Data Phoenix’s Post

Some time ago, my best friend, Liz Lesemann, passed away due to the horrible disease #ALS. I must confess that I haven't cried this much at a conference. Today, I was honored to witness a technological advance that helped those affected by this disease. Today, I saw this fantastic technology that Luís from Unbabel Labs and Sumner L Norman. Norman, Co-founder and CEO of Forest Neurotech, and Vasco Pedro, Co-founder and Chief Executive of Unbabel Labs, demonstrated how Unbabel Halo can facilitate real-time conversations for ALS patients. Combining #GenerativeAI with a non-invasive neural interface allows Unbabel Halo to transform bio-signals into language, allowing ALS patients to reconnect with their loved ones!

We’re so thankful for the 120+ people from around the world who attended the Undiagnosed Hackathon. These experts, patients and patient advocates spent the weekend diving into de-identified patient data like medical records, genomic data and more. Using analytical methods, AI, and innovation, they worked tirelessly to crack previously unsolved medical mysteries. 10 cases (and counting) were successfully diagnosed in 48 hours. 350 million people live with an undiagnosed disease worldwide. That’s why our partner, Wilhelm Foundation, launched the Undiagnosed Hackathon, to find new ways and build collaborations to solve undiagnosed rare diseases through accelerated patient-centered problem-solving. These teams are not just solving undiagnosed challenges; they are addressing real-world problems faced by individuals with undiagnosed conditions. #UndiagnosedHackathon2024 #RareDisease #RareAsOne #research

The Undiagnosed Hackathon event, coordinated by Undiagnosed Diseases Network (UDN), the Wilhelm Foundation and the Radboudumc with sponsorship from the Chan Zuckerberg Initiative and others, was a truly life-changing event, involving clinicians, genomic lab directors, researchers and industry professionals who teamed up to try to solve 41 undiagnosed rare disease cases from across the world. At the end of 48 hours, the teams solved ~24% (10/41) of the cases and had promising leads in another 22% (9/41) of cases. We were thrilled that optical genome mapping (#OGM) was included as one of the analysis methods used to crack these previously unsolved medical mysteries. What a powerful example of how scientific collaboration can move rare disease research forward! #UndiagnosedHackathon2024 #raredisease #rarediseaseresearch

APG's upcoming Spring Conference 2024, May 29-31, features a number of important issues impacting health care, including #artificialintelligence. Kira Radinsky, PhD, from Diagnostic Robotics, and Yale D. Podnos, MD, from The Oncology Institute, will explore both the benefits as well as the risks and challenges with accuracy and bias when deploying AI models and systems in their clinical workflows and as supportive tools at the point-of-care for managing their highly complex and high-risk patients. #healthcare #ai #caremanagement #patientoutcomes #healthcarecosts #valuebasedcare #APGSpringCon24 Early Bird registration for the APG Spring Conference ends March 29. For conference details, visit: https://lnkd.in/eaFPRCiP

When my younger son began showing signs of weakness, I never imagined it would lead to a diagnosis of a rare neuromuscular terminal condition. Within six months, we had a name for the relentless illness that would forever alter our lives. The speed at which we received this diagnosis was a double-edged sword: on one hand, it allowed us to begin planning and adjusting to this harsh new reality swiftly; on the other, it brought an abrupt and devastating clarity to our fears. Contrast this with the journey I had with my older son. His conditions, a rare growth disorder coupled with a unique tumor, went unnoticed for years. It wasn’t until the symptoms became apparent that we were forced into a whirlwind of medical evaluations and ultimately, a diagnosis. This period was marked by confusion, frustration, and a gnawing fear of the unknown. Yet, the finality of a diagnosis, when it came, offered a strange sort of relief – an end to the wondering and a beginning of understanding. I can’t help but reflect on the families who endure much longer diagnostic odysseys. Their experiences are fraught with endless uncertainty and repeated traumas of false starts, incorrect diagnoses, and often, a lack of validation from medical professionals. The emotional and psychological toll of living in diagnostic limbo can be profound. It is a continuous cycle of hope and despair that slowly erodes the spirit. In our case, while the swiftness of the diagnoses was jarring, it was also a form of mercy. Knowing the nature of my sons' conditions allowed us to focus on what truly mattered: making the most of our time together, seeking the best possible care, and finding ways to cherish each day despite the medical realities and consequences. This journey has underscored for me the critical importance of early diagnosis. Early diagnosis not only offers clarity and direction in a mess of medical uncertainty but also provides the opportunity for timely intervention, which can be crucial in managing symptoms and improving quality of life. It can help families access support systems, plan effectively, and find communities who understand their struggles. For my family, early diagnosis has meant we could face our reality head-on, equipped with knowledge and a plan, rather than being left to flounder in ambiguity. It has allowed us to take control of what we can, even in situations where so much is beyond our control. And perhaps, most importantly, it has given us the precious gift of time – time to make informed decisions, to adapt, and to hold my children close, knowing exactly what we are up against.

