Quiet Capital’s Post

Tomorrow is February 29th and it's also Rare Diseases Day! HHT (Hereditary Haemorrhagic Telangectasia) is a rare genetic condition. There are a number of international Centres of Excellence delivering coordinated and specialised care for people living with HHT. In the UK support is limited and isn't as integrated and holistic as it could (should) be, in my experience. Specialised and coordinated support ensures that people's physical needs as well as their social and psychological needs are considered and addressed. This feels like a gap in the NHS UK provision. Genetic counselling has long wait times and generally just confirms diagnosis. If you are literal about the term 'counselling', you may find your expectation is unfortunately not met. There also isn't much available in terms of post-diagnostic support, which helps with understanding and ultimately, acceptance of what the diagnosis means for the person, their children and family. Anxiety is a common experience shared by people in the HHT community, especially when complications have been experienced. Support Groups do exist, but these are very limited. If you or someone you know is struggling with mental wellbeing connected to a long term or rarer condition, don't suffer alone - see your GP or a mental health worker based in your GP practice.

Physician retention is an ongoing effort for healthcare organizations, but no strategy or plan will be impactful without understanding and supporting physicians' mental health struggles. The article below addresses topics such as burnout, depression, and addiction and how to recruit and retain physicians while fostering a compassionate environment. #physicianrecruitment https://lnkd.in/eUyi7U8Q

This terrible outcome—death—for a man with a treatable brain disease who could not get the lifesaving medical treatment he needed and deserved to live in #recovery, is playing out all across the US. Why? It is a complex mix of deadly factors, as the article aptly describes. To boil it down: treatable brain diseases like #schizophrenia and other #psychosis spectrum disorders including #bipolar disorder are not viewed or treated like the medical, neurological conditions they are. Parity laws are making little difference as insurance companies continue to deny and underpay for healing services for mental/brain health conditions. There are not enough beds or healthcare workers. This quote sums it up: “ Are there any other emergency medical conditions — heart attacks, sepsis, broken bones, anything else — where we tell people just to wait until there’s a bed somewhere?” - Jon Berlin, former president of the American Association for Emergency Psychiatry “He Went To An Emergency Room For Help. Then He Vanished” An overwhelmed, underfunded system is jamming ERs with patients in psychiatric distress. And sometimes the consequences are deadly. Read in HuffPost: https://lnkd.in/gsN8dpdk

Learn about the Harm Reduction Practices used in our Psychedelic treatment program and how COIT leading this healthy equity movement…

Changing the conversation around the experience of living with dementia-related illnesses is crucial, particularly in the early stage. To Whom I May Concern®'s Sharing Groups help individuals aware of cognitive changes reclaim their voice, find support and change the narrative. Find out how: https://ow.ly/tYNC50TrmTz

Changing the conversation around the experience of living with dementia-related illnesses is crucial, particularly in the early stage. To Whom I May Concern®'s Sharing Groups help individuals aware of cognitive changes reclaim their voice, find support and change the narrative. Find out how: https://ow.ly/tYNC50TrmTz

https://lnkd.in/e8crdyyT "Hopelessness is a kind of psychological anvil that can drag a patient down into the deep depths of suicidal despair. In turn, clinicians can be similarly pulled under by the sheer weight of their patient’s hopeless struggles. It follows that suicide can become quite compelling for a patient in the face of unwavering hopelessness...But here is the thing about hope: it is the remedy for suicidal risk. I certainly mean this in terms of any patient who is suicidal but it uniquely applies to clinicians as well..."Hope" is a simple word. Yet hope has transformative power for patients who struggle and for providers who care for them. When there is hope, providers can evolve from a clinical stance rooted in fear, avoidance, and control to offering a therapeutic embrace brimming with validation, competence, and confidence. Hope is the essential remedy within clinical suicidology for both patients and their providers. For when there is hope, there is always the potential to decrease suicidal suffering, perhaps helping to save a life, and the promise of opening a door to a life worth living."

A patient’s mental health can impact the health of the skin. Approximately 30-40% patients seeking treatment for skin disorders have an underlying psychiatric or a psychological problem that either causes or exacerbates a skin complaint. These patients need to be addressed with a special approach assisting their psychological need, pharmacotherapy for their psychiatric morbidity, and skin disease; hence, a complete holistic treatment approach to the patient. Register here: https://buff.ly/3XqUKd3

“My addiction could have been avoided if any one of my doctors listened to me.” “I want a central place [...] for all doctors, irrespective of the hospital.”  Are you wishing you didn’t have to repeat yourself at every doctor’s appointment? Do you wish you could keep your medical history all in one place? That is why we are thrilled to announce the launch of EmpowerHealth, a patient portal designed to cultivate caring patient-provider relationships. Currently, many communication barriers exist between patients and doctors. Despite a proven link between mental and physical health, doctors often lack comprehensive records of their patients’ mental health histories.  Through EmpowerHealth, patients have the opportunity to easily fill out daily reports to track how they are feeling, both mentally and physically. This data will then be automated with AI to analyze and summarize the data for doctors. Thus, our goal is twofold: firstly, to lift the burden off of doctors. A provider that normally sees 80 patients in a day can now see 100, and spend less time while they’re at it. And secondly, patients will have the comfort of knowing that they will be taken care of with a holistic approach. 

Struggling with depression can be an incredibly isolating and challenging experience. When you’re grappling with negative thoughts, it might feel as though there’s no escape and that these feelings will never end. However, it’s important to remember that you are not alone in this battle. Seeking help is a crucial step towards recovery, and professional support can make a significant difference. At Aspley Family Medical & Dental Practice, we understand the profound impact that depression can have on your life, and we are here to offer you the expert counseling you need. If you or someone you know is struggling with depression, please consider reaching out to us. For appointment click on the link below https://lnkd.in/d3vcZHRc or call us on this number (07 32639951) Visit our website https://afmdp.com.au/ #depressiontips #DepressionAndAnxietyAwareness #depressioncankil #DepressionIsNotAJoke #Mentalhealth #gpnearme #MedicalCentre #closestgptome #closestdoctor #ClinicsNearMe #walkinmedicalcenternearme #experienceddctor #specialilitydoctor #doctornearme #closestdoctor #onlineappointments #generalphysician #maternalhealthservices #MentalHealthSpecialist #mentalhealthservices #childrenshealth #aspleyfamilymedicalanddentalpractice #aspley #brisbane #brisbanecity #australia