC central
committee, Geneva, Switzerland, 1987. Appendix VI, "AIDS and the Church as a Healing
Community", p.135. http://www.wcc-coe.org
81
World Council of Churches Central Committee, Geneva, Switzerland 12-20 September 1996.
Document No. 6.2B. The Impact of HIV/AIDS and the Churches' Response. A statement adopted by
the WCC Central Committee on the basis of the WCC Consultative Group on AIDS Study Process,
September 1996. http://www.wcc-coe.org
82
World Council of Churches, Facing AIDS, The Challenge the Churches’ Response, A WCC Study
document, WCC Publications, Geneva, Switzerland, 1997, p. 4. http://www.wcc-coe.org
50
significant proportion of the care and support for PLWHA83. And as illustrated
throughout this document and in the accompanying document, World Council of
Churches, Working with People Living with HIV/AIDS Organizations: Guidelines,
2005, churches have begun a process of transformation. As the Declarations in box 1
“Breaking the Silence - Declarations by Churches on HIV/AIDS” in chapter two “The
response of churches to date” show many churches have broken their silence on HIV
and are beginning a process of reconciliation. This is a first step in churches
transforming themselves into HIV/AIDS competent ones84 becoming welcoming and
inclusive communities for PLWHA. Churches are also becoming involved in HIV
prevention efforts and continuing or scaling up their work on care.
Nevertheless, the situation is not perfect. Translating words into actions such as
involving PLWHA in the life of churches and faith-based organizations, decision-
making processes including programming is variable and, when present, can be
tokenistic. Yet the first steps have been taken. See “4.4 Tokenism” in World Council
of Churches, Working with People Living with HIV/AIDS Organizations: Guidelines,
2005, which outlines steps to prevent tokenism and the commitments made by
churches to involve PLWHA.
83
For example, at the present time, 26.7% of the centres dedicated to treating HIV/AIDS in the world
are Catholic centres. Pontifical Council for Health Pastoral Care, Message for the World Aids Day, 1
December 2004.
84
Ecumenical HIV/AIDS Initiative in Africa (EHAIA) works to help churches in Africa become
"AIDS-competent churches". http://www.wcc-coe.org/wcc/what/mission/ehaia-e.html An AIDS-
competent church is one:
• whose teaching and practice indicate clearly that stigma and discrimination against PLWHAs
is sin and against the will of God;
• which, along with its ecumenical partners, has a full understanding of the severity of the
HIV/AIDS pandemic in Africa;
• which reaches out and responds to collaborative efforts in the field of HIV/AIDS;
• which find its role in prevention of HIV/AIDS, taking into consideration pastoral, cultural and
gender issues; and
• which use its resources and structures to provide care, counselling and support for those
affected.
51
The WCC has drafted a working document which provides suggested text and clauses
for the development by churches of HIV workplace policies85. Box 18 “The Church of
Scotland – implementing a HIV workplace policy” in section 4.3 Confidentiality in
World Council of Churches, Working with People Living with HIV/AIDS
Organizations: Guidelines, 2005, provides an example of the difficulties that can be
encountered in trying to draft and implement a HIV workplace policy.
Also, the United Evangelical Mission (UEM) in its Anti HIV/Aids Programme Policy
outlines its responsibilities regarding personnel, scholarship holders, volunteers and
visitors in the following areas:86
• HIV/Aids information, education and counselling for staff and exchange – co-
workers;
• testing;
• post Exposure Prophylaxis (PEP); and
• care for UEM staff and exchange co-workers infected with and affected by
HIV/Aids.
Needless to say, churches commitments to break the silence on HIV and AIDS, and
efforts to challenge stigma and discrimination both within the church and in society
have and will assist in creating a supportive environment for PLWHA involvement in
the life of churches.
PLWHA have different needs and experiences depending on different factors such as
class (rich, middle or poor), gender (man or woman), age (child, young person, adult
or grandparent), sexual orientation (heterosexual, bisexual, men who have sex with
men (MSM), lesbian and transgender), race (black, brown, red, white or yellow),
ethnicity. HIV infection is an additional factor to such social categorization and/or
identification meaning that PLWHA have a plethora of different lived experiences
and needs. Churches and faith-based organizations need to be aware of these
differences and factor them into their responses, interventions and pastoral care to
ensure that some groups of PLWHA are not further marginalized, ignored or
discriminated against, and that all groups of PLWHA are involved in the response to
HIV.
The AIDS epidemic is closely related to social relationships; it has not responded to
interventions that have failed to make gender considerations central to their activities.
Since most prevention activities have focused (and continue to focus) on some version
of ABC, the failure to mainstream gender has rendered most of these projects less
than effective. Churches and faith-based organizations need to listen to PLWHA tell
85
World Council of Churches, Towards a Policy on HIV/AIDS in the Workplace, Working Document,
2005.
86
World Council of Churches, Working with People Living with HIV/AIDS Organizations: Guidelines,
2005. See specifically “5. UEM as an employing/sending/scholarship-organization: Personnel,
scholarship holders and volunteers and visitors” in United Evangelical Mission, Anti HIV/Aids
Programme Policy, Adopted by the UEM General Assembly in Manila, October 2004.
52
their stories in order to grasp the centrality of gender and the importance of
mainstreaming it in projects and programmes. All interventions need to systematically
mainstream gender into all stages i.e., planning, implementation, monitoring and
evaluation of all projects and programmes.
It is acknowledged worldwide that the impact and consequences for both individuals
and communities of HIV-related stigma are greater than from HIV itself. However, to
date, most interventions have not systematically mainstreamed stigma eradication into
all stages i.e. planning, implementation, monitoring and evaluation of all projects and
programmes. Seeking partnership with PLWHA in all interventions is one such way
of breaking the power the stigma to frustrate many well intentioned projects and
programmes.
Openness about one’s own HIV status to family, community or in the workplace is
more difficult in some countries or cultures than others. In some cases, precautions
are needed to protect people who disclose their positive HIV-status, since this can
create serious repercussions for them in the workplace and within their families and
communities. Stigma and discrimination manifest themselves in different ways,
ranging from almost invisible types of social behaviour to physical violence.
Similarly, PLWHA’s fears may range from purely personal (and not always accurate)
perceptions of discrimination all the way to objectively based fears of rejection and
violence.87
Lack of skills can create a variety of obstacles. Firstly, not everybody is born with the
natural capacity to speak about issues such as sexuality and health – it is a skill that
most often has to be learned. Secondly, over time, facing a hostile or
uncomprehending environment can lead to “burnout” unless a person is either very
strong to start with or has been through an empowerment process. For both these
reasons, communication and personal empowerment counselling should be part of a
generic training package for PLWHA. As well, such training must be reinforced by
ongoing support for PLWHA if their effectiveness is to remain high and their
motivation strong.
