St Oswald's Hospice Research’s Post

It’s this time of year that many of us, here in the United States, take time to reflect on things we are thankful for. Most often we give thanks for our families, our friends, and our health.  We at Interim Visits Magazine urge you to add clinical research to your list of things to be thankful for. To learn why read the article I wrote to explain! https://lnkd.in/ece4b4pq #givethanks #thanksgiving #tistheseason #clinicalresearch

A study carried out by the NIHR-funded group, Palliative Care Research Partnership North West, has highlighted the challenges faced when setting up survey, interview and focus group studies in hospices. It's called 'Why are organisational approvals needed for staff studies in the UK? Procedures, barriers and burdens'. Read the paper here: https://lnkd.in/efX6wmGH

"Ascension’s NPS now rivals top consumer brands like Disney and Delta Air Lines, reflecting our commitment to exceptional service." How do we do it? 🤔 👉 We are reimagining our consumer experience by embracing a comprehensive, proactive and innovative approach. 👉 By breaking free from traditional models of patient experience and adopting a modernized approach aligned with evolving expectations, we aim to transform our experience — powered by our exceptional people. 👉 Every interaction, across all touchpoints — human, physical and digital — is guided by a deep understanding of consumer behaviors, attitudes and needs. Take a look at our newly released Ascension Ministry in Action report to learn more about how we are reimaging the Consumer and Patient Experience, and our other innovative strategies. It's an exciting journey! 🚀 Ascension #patientexperience #consumerexperience #datadrivenexperiences #personalization

The Wake Up Narcolepsy #ShadowsToLightGala is underway with an educational forum moderated by Anne Marie Morse. This insightful panel discussion covers the present and future of #narcolepsy care. #WakeUpNarcolepsyNYC

Imagining the future. Talking about what matters most when our health changes can be challenging. Imagining how our needs may evolve is difficult, but simple visuals can help open these conversations. They can bridge understanding, ease fears, and make discussions that might otherwise feel overwhelming more approachable. Palliative care experts, Dr. Kirsty Boyd and Rebecca Patterson wanted to make these conversations easier, so we worked together to create a video with clear, accessible visuals that support future care planning. After testing and refining with real audiences, the final video—funded by Marie Curie—is now available on NHS Inform, reaching people across Scotland. Watch the video: https://lnkd.in/e7fiDjH6 “We wanted accessible visuals to help people across Scotland know what anticipatory care planning (ACP) can do to help them and their families. Hazel understood the key concepts right away and worked quickly and effectively to produce an excellent resource that is now on Scotland’s public information site. This project has exceeded our expectations and I’m sure the video will have a big impact.” — Dr. Kirsty Boyd, Reader in Palliative Care, Usher Institute, The University of Edinburgh #VisualCommunication #HealthConversations #FutureCarePlanning #Scotland #MarieCurie

At Hospice Cape Breton, part of the Nova Scotia Health palliative care network, compassionate care goes beyond medical treatment - it’s about honouring the unique stories and preferences of each individual. This is why Lisa McNeil-Campbell, CVA and the broader team introduced a simple, yet impactful tool designed to gather meaningful details about individual likes, dislikes and sources of joy. Read about the Personal Patient Assessment Tool and how Nova Scotia Health affiliate scientist Mary Ellen Macdonald, PhD, is using her research expertise to help gain broader implementation locally, nationally and further abroad: https://bit.ly/3CYbAYv

In this article, Avera White, MSN, RN, CCM, Executive Director of DEA&I, Director of Clinical Informatics for CCNC, reflects on her experience g rowing up and caring for her mother in a rural community while community resources dwindled. She highlights the critical role of understanding social determinants of health (SDOH) to help assess patients and address their needs: https://bit.ly/46xCL7n

Our Chief Medical Officer, Daniel J. Durand, took the stage at #HLTH2024 to discuss the future of longevity on a powerhouse panel, ‘Our Longevity Obsession.’ Moderated by Debra Richman, Dr. Durand joined experts like Gil Blander (InsideTracker), Alina Rui Su (Generation Lab), and Pita Navarro (Evvy) to dive into how biotech and personalized healthcare are reshaping the way we age. Here are our favorite moments from the panel: 🎯 At [18:59], Dr. Durand highlights the importance of setting realistic longevity goals—focusing on helping  people enjoy longer, healthier lives with loved ones, rather than simply extending lifespan.  🎯 At [36:06], He shares how most of our patients come to us for reassurance that they don’t have a serious condition, but they stay for the ongoing insights that help them maintain and improve their health over time. Discover how we’re redefining health and longevity by watching the full discussion here: https://lnkd.in/dh7nSq-5 #Longevity #HealthyAging #PreventativeHealth

Exciting Momentum in the Fight Against Dementia We are at a pivotal moment in our collective journey to combat Alzheimer’s and other forms of dementia. It's heartening to see the recent increase in funding for research in this critical area—a testament to the global recognition of the urgent need to address and improve the many aspects of dementia-related challenges. This surge in support not only fuels innovation and advances in treatment but also amplifies the importance of early detection and intervention. At Cognes Medical Solutions, we are inspired by this momentum. Our commitment to developing groundbreaking technologies, like our SaaS screening solution Cognes, is more invigorated than ever. These tools aim to leverage machine learning to detect early signs of dementia through digital biomarkers in facial features, offering hope for earlier and more precise prognoses. We extend our deepest gratitude to the research community, funding partners, and everyone dedicated to this cause. Together, we are paving the way for a future where dementia can be identified and addressed more effectively, improving the quality of life for individuals and their families worldwide. Let’s continue to support and celebrate these advancements. The path forward is bright, and your engagement and support are vital to transforming the landscape of dementia care and research. #DementiaResearch #Innovation #MachineLearning #MedTech #HealthcareInnovation

Human Experience Week recognises and celebrates that the experiences of our patients, their families and carers cannot be separated from the experiences of our caregivers (staff and volunteers). The theme for 2024, Innovate to Elevate, focuses on the importance of amplifying voices to inspire hope and making the important shift from surviving to thriving by removing the pebbles in our shoes. At NSW Health, we know that the exceptional patient experience is more than receiving excellent clinical care. How that care is delivered and how it makes us feel is just as important. Learn more about how NSW Health is transforming patient experience: https://lnkd.in/ggsgEZuH