Bioplatforms Australia’s Post

Among the goals of the #EuropeanHealthDataSpace is facilitating data access for research and innovation purposes. A recent #comment published in #NatureMedicine by experts in various health data research fields highlights how cross-border sharing of health data can benefit the public. The authors note that "the research community has a lot at stake in terms of securing #public #support." In fact, although the EHDS mandates data holders to share their data, individual citizens still have the option to #OptOut. "Public opinion studies suggest that although the majority of citizens support using health data for research purposes, they also document a hesitation towards both commercial access and cross-border data usage. People might therefore choose to opt out on the basis of general reluctance, especially if the research community does not clearly demonstrate the benefits to public health of cross-border data sharing. For EHDS to deliver on its research promise, it is therefore necessary to explain why research enabled by the EHDS infrastructure might be beneficial to European citizens." The authors identify four interconnected areas in which improved data availability can enable better research outputs: 1️⃣ opportunities to explore differences 2️⃣ access to real-world data, 3️⃣ continuous public health surveillance 4️⃣ increased data diversity 🗞 Read the full paper in Nature Medicine (Nature Portfolio) https://lnkd.in/gwHxj2kf

TL;DR: Our latest paper on digital diaries for public health research during COVID-19 is now published. I'm pleased to share that I’ve co-authored a new publication with colleagues from University of Zurich – Institute of Biomedical Ethics and History of Medicine (IBME) and SwissTPH in the International Journal of Public Health. The paper, "Opportunities and Challenges of Digital Diaries for Public Health Research in Times of Social Distancing", explores how digital diaries provided valuable insights into people’s experiences during the pandemic. Key findings: 🕒 Real-time data collection allowed us to capture insights as they happened. 🙌 Participants felt empowered by sharing their personal experiences. ⚖️ Ethical challenges arose around ensuring diverse voices were represented. 🛠️ Methodological considerations focused on balancing accessibility and privacy in digital data collection. You can find the full article here: https://lnkd.in/dFxP9gKT Thanks to Andrea Kaiser-Grolimund, Bettina Schwind, Laura Kämpfen, Anna Lea Morgan, Nikola Biller-Andorno, and Sonja Merten for the collaboration. #PublicHealth #COVID19 #DigitalDiaries #Research #IBME #SwissTPH

Boston University researchers are invited to learn more about the transformative funding opportunities available through the Advanced Research Projects Agency for Health (ARPA-H), a crucial initiative founded by President Joe Biden in 2022. ARPA-H has already committed over $1 billion to projects addressing some of the most urgent challenges in health and medicine, from cancer therapies and tissue regeneration to infectious disease control and #healthcare access. In support of these ambitious goals, ARPA-H Deputy Director Tyler Best, from the Health Science Futures Mission Office, will visit BU on October 28 to share insights into the agency’s funding strategies, priorities, and current opportunities for the BU research community. Best will highlight the agency’s focus on “high-risk, high-payoff” projects designed to tackle complex health problems that other sectors may not readily address. During his visit, Best will discuss ARPA-H’s unique approach to innovation, emphasizing its mission to achieve not just incremental advancements but radical solutions that drive equitable health outcomes for all Americans. With a strong commitment to addressing health disparities, ARPA-H programs are focused on breakthroughs that will serve underserved and underrepresented communities. Through initiatives like the Emerging Health Innovators (EHI), the agency is engaging early-career researchers and community health centers across diverse networks to reshape the health research landscape. As BU researchers consider applying, Best advises asking questions that probe the impact and transformative potential of their projects: “Is this a problem worth solving? Why now? And how could ARPA-H’s involvement unlock unprecedented advancements?” 🔬 🌟 ➡️ http://spr.ly/6007qAZfb

Excited to share this paper on the policy impact of the Imperial College London COVID19 Response Team which is now published in Springer Nature's Health Research Policy & Systems, highlighting the importance of science communication to the evidence-to-policy pathway during public health emergencies. Mathematical models and advanced analytics play an important role in policy decision making and mobilising action. The Response Team provided continuous, timely and robust epidemiological analyses to inform the policy responses of governments and public health agencies around the world. ➡️ We identified 620 ICCRT outputs produced between Jan-2020 Feb-2022 including journal articles (37%), reports (29%), preprints (16%) and Imperial news items (18%). ➡️ The work of the Response Team affected global and domestic (UK) policy during the COVID-19 pandemic, although some gaps remain in the accessibility of the evidence produced; ➡️ Policy documents from 41 countries in 26 different languages referenced 43% of the Response Team's outputs; ➡️ Output publication to policy reference followed with a mean delay of 256 days (23% of outputs were cited within 2 months); ➡️ The focus of evidence produced by the Response Team corresponded with changing policy needs over time; ➡️ Science communication channels such as news media and social media play a crucial role bridging the gap between research and policy channels; ➡️ We find that 16% of the Response Team's news items were referenced in policy documentation. Read the full paper here: https://lnkd.in/eWsePf4B Imperial College London Ryan O'Hare Ruth McCabe DanielLaydon Neil Ferguson anne cori Paula Christen