87
See generally, section 4.3 Confidentiality in World Council of Churches, Working with People Living
with HIV/AIDS Organizations: Guidelines, 2005,
88
See “4.4 Tokenism” and “4.7 Capacity Building” in World Council of Churches, Working with
People Living with HIV/AIDS Organizations: Guidelines, 2005.
53
abilities. At the same time, those responsible for hiring should recognize the value of
the PLWHA’s experience-based expertise and include this in their decision-making.
In this context, additional technical training may be necessary.
Questions of sustainability
It has to be recognized that HIV-positive people may fall ill because of their HIV
infection and that some people will die. This poses various challenges for churches
ranging from the provision of health care to reasonable accommodation to the
sustainability of programmes and partnerships. In high prevalence countries, churches
need to incorporate HIV-related illness and death into all present and future planning
and programming for staff, clergy and volunteers requirements, as many will die and
churches need to be prepared for this eventuality.
89
See “4.4 Tokenism” in World Council of Churches, Working with People Living with HIV/AIDS
Organizations: Guidelines, 2005.
54
THINK of a territorial headquarters, where every week at least one
employee or officer requests time off to attend a funeral – often meaning
several days’ absence. You try to exercise some control over this but what
can you do when culture demands that relatives are present? Not to be
there would be a great offence to the family. Territorial leaders are not
immune themselves from these demands, putting extra strain on them as
they make their own visits to family funerals. With the extended family
system in Africa, such demands are many.
Obviously, the risk of falling sick or dying exists for all employees or members of
churches, whatever their HIV status. However, assuming an absence of antiretroviral
therapy, the odds are greater (and certainly more highly publicized) for PLWHA than
for many other groups of people. The churches response to HIV and AIDS is
inextricably linked to providing or obtaining access to ARV therapy.
In some countries, cultural practices surrounding death result in expensive and week-
long funerals, creating both an economic burden on the family as well as loss of
productivity for the community and society. These issues should not be avoided, since
they are real. They should be discussed in order to anticipate their impact on
sustainability, including the response of churches. Churches also have a role in
questioning and changing such practices, particularly in societies reeling from the
impact of HIV and ongoing deaths in communities. Resources, where they still exist,
need to be maintained for the living such as spouses and orphaned children, rather
than being dissipated on the dead.
The Lutheran World Federation in its Action Plan under the section, The church is
“converted”, stated:
Those who are HIV-positive or ill with AIDS have gifts to offer and
wisdom to share with their community, especially the wisdom of what it
means to live with HIV and AIDS. They have the knowledge,
competence, interest and ability to give prophetic voice to their needs and
hopes, their dreams and fears, and to motivate the church to respond. As
such persons share their stories and their lives, and as the church dares to
listen, the church can be moved to repent of how it has sinned against
those who are affected by HIV and AIDS, due to fear, lack of information,
stigmatization, or a failure to act. Such persons have been isolated or
90
Sutherland, Commissioner Margaret. The Salvation Army International Headquarters, AFRICA AND
HIV/AIDS. From a paper presented by Commissioner Margaret Sutherland, International Secretary for
Africa. September 2003.
55
deliberately excluded from the community. This is most disturbing when
this exclusion has been legitimized with theological or moral reasons by
church leaders.
By building partnerships, a church can fulfil its mission and ministry of serving the
marginalised and suffering (Matthew 25:31–46), widen and sustain the impact of its
work and gain the wide variety of resources that it needs to carry out its work well.
With regards to HIV and AIDS, different people, groups and organizations can offer
many different kinds of valuable support, including:
91
1 John 4:7-21 underlines, “those who say I love God and hate their sisters and brothers are liars, for
unless you love your sisters and brothers whom you see, you cannot love God whom you have never
seen.”
92
The Lutheran World Federation, Compassion, Conversion, Care: Responding as churches to the
HIV/AIDS pandemic. An Action Plan of the Lutheran World Federation, 18 January 2002
56
Gaining access to the above resources can help a church and the community, in their
response to HIV and AIDS, to create:
This is what building partnerships is all about. It means working with others to make
the most of strengths and opportunities, as well as to address weaknesses and barriers,
in responding to HIV and AIDS.
Reflection
Refer to their list of potential partners and name the kinds of resources that each
partner could bring to the local HIV/AIDS response.
Reflect on the kind of resources PLWHA can bring to your church’s response to HIV.
93
All Africa Conference of Churches (AACC), The Covenant Document on HIV/AIDS, All Africa
Conference of Churches (AACC) 8th General Assembly, Yaoundé, Cameroon, 22-27 November 2003.
94
Adapted from “Solidarity and Sustainability Workshop”, COMUNIDEC and the Alliance, Ecuador,
May 1997. http://www.aidsalliance.org/eng/
57
Example: a church working with young people wants to prevent the spread of HIV
among young people in its town. Through one of its programmes, the church works
directly with young people in school, so that they have the help and education that
they need to reduce their risk of HIV infection. Through one of its partnerships, the
church works with key people in the Ministry of Education, so that they might support
sexual health education in schools. The church’s partnership is helping to improve the
overall environment in which other churches and NGOs work and in which young
people protect themselves from HIV.
Reflection
Look at one of your church’s existing programmes, and discuss what partnerships
might help their work in this area.
• Church’s Aim: e.g., to prevent the spread of HIV among young people in our
town.
• Programmes/Project: e.g., partner with young people in school. Strategy,
ongoing HIV education.
• Partnerships: e.g., partner with Ministry of Education. Strategy, monthly
meetings with key ministry staff.
The sensitivities and complexities of HIV and AIDS can pose a special challenge to
churches as they build partnerships. For example, a potential partner may be afraid of
AIDS, or be reluctant to be associated with a church which has difficulties discussing
issues of human sexuality and sexual health. This can make it difficult to engage
partners and to get them involved.
• Personal attitudes and beliefs. Partners may not feel able to talk openly about
HIV and AIDS.
• Institutional practices, policies, or beliefs. Partners will uphold institutional
policies – unless they are convinced otherwise.
• The visibility of HIV and AIDS in a community. If it is not visible, partners
may not believe that it exists. If it is visible, they may want to cover it up.
• Maintaining confidentiality. Partners may want to know or tell others about
the HIV status of specific individuals.
• Gender, class, age, race, ethnicity, sexual identity, and context, all of which
expose PLWHA to different experiences of stigma.
