🎗️ 𝗦𝘂𝗽𝗽𝗼𝗿𝘁𝗶𝗻𝗴 𝗮 𝗖𝗮𝘂𝘀𝗲 𝗖𝗹𝗼𝘀𝗲 𝘁𝗼 𝗢𝘂𝗿 𝗛𝗲𝗮𝗿𝘁𝘀 🎗️ This past weekend, our Chief Client Experience Officer, Andrew Pace, and SVP & Director of Operations, Ian F. Campbell, had the privilege of attending the 𝗖𝘆𝘀𝘁𝗶𝗰 𝗙𝗶𝗯𝗿𝗼𝘀𝗶𝘀 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻 𝗥𝗼𝗰𝗸 𝘁𝗵𝗲 𝗥𝗲𝗱 𝗖𝗮𝗿𝗽𝗲𝘁 𝗚𝗮𝗹𝗮, where ACS was honored to be a Silver sponsor. It was an incredible evening supporting a cause that means so much to us. Andrew’s wife, Lori, a pediatric nurse at Children’s Hospital, also attended, bringing her deep personal connection to cystic fibrosis through her work with affected children and their families. At ACS, we’ve been passionate advocates for cystic fibrosis awareness and research for many years, and it’s always inspiring to see this community come together to make a difference. We are proud to continue supporting the fight against this disease and to contribute to such impactful events. Thank you to everyone who made the gala such a success! #CysticFibrosisFoundation #RockTheRedCarpet #CommunitySupport #ACSCares #MakingADifference
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Did you know that 5,000 kids are born with congenital cardiac defects in our country each year? Did you know that pneumonia is one of the most common causes of death among children? Many of these youngsters come from low-income families, which means they cannot afford to obtain medical care. This is the difficult truth we face. Humans' natural instinct is to help others, yet due to the large number of cases, some are left unsupported. Budimas sees this as a serious issue; children should be given another opportunity at a better life. That is why we launched the Budimas Children's Medical Care Fund (BCMCF). BCMCF began as a one-time campaign in 2022 and has since evolved into a lifeline for underprivileged children in need of financial support for critical treatments for conditions such as heart disease and others. The impact has been great, giving many young children a second opportunity at life. Because of its significant impact, BCMCF is no longer a one-time campaign, but rather one of Budimas' key activities. Since then, we've assisted 22 underprivileged children in undergoing crucial operations and receiving required medical treatments, showing that there is always hope. Let us get together to heal and aid. Every contribution counts, and every act of kindness makes such an enormous difference. Give a child a new start, heal their life, and mend their heart.
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An important read worth a few moments of your day.
North Carolina continues to be one of the fastest-growing states in the nation. Building the state's first free-standing children's hospital will greatly reduce capacity issues across the board. UNC Children's Physician-in-Chief Stephanie Davis, MD, spoke to WRAL about the need for the new hospital. https://ow.ly/Bt8o50QAQKm
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How to "Right" Prescriptions: Eighty to ninety percent of a patient's modifiable health factors (e.g., diabetes and stroke) are due to health-related behaviors, socioeconomic factors, and physical environment factors. Is that what we're teaching, learning, funding, or addressing? If not, why not? Well, some of us have been studying, teaching, and, yes, preaching this fact. The Levitt Center has been doing it for the last 15 years. We are joining them and are asking you to do the same. It's about time we start recognizing and treating the things that harm us all, not just those diagnosed in the office, hospital, or clinic. It's about time we write the "right" prescriptions. Give a little, gain a lot.