Advanced AI and Ultra Wideband caregiving solution to predict falls from Clairvoyant Networks announced as finalist in $5.8m Longitude Prize on Dementia https://lnkd.in/ggm432hv Austin, Texas-based Clairvoyant Networks, is using soccer Ultra Wideband sensor technology to predict and prevent falls for the dementia community. The Longitude Prize on Dementia is driving the creation of AI-based assistive technologies that can [...]

AI: Driving Change Across Industries 💡 “Like tracking water supply in homes, cancer diagnoses have remained unchanged for years. We're here to change that." Melissa O'Brien moderated a panel of disruptors at the HFS Research AI Symposium, bringing meaningful applications of AI to forefront. 👉🏻Richard Nicholson, Sr. Director at Ibex Medical Analytics, we’re building clinical-grade diagnostics for cancer diagnosis, and our AI platform can increase diagnosis by 13% while also reducing pathologist burnout. In Wales, every patient’s prostate cancer image is reviewed by a human pathologist and AI. We aim to bring this to every type of cancer in every region. 👉🏻Krystian Zajac, founder of Watergate, we’re ending the era of dumb water. Why not connect the water supply to the internet? We have a significant issue no one is talking about—by 2035, the UK will have a water deficit equivalent to the total consumption of London. Water also causes more damage than theft and fire combined. But this is something we can easily control. Something as simple as finding a leaky toilet can bring meaningful savings for the environment and our wallets. 👉🏻Anant Sood, co-founder of worxogo, helps connect an employee's work to the business purpose. We’re not just improving connectivity but also providing measurable financial outcomes like increased NPS scores. For all the caution around #AI being discussed, it can also create a #sustainable and exciting future if we see it as a tool and learn how to use it. #HFSReinvent #AIinnovation #BeTheDisruptor #MakingMoments

Q&A with Dr. Carl Marci on OM1’s New Alzheimer’s Disease Dataset The future of Alzheimer’s disease detection and treatment may lie in AI-based datasets encompassing an abundance of real-world evidence from a large number of patients. Healio spoke to Carl D. Marci, M.D., Chief Clinical Officer at OM1, Inc., to gain his insights into how our company’s new dataset can move the process forward. Key Takeaways; 🧠A large, real-world dataset allows clinicians to track early warning signs of Alzheimer's disease. 🧠The dataset leverages medical claims, EHRs, and lab and imaging data to foster health care collaboration Detecting Alzheimer's early is challenging. The signs are subtle, and each individual is unique. But OM1's Alzheimer’s Disease Dataset, when combined with our advanced AI and machine learning platform, OM1 PhenOM®, allows us to create a new roadmap for early detection. The goal is to shift the timeline from reacting to symptoms to preventing them from progressing in the first place. Interested in learning more? Check out the following links; 📍Read, “Q&A: New Alzheimer’s dataset allows ‘whispers from the brain’ to assist in early detection,” here; https://lnkd.in/eQyJZQhb 📍Book a meeting with us; https://lnkd.in/eJcKBAJK #alzheimersdisease #rwd #AI #patientjourneys #Healio

𝐓𝐡𝐞 𝐅𝐮𝐭𝐮𝐫𝐞 𝐨𝐟 𝐀𝐈 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞 𝐈𝐬 𝐇𝐞𝐫𝐞: 55 Start-Ups Selected for Our Pre-accelerator AI in healthcare has surged, outpacing deal growth in the tech sector over the last five years. ⏩Now, 55 start-ups are advancing in our AI in Health Accelerator with Innovate UK. These pioneers are tackling critical challenges like genetic diseases, neurological disorders, and cardiovascular health. In partnership with Medical Research Council and The Helix Way, we’re helping bring these breakthrough ideas to life. 𝐊𝐞𝐲 𝐒𝐭𝐚𝐭𝐬: ✔️127 applications reviewed ✔️112 companies assessed ✔️55 startups advancing Stay tuned to follow their AI healthcare journey 👉 Find out more https://lnkd.in/ecFvy8iz

🌟 Day 29 of Alzheimer’s Awareness Month 🌟 As November nears its end, let’s reflect on the strides we’ve made and the work still ahead. Early detection of Alzheimer’s and related dementias (ADRD) remains critical in improving outcomes and quality of life for those affected. At AITCare, we are committed to making a difference by leveraging advanced AI and machine learning tools. Through real-time monitoring and innovative solutions, we aim to detect early signs of ADRD, empowering healthcare providers and caregivers to intervene sooner and more effectively. Every small step in raising awareness brings us closer to a world where Alzheimer’s is better understood, managed, and eventually defeated. 💜 How are you making a difference? Share your thoughts or stories in the comments below. Together, we can create a brighter future. #AlzheimersAwareness #EndAlz #InnovationInCare #AITCare Would you like a graphic designed for this post?