• Language and jargon. Partners may not be familiar with specialised words
used to describe HIV and AIDS work.
95
Adapted from “NGO Skills Building Session”, the Alliance, World AIDS Conference, Vancouver,
July 1996. http://www.aidsalliance.org/eng/
58
• Scandals and scare stories. Partners may not believe accurate, scientific
information about HIV and AIDS.
• Competing priorities. Partners might be more interested in addressing other
social issues, or responding to a recent crisis.
• Subject fatigue. Partners might not want to hear any more about HIV and
AIDS.
Exercise
Discuss with other people which of the above HIV- and AIDS-related issues they
have encountered in working with various partners and any strategies developed for
addressing them.
Scripture
Read Nehemeiah 1:11–18. Discuss a number of strategies that were employed by
Nehemiah in his project of rebuilding the walls of Jerusalem to avoid some of the
above tabulated complications that can complicate partnership.
In order to build a strong and effective partnership, a church needs to get to know and
understand its partner.
A first step in making a “partner analysis” is to think about how a church and its
partners view each other. Partners may have negative or positive views about
churches, or they may not know what churches do. Also, partners from different
sectors might be more or less inclined to talk about HIV and AIDS or sexuality, or
they might have set opinions on these topics. In exploring how a church and its
partners view each other, both partners can find ways to reduce misunderstanding, to
accept differences, or to find a basis for mutual respect.
Exercise
Undertake a session of exercise between your church and the partner. Ask each to list
their views of the other.
• Why do our partners view the church as they do? Why does the church view
its partners the way it does?
• Are the church’s and the partner’s views of each other accurate, or are they
based upon emotion, stereotypes or lack of information?
• How can each partner address misconceptions?
Scripture
• Read Matthew 25:14–30
• Which of these servants tend to represent the churches’ interaction with
partners?
59
• Which of the servants might represent a more successful relationship?
The views that others have of a church can also make it difficult to build partnerships.
Partners may not know about the church or understand a church’s positive role. For
examples:
Exercise
1. Ask participants to discuss the specific issues that they have encountered while
building partnerships, and to explain how they have addressed them.
2. Ask participants to describe what a strong and effective response to HIV and AIDS
in their area would look like – including what type of people and organizations would
be involved.
96
Adapted from “NGO Skills Building Session”, the Alliance, World AIDS Conference, Vancouver,
July 1996. http://www.aidsalliance.org/eng/
60
3.11 What does building partnerships mean in practice?
HIV is challenging churches in many ways but before describing what partnering
means in practice, it is helpful to be clear on the role of churches and faith-based
organizations. Michael Czerny S.J assessed the situation as follows:
When we … declare, “the Church has done much … and much more is
needed,” we can easily think they mean a more sophisticated response on
a larger scale. But as Cardinal Turkson said … the Church is the only
institution that meets hundreds of people each week on a very personal
level and at the same time acts publicly and socially. Who else can do
both so regularly? In its AIDS ministry, the Church faces the biggest
combined social, cultural, economic, medical and political issue and, at
the same time, she deals with individual persons one by one, those
infected by HIV/AIDS and their family much affected by it. So to say
“much more is needed” does not mean “bigger and more complex”; it
means multiplying the small-scale, close-to-the-ground, highly personal
approaches and extending them to more and more people infected and
affected. The response of the Church to HIV/AIDS needs to be as
extensive, broad and deep as the mission of the Church herself…
So in a way, working on HIV requires more of the same. Partnering with PLWHA
organizations and individuals means recognizing and integrating the lived experience
and expertise of PLWHA, often church members, into the on going work of churches
is one aspect of this. These expertise and experiences will differ between each
PLWHA as PLWHA are a very varied group of people, whose lived experience is
determined by their class, gender, race, age sexual orientation and economic context.
In integrating the lived experience and expertise of PLWHA, churches are adding
another dimension to their response to HIV – one that is essential to ensure that the
services provided are those that are in reality needed. Creating partnerships with
PLWHA means involving them in planning and carrying out relevant programmes
and services. It means talking to individuals and groups of PLWHA to determine their
needs and their potential to provide inspiration or strength to others in similar
situations. Box 14 outlines what partnerships can look like at different levels of
church work.
97
Czerny Michael S.J., Response to Rev. Robert J. Vitillo’s “Pastoral and Theological Challenges of
HIV and AIDS”. National Seminar for Priests in Ghana, Accra, Ghana, 16-17 June 2004.
61
Box 14: Partnerships in practice in all the endeavours of churches
Church Leadership
Theological Training
62
ethical positions and religious policy regarding issues pertaining to the
effective prevention of HIV and the relief of suffering. Include people with
HIV and AIDS theological debates as a way of affirming and enhancing their
dignity.
• Develop curricula with input from the lived experience of PLWHA that focus
on a theology of compassion, support and healing related to HIV and AIDS
and which discusses judgement and condemnation.
• Review spiritual writings, local sayings, beliefs and traditions that support
HIV prevention and AIDS care. Look at moral prescripts, parables and
sermons and find ways to interpret the messages contained there in light of
HIV and AIDS. Re-examine what is written about ministering and pastoral
roles and responsibilities to care for the sick, the elderly, orphans and widows.
Find ways to help people renew their duty to alleviate suffering, to affirm
personal faith and to lead a life that fully respects the dignity and rights of
others.
63
input from PLWHA.
• HIV-positive parents might need or want to prepare wills, designate someone
to care for their children after their death, make peace with themselves and
others, and do other things to protect those they love. HIV-positive parents
may also need counselling and support to help them talk to their children
about their illness. Churches in collaboration with PLWHA organizations are able
to broach these subjects, provide the technical expertise to ensure that wishes are
respected and to accompanying the person through these events. Children need
help and spiritual guidance to understand and accept the death of parents.
• Through teaching, preaching, and exercising pastoral care religious leaders
can help people with HIV and AIDS live longer, more meaningful and
dignified lives.
• When people are dying, religious leaders can help prepare people to meet
death with dignity and serenity.
Women’s groups
• Can be used for HIV prevention through providing information and discussing
issues arising from ABC prevention.
• Are a useful forum for providing education on antiretroviral therapy and
discussion of issues around drug adherence, side effects and minimizing them,
and drug resistance.
• Provide an opportunity for an HIV-positive woman to meet others in the same
situation, and enables women to share their experiences, fears and
uncertainties in a safe, supportive and non-judgemental environment. Such
groups can also supports women with issues such as discrimination, sexual
health awareness, sexual violence, relationships, parenting and future options.
