The Remarkable Malignant Hyperthermia Hotline In a few weeks, the independent patient advocacy organization, The Malignant Hyperthermia Association of the US,(MHAUS), will sponsor a meeting of the thirty hotline consultants and members of the Professional Advisory Council to discuss challenging cases, report successes and failures as well as share information that is changing the way this fatal disorder is managed. The hotline was formed within the first year of establishment of MHAUS, in 1981, in order to provide free, expert advice in handling the complex, potentially fatal disorder. It has been active continuously since then. About 600 calls each year are received and managed by the specially qualified anesthesiologists. That makes about 20,000 calls covering a wide range of questions since 1982. Although the general nature of the questions are documented, the responses to questions are not deemed to be specific medical advice and the identities of the caller and the consultant are kept confidential. There has been no legal problems with this approach. Each consultant is required to be a licensed Board certified anesthesiologist covered by medical legal insurance. The cost of the service is approximately $100 per call and is covered ( incompletely) by donations from organizations, patients, and medical and nursing practitioners. While we cannot document how the recommendations have saved lives or at least minimized complications, there certainly is evidence that it has been so effective in multiple situations. In addition, it has served the entire medical community through documentation of presentation and outcome of malignant hyperthermia episodes published in peer reviewed journals. Neither the consultants, nor Board members or advisors of MHAUS receive compensation for their work. The MH hotline of MHAUS has been one of the most important and gratifying programs that were initiated in such a cost effective manner. All of the consultants look forward to the highly interactive meeting in just a few weeks. Oh yes, contributions to MHAUS for the hotline and other programs are tax deductible and gratefully appreciated. See MHAUS.org, or call the office at 607-674-7901.
Henry Rosenberg’s Post
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