Here is my #datavulnerability story.
As I reached the mid-forties, I started revamping my personal finances and investments. Very quickly I realized that even the #terminsurance I was enrolled in was going to increase premiums 10x in the next cycle. Why? Because according to some Excel Sheet model in their backend (if it was truly ML model, the predictions would not be that obvious and thresholds would not be so simple to set) showed that insuring people after X years of age becomes a liability for insurance companies.
The story that I had heard countless times before I reached that certain age - "insurance is only for those who don't really need" became my story, overnight. Or should I say my story became yet another fragment in that story. After the emotions settled down, it was clear to me that this threshold was not really just a milestone marker for personal health, it was also a forcing function to collect more health data on the subjects. Why? Because unless you do another physical after that threshold is reached - you won't really be able to go back to a favorable term. That too assuming your results look good.
They reached out to me - asking for a physical. And I dutifully agreed - because I was confident to clear the physical in flying colors. The physical shows exactly that, all health parameters are good. Just one minor concern, which was mitigated through a well-established treatment plan, and was mostly just a genetic predispoistion. Ideally, this much of data should be enough for a fair-minded insurance company to reissue a new term. But not really. Now the underwriter reaches out to me for full-access to my entire medical history. Which I would have generally been okay with - until I sat down to think why that would be really necessary. It's not like if I had a major sickness, I could hide it from all the different physical examinations that I had already gone through. So, what then was the reason to ask for unfettered access to my medical record. In my opinion the reason was to dig for dirt, assuming it may contain some conversations with my physician that will stengthen some wildly speculative assumptions they want to make about me, not to refuse me the insurance (well, may be that too if there was a chance of me being high-risk subject) but also to build grounds to refuse the insurace payout or reduce it by using some god-forsaken off hand remark I might have made in safety of strict doctor-patient confidentiality. That is what made it impossible for me to ignore #datavulnerability of my #EMR.
Today with #FHIR standards and some tokenary authorization mandates, it is extremely easy for anybody to access your EMR history. All they need is your #consent which can be easily disguised under a value-based service offerings made to trigger your #reciprocity response. I feel my #datavulnerability more distinctly after this experience. And this must be addressed in the next wave of healthcare tech advances. Go DataSenseLabs!
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DataSenseLabs conception began in the summer of 2018 during the #DecentralizedWeb conference where the #DataVulnerability issues faced by the internet users (~5.45B as per Google estimates) were highlighted. Subsequently, in 2020, a #Netflix documentary #TheSocialDilemma made it unequivocally clear that we all were vulnerable beyond our wildest imaginations. As it said - "You (users) are the product." The realization of vulnerability galvanized #DataSenseLabs into an active pursuit. After nearly four years of experimentation and analysis on how enterprises use and protect consumer data to do business - it was clear that consumer advocacy would require a more grassroots effort that was usually not possible within the boundaries of corporate world. In the last few months, researching the data vulnerabilities we reached at a conclusion - we must demonstrate our commitment to solving impactful problems that arise from data vulnerability. And that's how we decided to build #SolidHealth.AI (code-word for a product we are building). We just revamped our web-page with some FAQs. https://lnkd.in/gWX44XpE
We would love to hear your #datavulnerability stories in the comments.
#healthcare #ai #thesocialdilemma #personaldata #consumerdata
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SolidHealth.AI | DataSense
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