Care Services
• Ensure that religious-run health and social services are welcoming to
PLWHA, young people and sensitive to the needs of young women. Such
services include pre-marital counselling, voluntary and confidential
counselling and HIV testing, reproductive health care, drug and alcohol abuse
64
prevention, HIV treatment, and stress and grief counselling. Get feedback
from PLWHA on the acceptability of the services and whether they encounter
discrimination in their provision.
• Hygiene in medical settings is important; in relation to HIV the highest
standards are essential because the impaired immune system of HIV-positive
• people renders them especially vulnerable to infection. Ensure that standards
are maintained in religious-run facilities.
• Involve PLWHA in antiretroviral therapy preparedness training for medical
staff.
• Encourage health facilities to provide appropriate antiretroviral treatment
during and after childbirth to reduce HIV transmission to infants.
• Support or organize health, counselling and social services that are ‘friendly’
to women and that guide and support them in their decisions about pregnancy.
If pregnant, women need services that offer safe deliveries and, if needed,
counselling and treatment to reduce the risk of HIV transmission to infants.
• Strengthen home- and community-based care for PLWHA. Women and girls
usually do most of the caring for HIV-positive family members and are in
need of emotional support. Encourage men to take on involvement in
community care.
Also see UNAIDS, UNICEF and World Conference of Religions for Peace. What
religious leaders can do about HIV/AIDS: action for children and young people
(2003).
Building a partnership requires finding partners who will not compromise the
teachings of your church or faith-based organization. For faith-based responses this is
particularly important as faith systems underpin the rationale for their existence. A
partnership also requires resources for projects and programmes, which are in line
with the precepts of the partners. And in building partnerships with PLWHA it is
important not to be tokenistic and to assist in building the capacity of the
65
organization. Boxes 15 and 16 provide information on successful faith-based
partnership with PLWHA organizations.
It was on the basis of such dedication and sacrifice that BOCAIP earned the respect of
donors. In 1999, the first major donor, Bristol Myers Squibb, through its "Secure the
Future" foundation made a commitment to support the work of BOCAIP for three
years. This same foundation now funds some of the work in the field of orphan care
undertaken by BOCAIP centres.
98
Thiessen, H.R., Providing hope amidst despair - the example of BOCAIP, EHAIA News No. 3 5.
http://www.wcc-coe.org/wcc/what/mission/ehaia-news-e.htm
66
centres situated all over the country, and the government is urging BOCAIP to open
more centres.
In NCA’s Global Strategic Plan for 2005–2009, it is a clear policy guideline that
GIPA is to be prioritized in programme and policy development, implementation and
evaluation. This Strategic Plan is a direct result of the experiences and learning
processes that the organization has undergone in cooperation with networks and
organizations for PLWHA. Support to and cooperation with PLWHA networks and
organizations is another priority. As an example, ANERELA+ has been identified as a
resource partner, as NCA has already been engaged in very fruitful partnerships with
both national and regional branches of ANERELA+.
NCA’s Global Strategic Plan for 2005–2009, it is a clear policy guideline that GIPA
is to be prioritized in programme and policy development, implementation and
evaluation. This Strategic Plan is a direct result of the experiences and learning
processes we have undergone in cooperation with networks and organizations for
PLWHA. Support to and cooperation with PLWHA networks and organizations is
another priority. As an example, ANERELA+ will be a resource partner. NCA has
already been engaged in very fruitful partnerships with both national and regional
branches of ANERELA+.
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The Pan African Christian HIV/AIDS Network (PACANet) is a coordinated Christian response to
the HIV/ AIDS pandemic across the African Continent. PACANet exists to link Churches, Christian
organizations, and Christian Networks to enhance their HIV/AIDS responses by sharing resources,
ideas, skills, experiences, and stimulating strategic partnerships.
100
Communication with Anne-Marie Helland, Special Advisor, Department for Advocacy and
International Development Policy, Norwegian Church Aid. [email protected]
67
NCA is also working in a close partnership with the Norwegian Association Against
AIDS (Pluss-LMA). This partnership is especially related to advocacy and policy
debate in the Norwegian context, in addition to general information exchange and
networking.
Discuss
• Has your church’s leadership been part of the process of forming a
declaration?
• Who holds the leadership responsible for implementing the declaration?
• Has the church leadership formulated a strategic plan/plan of action on HIV?
Is it operational?
• What would a strong and effective response to HIV and AIDS in your parish
look like?
• Are there partnerships with local PLWHA organizations?
• Are there areas where this partnership could be expanded?
• Do you receive feedback from PLWHA about services provided and whether
the partnership is decreasing discrimination?
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Chapter 4
Troubleshooting in partnerships
This chapter highlights some issues which need to be taken into account by both
parties to a partnership so that it functions harmoniously, smoothly and is sustainable.
The issues highlighted include assessing the reasons for entering a partnership,
sustaining a partnership, sensitive language, formation and use of messages, and how
to respond to conflict and crisis. The information is designed to minimize potential
conflict by promoting awareness of what can go wrong before problems arise,
creating an environment of harmony within a partnership.
Even if it is clear to a church, which its priority partners should be, it may still have
some reservations about working with specific individuals or sectors. In reality, there
are benefits and constraints to most relationships.
Understanding the reasons for and against forming a partnership is vital in helping a
church decide what is best for the organization, and what it can realistically hope to
achieve with different partners. It can help a church to enter a partnership with “open
eyes” – just as aware of disadvantages as advantages.
For Against
Brings people together Is very conservative
Has political influence on theory, not Has limited knowledge about HIV and
action AIDS
101
Adapted from “Solidarity and Sustainability Workshop”, COMUNIDEC and the Alliance, Ecuador,
May 1997. http://www.aidsalliance.org/eng/
69
Has economic resources Can have a paternalistic attitude
Exercise
Consider the benefits and constraints of working with a partner
• Select a partner that your church wants to work with.
• Discuss and list the positive and negative experiences – or pros and cons – that
working with this partner can bring.
• Discuss the balance between pros and cons, and what your church can do to
make the most of the pros and to cope with the cons.
• What is the best and the worst thing about the partner?
• How might working with this partner affect the church’s relationships with
other individuals and organizations?
• How might working with this partner affect the church’s programmes and
relationships with the community?
• Despite the constraints, does the church want to continue to build this
relationship?