Donate to John Lewis's Fundraiser for Levitt Center's 15th Anniversary Matching Campaign by The Andrew Levitt Center for Social Emergency Medicine
secure.givelively.org
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The article provides great patient insight on the subject of death, dying, and #EoLC. https://buff.ly/2RZVD8p #FrontlineCommunication #CommunicationSkills #NHSEd #NHS #ACST #BLACST #ECST #BLECST
End of life care: How to talk about dying to someone who is dying
bbc.co.uk
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🌟 Welcome to the Primelife Kidney Foundation LinkedIn Page! 🌟 At Primelife Kidney Foundation (PKF), our mission is to create awareness, provide education, and offer support to individuals living with kidney illness. We are dedicated to making a positive impact on the lives of those affected by kidney disease through various initiatives and programs. 🔍 Our Mission: To educate and empower individuals about kidney health, provide resources and support to patients and their families, and advocate for better healthcare policies and practices related to kidney disease. 🌱 Our Vision: A world where kidney disease is effectively managed and prevented, and where individuals with kidney illness can lead healthy, fulfilling lives. 💡 What We Do: - Awareness Campaigns: We organize events and campaigns to raise awareness about kidney health and disease prevention. - Education Programs: We provide educational resources and workshops to help individuals understand kidney disease and how to manage it. - Support Services: We offer emotional and financial support to patients and their families, helping them navigate the challenges of living with kidney illness. - Advocacy: We work with healthcare providers and policymakers to improve kidney care and support for patients. 👥 Join Our Community: We invite you to follow our page for the latest updates, stories, and information about our initiatives. Together, we can make a difference in the lives of those affected by kidney disease. Your support and involvement are crucial to our success. Thank you for being a part of our journey towards better kidney health for all! #kidney #kidneyhealth #transforminglives #kidneydisease #kidneydiseasefree #givingbacktosociety #volunteering #volunteerism #dialysis #kidndeysupport
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Did you know that May is NEC Awareness Month? In 2014, the Canvasser family founded the NEC Society after their son Micah tragically died from complications of the disease just before his 1st birthday. They chose May as #NECAwarenessMonth because of the importance of partnering with and elevating mothers to build a world without this devastating disease. Mothers are accelerating NEC research, education and advocacy while providing the most protective therapy against #NEC - their milk. The NEC Society's motto, "from pain to power", recognizes the profound heartache and trauma following a NEC diagnosis. While we cannot lessen or erase this pain, together we can harness the power of our heartache and channel our anguish to help other families while supporting The NEC Society's mission. Learn more below as we work to build a world without this devastating disease: #preventNEC #NECawareness #healthcareprofessionals
May is NEC Awareness Month - NEC Society
http://necsociety.org
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The 𝗗𝗖𝗗 𝗖𝗼𝗻𝘀𝗲𝗻𝘀𝘂𝘀 Begins! This morning, we kicked off the much-anticipated DCD Consensus plenary session chaired by Dominique Martin and Umberto Cillo. This opening session will outline the day's objectives, focusing on the significance of advancing controlled Donation after Circulatory Death (cDCDD) programmes. Coordinators will present four key topics, detailing the goals of each section, including how consensus on key issues such as increasing donation rates and optimising organ utilisation can drive progress. The session will also address current controversies and knowledge gaps, fostering collaboration and inspiring ideas to expand cDCD practices globally. - Normothermic Regional Perfusion (NRP) by Marius Berman and Eduardo Minambres - Adult cDCD Pathway by Alicia Pérez Blanco and Helen Opdam - Paediatric cDCD Pathway by Marion Siebelink and Matthew Weiss - Exploring a Unified Concept of Death? By Alexandra Glazier and Francesco Procaccio #DCDconsensus #DCDcongress #Guidelines #PoweredByESOT
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Looking for an organization to give back to for Giving Tuesday? Let me introduce you to an organization that’s near to our heart: the Children’s Organ Transplant Association (COTA). Our son Weston was born with Chronic Kidney Disease (CKD) and will one day need a life-saving kidney transplant. But don’t let the medical terms worry you—this kid is unstoppable. Weston’s the kid climbing the walls, leaping off ledges, and pestering his siblings like it’s his full-time job. (He also holds the family record for ER trips- mostly unrelated to his diagnosis. FEARLESS child.) Ask Weston what makes him awesome, and CKD wouldn’t even get a mention. He’s way too busy being a "real" soccer player, dreaming of driving monster trucks, and playing with his family and friends. Weston’s zest for life is as big as his hugs, and we wouldn’t have it any other way. That’s why COTA means so much to us. When families partner with COTA, the patient gains a lifetime of support. Funds raised through COTA campaigns help cover transplant-related expenses (and all those extra medical curveballs life throws at us). Wherever families are on their transplant journey, COTA has their back. So, if you’re looking for a way to make a difference this Giving Tuesday, why not support an organization that helps kids like Weston keep being their amazing, rule-breaking, boundary-pushing, lovable selves? You can give in honor of Weston Whitlock at this link: https://lnkd.in/g8wyHKtF #WhyCOTA #GivingTuesday #TransplantJourney #TransplantFundraising
Home
https://cota.org/cotaforweston
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Good insights here to consider.
Here's a link to an article I coauthored about the particular challenges in pediatric home-based hospice and/or palliative care. Recently published in Journal of Pain & Symptom Management. Hoping this will stimulate thought and discussion amongst providers. Thanks to JillAnn Jarrell MD and Lisa Humphrey MD who took the lead in drafting and revising this. https://lnkd.in/gGDqkFE9
Challenges in Pediatric Home-Based Hospice and Palliative Care: A Case Series
sciencedirect.com
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