The Children's Heart Foundation’s Post

🏃♀️ Running for a Cause Close to My Heart: Supporting Pediatric Brain Tumor Research💙 This January, I’m lacing up my running shoes for an incredible journey—my first marathon to complete my 100-mile goal as part of the Disney Marathon Weekend, all to support the pediatric brain tumor research, Children’s Brain Tumor Network (CBTN). CBTN is leading the charge in pediatric brain tumor research, providing critical resources and data to help researchers find cures for the devastating conditions that impact children and their families. Every step I take is dedicated to raising awareness and funding for this vital cause. My Goal: Raise $5,000 to fuel innovative research that could change lives. Your Role: Help me cross the finish line by contributing to this mission. Every dollar counts! 💡 Did You Know? - Brain tumors are the leading cause of cancer-related death in children. - CBTN connects researchers globally to share data, accelerating discoveries and treatments. 🌟 Let’s make a difference together! Click here to donate: https://lnkd.in/esGgtYah Your support means the world to me and to the countless families and children who rely on breakthroughs made possible by organizations like CBTN. If you can’t donate, please consider sharing this post to help spread the word. Together, we can run toward a brighter future for kids battling brain tumors. Thank you for believing in this cause with me! 💛 #RunForACure #CBTN #PediatricBrainTumorResearch #DisneyMarathonWeekend #MakeADifference

The reality is extremely difficult, but there’s hope ✨  Here are 5 statistics about pediatric brain tumors we think are important for raising awareness! 1️⃣ It's the leading cause of cancer-related deaths: Brain tumors are now the leading cause of cancer-related deaths in children under 15. 2️⃣ There are 4,000 diagnoses each year: Approximately 4,000 children in the U.S. are diagnosed with a brain or central nervous system tumor annually. 3️⃣ There is a high survival for some brain tumors: Children with low-grade gliomas have a 5-year survival rate around 90%, but it varies by tumor type and location. 4️⃣ There are brain tumors that are incurable at diagnosis Diffuse Intrinsic Pontine Glioma (DIPG), for example, is one of the deadliest, with a 5-year survival rate of less than 1%. 5️⃣ It is the 2nd most common childhood cancer, and #1 most common tumor found in children: Brain tumors make up 25% of all pediatric cancers, second only to leukemia. 🌟 At the Childrens Brain Tumor Project, we’re dedicated to transforming the future for kids battling aggressive brain tumors. Our focus is on finding a cure and improving their quality of life through cutting-edge research. We’re here to give families hope and healing. 💛 You can help us on this journey! Whether through donations or getting involved, your support brings us closer to a cure. Together, we can make a lasting impact! 🌈 Click the link here to learn more about our 'Do Something' https://lnkd.in/epEWyNS5 #curechildhoodcancer #pediatricbraintumors #CBTP #braintumorresearch

Help us close the funding gap for #DIPG research. DIPG, or diffuse intrinsic pontine glioma, is one of the deadliest and most challenging pediatric brain cancers. Despite decades of research, the survival rate for children diagnosed with DIPG remains dismally low (less than 1%). But we know that with the right resources and research investments, we can change this. Your #GivingTuesday gift can help: 🧫Accelerate promising clinical trials for new DIPG treatments 🤝Support innovative research into the biology and causes of this devastating cancer 🧬Expand access to DIPG clinical trials and cutting-edge care for more children. DIPG has been a death sentence for too long. This Giving Tuesday, you have the power to help rewrite the future for children with DIPG. Make your tax-deductible gift today and bring us one step closer to a cure. Every donation, every dollar goes towards saving a life. 💜 #CaringTilItsCured #TheBrookeHealeyFoundation #CloseTheGapForACure TO DONATE: https://lnkd.in/dvA5m-Nu