During relationships with different partners, almost all churches experience times
when the relationship goes well, and times when it does not. Mapping out a
partnership’s ups and downs – or high points and low points – can help to identify
strengths and weaknesses in a relationship. This can be particularly useful if a church
is experiencing a difficult period in a partnership – for example if there is a crisis, or if
a church is unsure whether to continue to invest time and energy with a partner. This
activity can also help a church monitor its partnerships – to see how the partnership
has progressed from a starting point, and to see what lessons have been learned along
the way.
Exercise
70
• When and how have the church and its partner worked well together or
worked against each other?
• What does the pattern of highs and lows show about the relationship? Are
there more highs than lows? Were there extreme highs and extreme lows, or a
reasonably straight path?
• Were the ups and downs mainly due to external factors, or internal reasons
within the partnership?
• Based on the history between the church and the partner, is it likely to reach its
future goals for the partnership?
Language is the most important method for communicating with others. The language
that people use tells others who they are, what they do, and what they care about.
Language has power – to make people feel good or bad, to bring people together or
keep them apart. People involved in HIV and AIDS speak many languages, and some
use terminology, or special groups of words, to communicate with each other. While
this can deepen understanding about specific aspects of HIV and AIDS, it can also
keep other people at a distance. HIV and AIDS affect all sectors of society, and so it
is important that different groups find a common language, as a basis for joint action.
102
Adapted from “Documentation Workshop”, Alliance Lanka and the Alliance, Sri Lanka, July 1997.
http://www.aidsalliance.org/eng/
71
Happy to use Not sure Not happy to use
Exercise
What might be the consequences of using language that a partner finds inappropriate,
or does not understand?
Does the church need to change some of the words that it uses in its daily
communication? Why?
Are there simpler alternatives to some of the jargon?
Scripture
Read 1 Corinthians 9:19–25
In the light of the above scripture, how should churches present themselves to their
partners?
Do you think churches have the obligation to develop and use diplomatic/acceptable
language to their partners?
72
Powerful messages are:
• short;
• simple;
• positive;
• accurate;
• consistent; and
• action-orientated
2. (Message about what ANERELA+ does and stands for)... ANERELA+ is the
only self-help group for religious leaders living with or personally affected by
HIV and AIDS in Africa. We are part of the world-wide effort to prevent the
spread of HIV and to care for people who are affected.
3. (Message about how other people can work with the ANERELA+)... we are
not the problem, but part of the solution. Everyone has a role to play in
supporting people living with HIV/AIDS in the church and in the community.
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Annex 1
2001
All Africa Conference of Churches, The Dakar Declaration. Dakar, Senegal, 23–25
April 2001.
Southern African Bishops Conference. A Message of Hope to the People of God from
the Catholic Bishops of South Africa, Botswana, and Swaziland. Pretoria, South
Africa, 30 July 2001.
Anglican Communion across Africa. All Africa Anglican AIDS Planning Framework
"Our Vision, Our Hope" The First Step. Johannesburg, South Africa, 22 August 2001.
2002
74
World Council of Churches (WCC) and Christian Conference of Asia (CCA). Report
of the WCC-CCA Consultation on ‘An Ecumenical Agenda to combat HIV/AIDS in
South Asia’. Colombo, Sri Lanka, 24–26 July 2002.
Council of Anglican Provinces in Africa (CAPA). Statement from CAPA AIDS Board
Meeting. Nairobi, Kenya, 19–22 August 2002.
2003
Primates of the Anglican Communion. Pastoral letter from the Primates of the
Anglican Communion. 27 May 2003.
Council for World Mission. Assembly Statement. Ayr, Scotland, 15–25 June 2003
Lutheran World Federation, Adopted version of message from the Tenth Assembly,
Winnipeg, Canada, 21–31 July 2003.
Norwegian Church Aid. HIV/AIDS, A policy statement from Norwegian Church Aid.
Approved by NCA Board 29 September 2003.
East - Central Africa Division of Seventh-day Adventist Church. East - Central Africa
Division (ECD) of Seventh-day Adventist (SDA) Church Regional Workshop on
HIV/AIDS. The Nairobi Declaration. Nairobi Kenya, 10–13 November 2003.
75
Catholic Bishops of Myanmar. Pastoral Letter on HIV/AIDS and the Response of the
Church. December 2003
Indian Catholic Bishops. Pastoral Letter from Indian Bishops for World AIDS Day
2003: The challenge to be his Light today.1 December 2003.
Lutheran World Federation and the United Evangelical Mission, "Covenant of life"-
Statement of Commitment of the Asian Church Leadership Consultation on
HIV/AIDS, Batam Island, Indonesia, 1–4 December 2003.
2004
Regional Meeting facilitated by the Latin American Council of Churches (CLAI) and
supported by the World Council of Churches (WCC), The Church and HIV/AIDS in
Latin America and the Caribbean, Panama City, Panama, 27 January–1 February
2004.
The United Methodist Church. Global AIDS Fund Resolution – Adopted by 2004
General Conference. Pennsylvania, United States, 27 April–7 May 2004
The United Methodist Church. Drugs and AIDS Resolution – Adopted by 2004
General Conference. Pennsylvania, United States, 27 April–7 May 2004
Asian Muslim Action Network, Asian Resource Foundation and Thai Muslim
Network. International Pre-conference Muslim Workshop on HIV/AIDS. In the name
of Allah, the Beneficent, the Merciful. Bangkok, Thailand, 9 July 2004.
76
United Evangelical Mission, Anti HIV/Aids Programme Policy, Adopted by the UEM
General Assembly in Manila, October 2004.
The Cairo Declaration of Religious Leaders in the Arab States in Response to the
HIV/AIDS Epidemic. Cairo, Egypt, 11–13 December 2004.
77
Annex 2
Preamble
The Lord God is the creator of heaven and earth; the creator of all life forms in the
earth community. He created all life and everything good. In this HIV/AIDS era, he
sees the misery of his people, who are infected and affected by this disease; He has
heard their cry on the account of this epidemic. He knows their sufferings and he has
come down to deliver them from HIV/AIDS. So he calls to send us to the infected and
affected, to bring his people, his creation, out of the HIV/AIDS epidemic. Now
therefore this Assembly recognizes God's call to us and hence makes this covenant
with God today:
We shall remember, proclaim and act on the fact that, the Lord our God created all
people and all life and created life very good (Genesis 1–2) We shall, therefore,
seriously and effectively undertake HIV/AIDS prevention for all people - Christians
and non-Christiana. married and single, young and old, women and men, poor and
rich, black, white, yellow, all people everywhere-, for this disease destroys life and its
goodness, thus violating God's creation and will.
