Muscular Dystrophy Association

As the lights twinkle and the year draws to a close, we reflect on the joy and hope brought into our lives by each member of the #MDA community. This holiday season helps us continue to light the path of progress. Your support creates brighter futures every day.      Make a special end of year donation at MDA.org/Holiday  

As we enjoy the season’s festivities, we’re filled with gratitude for our supporters, volunteers, and the entire #MDA family. Thank you for your support and dedication. Wishing you a holiday season as wonderful as the community you’ve helped us build! 💙💛 #HappyHolidays

Join us at the #MDAconference this year and hear from speakers like MDA Board Member Elizabeth McNalley, MD, PhD from Northwestern University - The Feinberg School of Medicine, on new advancements in #ClinicalResearch geared towards finding a cure. Register today: mdaconference.org

The Muscular Dystrophy Association has funded over $1 billion in neuromuscular disease research since its inception, leading to the life-saving treatments and gene therapies we see today. MDA recently announced over $5 million in funding for 21 new projects. In this #QuestBlog by Larry Luxner, we shine a spotlight on innovative research and collaborations to accelerate treatments. #ScientificResearch #ResearchGrants #Neuromuscular #Partnerships

Muscular Dystrophy Association and AFM-Téléthon are proud to announce $510,000 in research grants supporting cutting-edge studies into #MitochondrialMyopathies and #ALS. Dr. Michele Brischigliaro, University of Miami and Dr. Eran Hornstein, Weizmann Institute of Science will lead innovative projects to uncover new therapeutic pathways for these challenging neuromuscular diseases. Collaboration drives innovation, and we’re honored to partner with AFM-Téléthon to make a difference for the neuromuscular disease community. #NeuromuscularDisease #Research #Collaboration #Innovation

Muscular Dystrophy Association is proud to partner with the Coalition to Cure Calpain 3 to fund a $300,000 research grant advancing gene therapy development for limb-girdle muscular dystrophy type 2A (LGMD2A/R1). This grant supports the groundbreaking work of Melissa Spencer, PhD, Co-Director of the Center for Duchenne Muscular Dystrophy at UCLA Department of Neurology. Dr. Spencer’s project focuses on optimizing gene therapy to address CAPN3 mutations, the genetic cause of LGMD2A/R1, bringing us closer to life-changing treatments for this progressive neuromuscular disease. Together, we are making strides toward a brighter future for the LGMD community. #LimbGirdle #MuscularDystrophy #GeneTherapy #NeuromuscularResearch #LGMD #LGMD2A

BREAKING NEWS: The U.S. Department of Transportation (USDOT) has finalized its landmark rule to ensure safe and accessible air travel for wheelchair users! This milestone was driven by the powerful voices of advocates, including the Muscular Dystrophy Association's Accessible Air Travel Campaign. At MDA, we are proud to celebrate this victory alongside our community, as it represents a monumental step forward in ensuring safe, dignified, and inclusive air travel for individuals with disabilities.   Here are some highlights from the rule: ✅ Faster de-boarding assistance for wheelchair users. ✅ Enhanced training for airline staff to prevent injuries and damages to wheelchairs. ✅ Onboard wheelchairs on most flights. ✅ Transparent cargo hold size information for travelers with mobility devices. ✅ Clear policies for repairing or replacing mishandled wheelchairs.   Let’s continue this momentum to improve travel accessibility for all! Raise your voice with us and sign up to advocate at MDA.org/Advocacy. Learn more about our #AccessibleAirTravel campaign: MDA.org/AirTravel.   #DisabilityRights #Accessibility #Inclusion

Anna has a vibrant personality and a wide range of interests. She loves spending time at the beach, painting, watching TV, and running 5K races with her dad. As a player on an adaptive baseball team, she is also passionate about staying active and dreams of becoming a scientist. This holiday season, your donation to #MDA supports programs that empower youth and adults living with #neuromuscular disease to pursue their passions. Together, we can create a future filled with possibilities: MDA.org/Holiday #LightOfHope 

🌟 Early Bird Deadline! 🌟  Don’t miss your chance to join us at the 2025 #MDAconference, March 16-19 in Dallas, Texas, where global leaders and researchers come together to accelerate clinical research leading to breakthroughs in treatments. Register here: mdaconference.org

Muscular Dystrophy Association is proud to announce over $5 million in research grants to advance the fight against neuromuscular diseases. This funding will support 14 research grants and 7 development awards, fostering groundbreaking science across #ALS, #Duchenne #MuscularDystrophy, #SpinalMuscularAtrophy #SMA, #LimbGirdle #LGMD, and many more. These grants reflect our ongoing commitment to driving innovation and empowering the next generation of researchers. Together, we are accelerating progress toward treatments and cures. ➡️ Learn about this investment in the future of neuromuscular disease research in the full press release below. #MDA #ScientificResearch #NeuromuscularResearch #Innovation