We’re rounding up the latest #HealthResearch from our team at THP and its #InstituteForBetterHealth. Dr. Laura Rosella, Chief Scientist & Stephen Family Research Chair in Community Health, IBH, shares 3 recent publications led by IBH scientists that showcase ground-breaking work and the scientific impact we have across academic, clinical & community health spaces. 1. From Fierheller D., Chu C., D’Silva C., et al. “Using community-based participatory research methods to build the foundation for an equitable integrated health data system within a Canadian urban context” ➡️ https://lnkd.in/etwCmDxR This research highlights how a data collection ecosystem, informed by community members & health-care providers, can better capture social determinants of health. It’s a vital contribution to race-based data collection initiatives at THP and beyond. 2. From Barker K.R., Rebick G.W., Fakharuddin K., MacDonald C., et al. “Investigation of the mechanism of resistance behind the first reported cefiderocol-resistant E. coli in Canada” ➡️ https://lnkd.in/eRCUDxzb This article describes the first characterized case of cefiderocol-resistant E. coli in Canada, providing crucial insights for infectious disease specialists and health professionals globally. 3. From Martinez D.L., Ahmed I.I.K., Schlenker M.B. “Risk communication in cataract surgery” ➡️ https://lnkd.in/eTrqumXe This study explores the power of positive framing in patient communication, which significantly reduces perceived surgical risks. It reinforces the growing shift at THP toward #PatientCenteredCare through framing-conscious communication strategies.

Our second session covers: Addressing the Gap Between Clinical Trials and Implementation into Clinical Practice and Population Health. Nandini Raghuraman from WashU OBGYN presented "De-Implementation of Low-Value Care". The panel was moderated by Bill Powderly, MD, the Associate Dean for Clinical and Translational Science. Learn more about how the ICTS can support your clinical and translational research> www.icts.wustl.edu

The latest Journal Citation Reports and 2023 Journal Impact Factors (JIFs) are out 📊 As anticipated, the SSPH+ International Journal of Public Health (IJPH; JIF = 2.6) and Public Health Reviews (PHR; JIF = 3.5) have seen their JIFs decrease by 43% and 36%, respectively. This trend is widespread, with 81% of journals in the "Public, Environmental and Occupational Health" category experiencing similar declines. Notably, many esteemed journals, including Lancet and NEJM, have also seen significant JIF reductions. This overall decline reflects the impact of the COVID-19 pandemic, with 2023 citations not matching the pandemic-related peak of 2022 publications. Despite these changes, the quality and integrity of IJPH and PHR remain steadfast. We extend our heartfelt thanks to all authors, reviewers, and editors for their dedication and support. Together, we uphold the high standards of SSPH+ journals 🌟 Read more here! https://zurl.co/LFF2 #PublicHealth #Research #ImpactFactor #AcademicPublishing #SSPH+Journals

Yet another phenomenal step in the right direction toward improving our understanding of all facets of #womenshealth. We simply cannot progress far in #personalizedmedicine or #precisionmedicine without these fundamental underpinnings first.

At Clalit Innovation, our recent work on probabilistic prediction of vaccination behavior has highlighted something important: our daily health choices matter enormously 🏃♂️➡️ While we often focus on medical treatments, genetics and environmental factors, research shows that our patients behavioral patterns and choices have big influence on their health outcomes. This understanding was a key driver in our project of extracting and modeling behavioral features. One part of this work was developing probabilistic predictions of vaccination behavior before the flu season 🦠❄️ Happy to present our vaccination prediction project once again, this time at the 16th annual conference of The Israel National Institute for Health Policy Research (NIHP), exploring how these behavioral insights can help Clalit Health Services better support patients health journeys 💉🩺 Grateful to Tom Mushkat for our collaborative work in bringing data science and behavioral health together 💪💪 #BehavioralHealth #PreventiveCare #DataScience #Flu #ProbabilisticPrediction