We shall remember, proclaim and act on the fact that love is from God and everyone
who loves is born of God and knows God. Those who say ‘I love God,' and hate their
sisters and brothers are liars, for unless you love your sisters and brothers whom you
see, you cannot love God whom you have never seen (I John 4:7–21). We shall,
therefore, do all that is necessary and within our power to encourage both men and
women to love, care, support and heal all those who are infected and affected by
HIV/AIDS in our communities, countries and continent.
We shall remember, proclaim and act on the fact that the earth and everything in it
belongs to the Lord and that He has given it over to all human beings for
custodianship (Psalms 24:1 and Genesis 1:29). We shall therefore, openly and
persistently undertake prophetic and advocacy role for all the infected who are denied
access to affordable HIV/AIDS drugs until antiretrovirals are available to all who
need them.
103
Adopted by the 8th AACC General Assembly, Yaunde, 2003.
78
Covenant 4: Compassion, HIV/AIDS Stigma & Discrimination
We shall remember, proclaim and act on the fact that the Lord our God, is a
compassionate God, who calls upon us to be compassionate, to suffer with those who
suffer, to enter their places and hearts of pain and to seek lasting change of their
suffering (Luke 6:36; Matthew 25:31–46). We shall therefore, have zero tolerance for
HIV/AIDS stigma and discrimination and do all that is necessary to eliminate the
isolation, rejection, fear and oppression of the infected and affected in our
communities. We shall declare HIV/AIDS stigma and discrimination an unacceptable
sin before God and all believers and in all our communities.
We shall remember, proclaim and act on the fact that the Lord our God, who created
all the resources of the earth, blessed both women and men and gave them the
resources of the earth for their sustenance (Genesis.1:28-29). We shall, therefore,
work to empower all the poor and denounce all the cultural, national and international
structures, laws and policies that have condemned billions to poverty thus denying
them their God given rights and, in the HIV/AIDS era, exposing them to infection and
denying them quality care and treatment.
We shall remember, proclaim and act on the fact that the Lord our God, created
humankind in his image. In his image, he created them male and female, he blessed
them both and gave both of them leadership and resources in the earth; he made them
one in Christ (Genesis 1:27–29; Galatians 3:28–29). We shall, therefore, denounce
gender inequalities that lead boys and men to risky behaviour, domination and
violence; that deny girls and women leadership, decision making powers and property
ownership thus exposing them to violence, witchcraft accusation, widow
dispossession, survival sex – fuelling HIV/AIDS infection and lack of quality care
and treatment.
We shall remember, proclaim and act on the fact that, Lord our God welcomes
children. He has given his kingdom to them and he is the father of all orphans (Mark
9:33–37; 10:13–16; Psalms 68:5 and Psalms 146:9). We shall, therefore, work to
empower and protect all children and denounce all the national and international
structures, cultures, policies, laws and practices that expose children to sexual abuse
and exploitation, HIV/AIDS stigma and discrimination, dispossession and poverty
thus exposing them to HIV/AIDS infection and lack of quality care.
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We shall remember, proclaim and act on the fact that we are one body of Christ and if
one member suffers, we all suffer together with it; that the Lord our God identifies
with the suffering and marginalized and heals the sick (1 Corinthians 14:26; Matthew
25:31–46). We shall, therefore, become a community of compassion and healing, a
safe place for all PLWHA to live openly and productively with their status.
We shall remember, proclaim and act on the fact that the Lord our God, created
human sexuality and created it good (Genesis 2:18–25). We shall, therefore, test for
infection, denounce sexual violence, abstain before marriage, be faithful in marriage
and practice protected sex to avoid HIV/AIDS infection and plunder on life, for all
life is sacred and prevention should be seriously pursued to protect life.
We shall remember, proclaim and act on the fact that the Lord our God, sees, hears,
knows the suffering of people and comes down to liberate them (Exodus 3:1–12;
Luke 4:16–22). We shall, therefore, declare the jubilee and we shall proclaim liberty
throughout the land and to all its inhabitants (Leviticus 25:10), for unless and until
justice is served to all people in the world, until justice rolls down like waters and
righteousness like an ever-flowing stream, HIV/AIDS cannot be uprooted.
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Annex 3
Churches have a valuable role in informing members about HIV. But at times,
churches have also used terms which can be misleading about the virus, or harmful to
people who are living with HIV or AIDS. The appropriate use of language respects
the dignity and rights of all concerned, avoids contributing to the stigmatization and
rejection of PLWHA and assists in creating the social changes required to overcome
the epidemic.
• Language should be inclusive and not create and reinforce an “us and them”
mentality or approach. Care should be taken with the use of pronouns such as
“we”, “they”, “you”, “them”, “their” etc.
• Language should be value neutral, gender sensitive and should be empowering
rather than disempowering. Terms and images such as "promiscuous", "drug
abuse" and all derogatory terms alienate rather than create the trust and respect
required.
• HIV/AIDS prevention messages should show that HIV and AIDS affect all
people – all ages, cultures, races, genders and sexual orientations.
• Images of PLWHA “at death’s door” and images of PLWHA as unable to live
fulfilling lives because of their HIV-positive status should be avoided.
• Describing HIV and AIDS as a scourge or plague should also be avoided; HIV
is simply an infection which has reached epidemic proportions
• It is better if vocabulary is drawn from the vocabulary of peace and human
development, rather than from the vocabulary of war and condemnation. For
example, “HIV/AIDS response” is better than the “fight against HIV/AIDS”.
• “How did you become HIV infected?” is a question that should not be asked.
Of far greater importance is “How are you living with HIV?”
1. Use: HIV infection, HIV-positive, HIV/AIDS, HIV and AIDS, HIV or AIDS
81
There is no such thing as the AIDS virus. There is only HIV (Human
Immunodeficiency Virus) - the virus that can cause AIDS. The term "HIV virus"
actually means Human Immunodeficiency Virus virus, which is not correct.
2. Use: Person Living with HIV or Person Living with HIV/AIDS or People
Living with HIV/AIDS (PLWHA)
82
is high-risk behaviours such as unsafe sex or unsafe injecting practices that can
transmit HIV, not being a member of particular group.
4. Use: for your country, i.e. Sri Lanka or Jamaica, use: Sri Lankan
population/Jamaican population, HIV-negative people, all Sri Lankans/all
Jamaicans.
6. Use: sex worker, which reflects the employment aspect of sex work.
7. Use: Person who injects drugs, people who inject drugs, injecting drug users
(IDUs). These days the most commonly used form is injecting drug users (IDUs).
8. Use: Men who have sex with men (MSM), gay and homosexual
Men who have sex with men (MSM) are not a group of people, but rather a social
phenomenon. Many MSM do not see themselves as homosexual and many are also
married or have sex with women. In some regions, there are high levels of bisexual
behaviours among men.
