Bess and Jake, thank you both for sharing this story. It’s a must read for anyone involved in oncology care or the clinical trial space. We’ve been working nearly ten years at MolecularMatch to improve the searchability of clinical trials and to position clinical trials as a primary care option rather than as a last resort chance at survival. Although we’ve made significant progress in the search experience to find clinical trials, many systemic challenges remain across the clinical trial space to improve patient access to trials. We share the frustration Bess and Jake experienced, and sadly, theirs is one of countless stories on how defeating the entire process is for patients and their families. Although some of the challenges facing these patients are difficult to solve, there are others that can be remedied now. So, what can we do now? 1. Integration between EHR systems, clinical trial coordinators and clinical trial surveillance to improve physician awareness and consideration of clinical trial options throughout a patient’s treatment journey, beginning as soon as a patient is established at an institution. 2. Develop better clinical trial management tools for institutions to locally track, update, improve and enrich the data for both the public and private trials they host so that it’s in one place and easily searchable. 3. Stop waiting for patients to find clinical trials and instead bring best fit trials to the patient through the expansion and exposure of just-in-time trial availability that allows the patient to receive care near their home. Just as we continue to explore new ways to advance care through clinical trials, we hope Jake’s story will motivate everyone involved in patient care to streamline an already arduous journey these patients face.
Phyisican, Writer, Clinical Trial Guidance @ bessstillman.substack.com & helpmefindaclinicaltrial.com
In a companion piece Jake asks: what are the simple things we can do RIGHT NOW to improve the clinical trial processs, and why aren’t we? No day like today. https://lnkd.in/e_ND6hf4