All this January I've been challenging myself to walk 15,000 steps a day to raise money to fund vital research, care, and support for people living with MND and their families.
I appreciate it’s January, and there are like 12 weeks before pay day, but I'd be so grateful for your support.
You can support in two ways:
1. Donate
The money really will really help to make a difference, (and help to keep me motivated)…
(and/or)
2. Nabbing a couple more minutes of your time reading the rest of this post. Even if you just read the below, spreading the awareness of MND would be enough!
So, here’s some science:
Motor neurone disease is a rare condition affecting the brain and nerves. It eventually leads to death, but some people live with it for many years.
Symptoms include muscle weakness, twitches, slurred speech and difficulty swallowing. The symptoms get worse over time.
Why support the MND association?
I’ve not been directly impacted by this horrible disease, but my own awareness was raised due to my love for Rugby League.
My favourite players back in the day were always the mercurial Rob Burrow and the ever dependable captain, Kevin Sinfield.
Rob Burrow, was diagnosed with MND in 2020, and his friend Kev took on some endurance challenges to help his mate out. Their story of friendship, love and care for each other is legend!
Anyone who has read Rob’s book “Too many reasons to live” or followed the TV documentaries that have featured his battle with this terrible disease, will know all too well the impact this condition can have on friends and family.
Finally….
I’ll leave you with a couple of quotes from Kev and Robs books:
“There is this stat that 5,000 people have MND at any one time. But that can blind you to the countless cases there were previously – the thousands who’d already been through it. A lot of the families of those departed people had to sit with the trauma. It wasn’t really known what MND was; some people who contracted it felt shame about their condition. Now, those left behind can express the emotional pain they endured. That’s where Rob has been a shining light for the MND community. He’s given a sense of safety to a lot of people who might previously have locked the doors and closed the curtains”
Kevin Sinfield, “The Extra Mile”
“MND isn’t incurable, it’s under-funded.”
Rob Burrow, “Too many reasons to live”