In most parts of the world, there are groups of “self-identified homosexual” who use
various terms to identify themselves. Such terminology is found in most, if not all,
cultures. Some terms denote effeminate men; while others denote more masculine
men. Those men in many places form a sub-culture. It is important to bear in mind
that all MSM do not necessary feel that they belong to this subculture, the fact that
they have sex with another man is, in many cases, just something they do, something
that just happens.
83
Even in these places where there is a visibility and certain openness of MSM, there
are many other men, possibly a majority of the total, who do not self-identify as gay
or bisexual, because of stigmatization or fear of discrimination or because of a lack of
role models, among other reasons. However, self-identification is not essential for
recognition that same-sex behaviour exists.
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Annex 4
Glossary
AIDS-competent church:
• whose teaching and practice indicate clearly that stigma and discrimination
against PLWHAs is sin and against the will of God;
• which, along with its ecumenical partners, has a full understanding of the
severity of the HIV/AIDS pandemic in Africa;
• which reaches out and responds to collaborative efforts in the field of
HIV/AIDS;
• which find its role in prevention of HIV/AIDS, taking into consideration
pastoral, cultural and gender issues; and
• which use its resources and structures to provide care, counselling and support
for those affected.
CD8 (T8) cells are white blood cells with the CD8 protein on their surface. These
white blood cells kill some cancer cells and cells infected by intracellular pathogens
(some bacteria, viruses, and mycoplasma). Also called cytotoxic T cells, T8 cells,
cytotoxic T lymphocytes.
85
Condoms: used consistently and correctly male latex condoms provide a high level of
protection against HIV infection and also stop the transmission of other sexually
transmitted infections. Male condoms are usually made out of latex, they should be
stored carefully avoiding prolonged exposure to heat, and should be used with a
water-based lubricant. A female condom is available, which is used by a woman and
fits inside the vagina.
Human Immunodeficiency Virus (HIV): the virus that causes AIDS or Acquired
Immunodeficiency Syndrome. HIV attacks the body’s immune system – the system
that fights against infections.
HIV-negative indicates that there is no evidence of infection with HIV (e.g. absence
of antibodies against HIV) in a blood or tissue test. Note that in the period between
infection and antibodies being detectable (the window period, generally up to six
months), a HIV test will produce a negative result – a false negative.
HIV-positive indicates infection with HIV (e.g., presence of antibodies against HIV)
on a test of blood or tissue. A test may occasionally show false positive results.
Today, approximately 40% of the world's population, mostly those people living in
the world's poorest countries, is at risk of malaria. Malaria causes more than 300
million acute illnesses and at least one million deaths annually. Of deaths due to
malaria 90% occur in sub-Saharan Africa mostly among young children. Malaria,
together with HIV and AIDS and TB, is one of the major public health challenges
undermining development in the poorest countries in the world.
Mutual Masturbation: involves each partner masturbating the other, and will break
down inhibitions and allow you to get even closer. Masturbating your partner in the
way he or she enjoys is an important part of lovemaking. Both men and women need
to learn how to handle each other's genitals with tenderness and sensitivity.
Furthermore, mutual masturbation is a safe sex practice as it involves no penetrative
sexual intercourse.
Needle and Syringe Exchange Programmes (NSP): established in the 1980s, NSPs
were developed with the intention to pragmatically reduce the risk of transmission of
blood borne infections including HIV by providing clean needles and syringes to
injecting drug users (IDUs). On the basis of a substantial body of research literature,
NSPs have effectively contributed to reducing the spread of blood borne infections –
including HIV – among IDU populations. In countries and regions, where NSPs were
established as part of a broad response and early on, HIV epidemics were largely
prevented in populations of IDUs. However, in many countries, NSPs remain illegal.
86
Opportunistic Infections: illnesses caused by various organisms, such as bacteria,
parasites and viruses, some of which usually do not cause disease in persons with
healthy immune systems.
Oral Sex: using the mouth to stimulate a person’s sexual organ, regarded as a low-
risk sexual activity for HIV transmission.
Peer Support: providing emotional and practical support to people living with HIV
or AIDS by linking them with other HIV-positive people, some of who may be
trained and experienced in providing support. Being newly diagnosed as HIV-positive
or having lived with HIV for a number of years presents many challenges and
uncertainties, including isolation. Peer support can help resolve some of these
problems as well as clarify feelings and thoughts.
Penetrative sex: when a man’s penis penetrates the vagina or anus (of a woman or a
man). HIV can be transmitted through unprotected (i.e. without the protection of a
condom) penetrative sex.
It is preferable to avoid certain terms: AIDS patient should only be used in a medical
context (most of the time, a person with AIDS is not in the role of patient); the term
AIDS victim or AIDS sufferer implies that the individual in question is powerless,
with no control over his/her life. Referring to PLWHA as innocent victims (which is
often used to describe HIV-positive children or people who have acquired HIV
medically) wrongly implies that people infected in other ways are somehow deserving
of punishment.
Red Ribbon: the international symbol of HIV and AIDS awareness worn by people
all year round and particularly around World AIDS Day. It is a symbol of hope and
solidarity. Hope that the search for a vaccine and cure to stop AIDS is successful and
the quality of life improves for people living with AIDS. The Red Ribbon is also a
87
message of support for people living with and affected by HIV and AIDS. The
developers of the red ribbon symbol waived their rights to copyright and the symbol
may therefore be used by anyone.
Tuberculosis (TB): like the common cold, it spreads through the air. Only people
who are ill with TB in their lungs are infectious. When infectious people cough,
sneeze, talk or spit, they propel TB germs, known as bacilli, into the air. A person
needs only to inhale a small number of these to be infected. Left untreated, each
person with active TB disease will infect on average between 10 and 15 people every
year. But people infected with TB bacilli will not necessarily become sick with the
disease. The immune system "walls off" the TB bacilli which, protected by a thick
waxy coat, can lie dormant for years. When someone's immune system is weakened,
the chances of becoming ill are greater.
HIV and TB form a lethal combination, each speeding the other's progress. HIV
weakens the immune system. Someone who is HIV-positive and infected with TB is
many times more likely to become ill with TB than someone infected with TB who is
HIV-negative. TB is a leading cause of death among people who are HIV-positive,
accounting for about 13% of AIDS deaths worldwide. In Africa, HIV is the single
most important factor determining the increased incidence of TB in the past 10 years.