Miracles start with a belief in the impossible. After relapsing twice, Emily Whitehead’s doctors gave her just weeks to live. Refusing to give up, her parents enrolled Emily in a clinical trial where she became the first pediatric patient to receive CAR T-cell therapy. It was her only chance at survival, and it worked. Now a college student, Emily has remained cancer-free and is considered cured. Her miraculous journey from patient to survivor is featured in the award-winning documentary “Of Medicine and Miracles,” available to stream for a limited time. Make More Miracles Watch online. Then give so more patients like Emily can live. The purchase of a ticket to watch “Of Medicine and Miracles” does not benefit the Foundation. We invite you to match your ticket purchase (or give more generously) with a donation to the Foundation. Your gift will help us support families fighting childhood cancer and raise awareness and funding for advanced therapies like immunotherapy. https://lnkd.in/ekGjBkNR Jolt Penn Medicine, University of Pennsylvania Health System Stand Up To Cancer Children's Hospital of Philadelphia The Parker Foundation Robin Honan Ross Kauffman #OfMedicineandMiracles #DrCarlJune #EmilyWhitehead #BreakthroughAward #CancerResearch #LeukemiaTreatment #CARTherapy #MedicalMiracle #HealthcareHeroes #ScienceAndHope #BreakthroughInCancerCare #PediatricLeukemia #CARTcell #SU2C

Every September, we celebrate Sickle Cell Awareness month! Although NotJustYou exists to bring Sickle Cell awareness at all times of the year, we’re dedicated to amplifying our message of hope and pushing our mission of providing tools and resources for all those affect by this disease. Here’s 5 impactful ways you can support the sickle cell community: 1️⃣ Get Screened for Sickle Cell Trait: Early detection can make all the difference! 2️⃣ Donate Blood: Your donation could save lives by providing crucial blood transfusions to those in need. 3️⃣ Join the National Stem Cell Registry: Stem cell transplants can be a cure—be the match that changes a life. 4️⃣ Donate Money: Your contributions help organizations like NotJustYou continue to provide vital support. 5️⃣ Volunteer: Offer your time and skills to make a meaningful difference. Every action counts! Let’s come together this month to support, educate, and make a lasting impact. 💛🩸 #sicklecellawarenessmonth #sicklecellawareness

Please take a few minutes to read our buddy, Sam’s story. Then head over to pcflv.org to read them all from our 30 Days, 30 Stories series! #pcflv #pediatriccancer #september #awareness

Earlier this year, you may have seen that we sponsored and attended the British Transplant Games, where over 1,000 transplant recipients competed in over 25 sporting events. We were lucky enough to be a big part of the Archery event, where we were able to not only raise awareness of the importance of organ donation, but also highlight some of the lesser-known impacts people can experience post-transplant. We are committed to working with the community to improve outcomes for all transplant recipients. One such impact is Graft-versus-host-disease, a life-changing condition which affects many people following stem cell transplant. In a recent survey, we found that 85% of people experiencing GVHD said it impacted their everyday mobility and physical activity, highlighting why events such as these are so important! Learn more about the event here: http://spkl.io/6043fPglZ #SanofiUK #BTG24

Approximately 500 children aged 0-19 are diagnosed with a brain tumour each year. That’s nearly 10 children each week. Tom's Trust celebrates investment into brain tumour research and this news from the Government, NIHR, the Tessa Jowell Brain Cancer Mission (TJBCM), research funders and other collaborating charities is positive. Brain tumours are the biggest cancer killer of children and adults under 40. We know that 62% of children who survive a brain tumour live with life-long disabilities (such as blindness, hearing loss, lost motor-function or learning disabilities). We need to act now and do all we can to improve the care and prognosis of those facing a brain tumour diagnosis. Read more: https://ow.ly/PJaL50ROWOM

Did you know that Canada ranks 13th in the world for deceased donor rates and 11th for living donor rates? Canada’s continued investment in donation activities such as mandatory referrals and donation physicians has improved donation rates to meet national and local system needs, but we must continue these efforts to become a world leader in this important field. Learn more about organ donation and transplantation data in Canada on CIHI’s new interactive web page: https://ow.ly/yXV350Rk9Na Learn more about international comparisons on the Global Observatory on Donation and Transplantation website: https://lnkd.in/g6TAvWke

Neuroblastoma is a terrible childhood cancer that is often treated with increasingly intensive, toxic and prolonged treatment which can have a huge impact on little bodies. Thankfully, researchers like Dr Greg Goodall from University of South Australia are looking into better and safer ways to treat neuroblastoma, thanks to generous donations from the South Australian community. Dr Goodall is using a new approach to identify which children would benefit from more intense treatment, and those who could be spared from treatment they don't need. His ultimate hope is that his research will lead to new and less toxic treatment options for children in the future. Learn more about our research program: https://loom.ly/CgpMrKQ #ChildhoodCancer #ChildhoodCancerAwarenessMonth #CancerCouncilSA #CancerResearch