HELIOS ACTION

🌟 Join Us for the Third Webinar in Our Invited Speaker Series! 🌟 COST HELIOS CA22119 is excited to invite you to the next webinar in our series! 🎙️ Speaker: Dr. Kristen Howell 🩺 Topic: Gaps in care transfer from paediatric to adult increase resource utilisation for acute care in sickle cell disease 📅 When: 18 December 💻 Where: Microsoft Teams 👉 Registration is required at https://lnkd.in/duqyJZze. Don't miss the opportunity to engage with leading experts and participate in dynamic discussions on cutting-edge research. Mark your calendar, secure your place and be part of our growing community! #Webinar #HELIOSaction #SickleCellDisease #HealthcareResearch

🚨 Join the Journey to FAIR Data! 🌐 We’re excited to share the second webinar in our FAIR Principles Lecture Series! After introducing what FAIR is and why it’s essential in our first session, this next webinar takes a deeper dive into how to implement FAIR with Prof. Ronald Cornet, focusing specifically on the role of biomedical ontologies in making your data Findable, Accessible, Interoperable, and Reusable. 🧬💡 🎥 Available On-Demand: Catch up on the series anytime on the HELIOS Network YouTube channel 👉 @heliosaction. 📢 Don’t miss this chance to enhance your data skills and contribute to a more interconnected research ecosystem! #FAIRprinciples #BiomedicalOntologies #FAIRdata #OpenScience #HELIOSNetwork ✨ Stay tuned for future webinars in the series and an upcoming summer school on FAIR Principles!

📢 Join Us Today! Don't miss our final HELIOS Young Researchers Monthly Discussion Club for 2024 happening today at 3:00 PM EET! 🌟 We’re excited to welcome Dr. Giulia Maria Ferrari from Fondazione Monza e Brianza per il Bambino e la sua Mamma Onlus, Italy. Dr. Ferrari will share valuable insights from her Monocentric Retrospective Study: Osteonecrosis of the Humeral Head in Sickle Cell Disease in a Pediatric Cohort. 🩺✨ Let’s wrap up the year with an engaging discussion! See you this afternoon! #HELIOS #YoungResearchers #SickleCellDisease #PediatricResearch #MedicalCommunity

🚨 Don’t miss it! Join us tomorrow at 3 PM EET for an introductory lecture on the FAIR Principles by Dr. Martijn Kersloot (Amsterdam UMC), followed by a panel discussion with experts Dr. Marco Roos (Leiden University Medical School) and Dr. Claudio Carta (Instituto Superiore di Sanità). Connect to the meeting by clicking this https://gqr.sh/gtQQ!! The FAIR principles (Findable, Accessible, Interoperable, Reusable) are transforming scientific data management, promoting collaboration, innovation, and open science. They’re also essential for EU-funded research! 💡 Learn why FAIR data matters and how it can enhance your projects. 📅 See you there!

🚀 The Young Researchers and Innovators (YRI) Discussion Club is back! Join us for an insightful presentation hosted by our HELIOS YRI Coordinator, Dr. Eleni Gavriilaki. Dr. Giulia Maria Ferrari from Fondazione Monza e Brianza per il Bambino e la sua Mamma Onlus, Italy. Dr Ferrari will share findings from her study, "Monocentric Retrospective Study: Osteonecrosis of the Humeral Head in Sickle Cell Disease in a Pediatric Cohort." Looking forward to reconnecting and diving into an engaging discussion!

📣Boost Your Data Impact with FAIR Principles! 🖥🌟 Join us for a live webinar with Dr. Martijn Kersloot from Amsterdam UMC to learn how FAIR data principles can make your research more visible, accessible, and impactful! This webinar is perfect for clinicians, scientists, IT experts, and data analysts. 📅 Date: 27 Nov 2024 ⏰ Time: 3:00 PM EET 💻 Where: Microsoft Teams (https://gqr.sh/gtQQ) 💡 Gain practical insights on applying FAIR principles to your work, ensure compliance with European project standards, and participate in a dynamic panel discussion with our FAIR experts: Dr Marjin Kersloot, Dr Marco Roos, and Dr Claudio Carta to address your questions directly. Don’t miss this chance to connect with a leading expert and engage with peers on best practices for data management! Co-organised with HemaFAIR Amsterdam UMC Leiden University Medical Center Istituto Superiore di Sanità #fairprinciples #horizon2020 #costassociation

📅 A reminder that on Wednesday 13 November there will be the second HELIOS webinar with Dr Sophie Lanzkron and Stephanie Muth. 👉 We invite you to register at this link: https://lnkd.in/dduMkv_z

🎉Discover HELIOS-Supported Research at a Glance! 🎉 We’re thrilled to showcase two impactful review publications on hemoglobinopathies, made possible through HELIOS network support! Check out this brief video for a glimpse into these groundbreaking studies and their contributions to the field. 🌍💡 👉 Want to dive deeper? Follow the links below to explore more! -Loss-of-Function Variants in SUPT5H as Modifying Factors in Beta-Thalassemia: https://lnkd.in/dmcajGaJ Leading author: Kees Harteveld, Leiden University -Genetic Polymorphisms Associated with Fetal Hemoglobin (HbF) Levels and F-Cell Numbers: A Systematic Review of Genome-Wide Association Studies: https://lnkd.in/dX3TSkBJ Leading author: Coralea Stephanou, The Cyprus Institute of Neurology & Genetics 📖 Discover. Share. Inspire. #Research #OpenScience #ResearchInsights #Hemoglobinopathies

🆕 Following the launch of our brand-new Invited Speaker Webinar Series hosted by COST HELIOS Action CA22119, we are pleased to present the second webinar. 🎙️ Speaker: Dr Sophie Lanzkron Topic: Costs and impact of disease in adults with sickle cell disease: a pilot study 📅 When: 13th of November 💻 Where: Microsoft Teams 👉 How to Register: https://lnkd.in/dFdagxsN Don't miss these dynamic discussions! Mark your calendar and be part of our growing community. #HELIOSWebinar #HELIOSCOSTAction #InnovationInHealth #Research #WebinarSeries #Networking #GlobalExperts #StayInformed