Unsafe sex: penetrative sexual intercourse without using a condom. This puts each
person at risk of transmitting or acquiring STIs, including HIV.
Viral load: the amount of HIV circulating in a person’s blood. Monitoring a person’s
viral load is important because of the apparent correlation between the amount of
virus in the blood and the severity of the disease: sicker patients generally have more
virus than those with less advanced disease. A new, sensitive, rapid test – called the
viral load assay for HIV-1 infection – can be used to monitor the HIV viral load. This
procedure may help clinicians to decide when to give anti-HIV therapy or to switch
88
drugs. It may also help investigators determine more quickly if experimental HIV
therapies are effective.
Viral load test: measures the quantity of HIV RNA in the blood. Results are
expressed as the number of copies per millilitre of blood plasma. Research indicates
that viral load is a better predictor of the risk of HIV disease progression than the CD4
count. The lower the viral load, the longer the time to AIDS diagnosis and the longer
the survival time. Viral load testing for HIV infection is being used to determine when
to initiate and/or change therapy.
Voluntary counselling and testing (VCT): the process of undergoing a HIV test. It
is confidential and includes pre-test counselling, testing after you agree to be tested
and post-test counselling no matter whether the result is positive or negative.
World AIDS Day: held each year on 1 December and is a day of international,
national and local support for the fight against HIV/AIDS and solidarity with people
living with HIV/AIDS.
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Annex 5
90
Fax: +31 20 423 4224
Email: [email protected]
Global Network of People Living with HIV/AIDS, North America (GNP+ NA)
1534 16th Street, NW, Suite 200
Washington, DC 20036
Tel: + 1 202-332-2303
Fax: +1 202-332-7087
Email: [email protected]
Young Positives
Raoul Fransen
c/o STI AIDS Netherlands
Keizersgracht 390-392
1016GB Amsterdam
The Netherlands
Tel: +31 20 62 62 669
Fax: +31 20 62 75 221
Mob: +31 6 5053 5292
Email: [email protected]
www.youngpositive.com
www.jongpositief.nl
91
The International Community of Women living with HIV/AIDS (ICW)
London Office
Unit 6, Building 1
Canonbury Business Centre
Canonbury Yard
190a New North Road
London N1 7BJ
United Kingdom
Tel: +44 20 7704 0606
Fax: +44 20 7704 8070
Email: [email protected]
Africa
Burkina Faso
Martine Somda
REVS+
01 BP 382
Bobo Dioulasso 01
Burkina Faso
Tel 1: +226970517 (W) TEL/FAX
Tel 2: +226 97 3073 (h)/00226 214652 615356(m)
Fax: +226 97 05 17 s/c Projet HCK
Email: [email protected]
Email: [email protected]
Zimbabwe
Lynde Francis
The Centre
PO Box A930,
24 Van Praagh Avenue
Avondale Harare
Zimbabwe
Tel 1: +263 4 724 494 (w)
Tel 2: +263 11 406 932 (mobile)
Tel 3: +263 4 724 384 (h)
Fax: +263 4 732 965/6
Email: [email protected]
Kenya
Dorothy Onyango
C/o WOFAK
PO Box 35168
00200 City Square
Nairobi
Kenya
Tel: +254 233 2082 (w)
Fax: +254 221 7039
92
Email: [email protected]
Swaziland
Gcebile Ndlovu
ICW Southern Africa regional coordinator
Swaziland
Tel: +268 6113727 (w)
Email: [email protected]
Asia Pacific
India
Celina D'Costa
PATHWAY
Yash Shree Building
8 Panini Society, Santa Nagar
Araneyshwar, Pune 411 009
India
Tel 1: + 91 9846 120839 (mobile)
Fax: +91 44 371 1276 (Attn. INP+)
Email: [email protected]
Email: [email protected] (Please mark for the attention of Celina D'Costa)
Australia
Bev Greet
c/o VACCHO
PO Box 1328
Collingwood, 3066
Australia
Tel: +613 9419 3350
Tel: +613 9387 1052 (h)
Fax: +613 9381 2447
Email: [email protected]
North America
United States
Antigone Hodgins
4831 36th Street, NW
Apt 206
Washington DC 20008
United States
Tel 1: +1 202 232 6749(w)
Tel 2: +1 202 363 0121 (h)
Fax: +1 202 232 6750
Email:[email protected]
Email:[email protected]
93
Latin America and the Caribbean
Argentina
Patricia M Perez
Soldar
Sarandí 215 1º "A"
Buenos Aires 1081
Argentina
Tel 1: +54-11 4951-0651/4951-5037
Fax: +54 114 384 6474
Email: [email protected]
Email: [email protected]
Email: [email protected]
www.icwlatina.org
Europe
Spain
María Jose Vazquez
C/ Tiradors, 6
Entlo 1 F
Barcelona 08003
Spain
Tel 1: 34 637 55 15 47 (mobile)
Tel 2: 34 93 310 3688
Email: [email protected]
94
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Czerny Michael S.J., Response to Rev. Robert J. Vitillo’s “Pastoral and Theological
Challenges of HIV and AIDS”. National Seminar for Priests in Ghana, Accra, Ghana,
16–17 June 2004.
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doc%2Dowl%2FWEBcontent%2FDocuments%2Fpub%2FPublications%2FIRC%2D
pub04%2Funa99%2D34%5Fen%2Epdf
UNAIDS. A Conceptual Framework and Basis for Action: HIV/AIDS Stigma and
Discrimination. Geneva, Switzerland, 2002. http://www.unaids.org
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UNAIDS. A Report of Theological Workshop Focusing on HIV and AIDS Related
Stigma, Windhoek, Namibia, 8–11 Dec 2003. Forthcoming www.unaids.org keyword
search “Religion” under select a topic.
UNAIDS, UNICEF, World Conference of Religions for Peace. What religious leaders
can do about HIV/AIDS : action for children and young people (2003).
www.unaids.org
Vitillo, Rev. Robert J. Pastoral and Theological Challenges of HIV and AIDS.
National Seminar for Priests in Ghana, The Centre for Human Development, Accra,
Ghana, 16–17 June 2004.
World Council of Churches. The Impact of HIV/AIDS and the Churches' Response. A
statement adopted by the WCC Central Committee on the basis of the WCC
Consultative Group on AIDS Study Process. Central Committee, Geneva, Switzerland
12–20 September 1996. Document No. 6.2B. http://www.wcc-coe.org
World Council of Churches, Facing AIDS, The Challenge the Churches’ Response, A
WCC Study document, WCC Publications, Geneva, Switzerland, 1997.
http://www.wcc-coe.org
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