✨ Find Connection & Support in the FSR Sarcoidosis Support Group! ✨ Living with sarcoidosis can be challenging, but you don’t have to face it alone. Our peer-led support group, facilitated by individuals who also live with sarcoidosis, offers a safe space to connect, share experiences, and uplift one another. 💜 Why join? 🌟 Gain encouragement and validation from others who truly understand. 🌟 Share your thoughts and feelings in a supportive environment. 🌟 Learn from the experiences of others navigating this journey. 📅 Next Session: December 19, 2024 ⏰ Time: 5:00–6:15 PM CST 📍 When: Every third Thursday of the month ✨ Space is limited, so register now! 👉 Learn more and sign up here: https://loom.ly/pg8MT1c #SarcoidosisSupport #PeerSupport #TogetherWeFight #SarcoidosisAwareness
Foundation For Sarcoidosis Research
Fundraising
Chicago, Illinois 2,766 followers
Research, Advocacy, Education. Our mission is to stop sarcoidosis.
About us
The Foundation for Sarcoidosis Research (FSR) is the leading international organization dedicated to finding a cure for sarcoidosis and improving care for sarcoidosis patients through research, education, and support. Since its establishment in 2000, FSR has fostered over $6 million in sarcoidosis-specific research efforts.
- Website
-
http://www.stopsarcoidosis.org
External link for Foundation For Sarcoidosis Research
- Industry
- Fundraising
- Company size
- 2-10 employees
- Headquarters
- Chicago, Illinois
- Type
- Nonprofit
- Founded
- 2000
- Specialties
- Rare Disease, Sarcoidosis, and Research
Locations
-
Primary
Chicago, Illinois 60654, US
Employees at Foundation For Sarcoidosis Research
-
Leanne West
Innovation Catalyst, Patient Advocate, Connector, Chief Engineer Pediatric Technology Georgia Tech, President International Children's Advisory…
-
Craig Lipset
Advisor | Advocate | Educator | Speaker | Mentor | Board Member
-
Louise Perkins
Founder, CSO Emerita LLC and Board Member at Foundation for Sarcoidosis Research
-
Mary E. Cobb
Rare Disease Advisor, PatientVue; Global Genes/RARE-X Patient Engagement
Updates
-
Honor a Loved One with FSR’s Memorial Tribute Platform This holiday season, celebrate the memory of someone special by making a meaningful contribution in their honor through FSR’s Memorial Tribute Platform. 💜 https://lnkd.in/g7_kzqF4 Your tribute not only honors their legacy but also helps advance critical sarcoidosis research, support patients, and drive advocacy efforts. Together, we can create hope and work toward a future free from sarcoidosis.
-
🌟 Together, We Can Drive Change 🌟 This year, the sarcoidosis community has shown incredible resilience and dedication. Thanks to your support, FSR increased research funding by 255% in 2024 and expanded our Global Sarcoidosis Clinic Alliance to 42 clinics! These milestones fuel our mission to stop sarcoidosis and improve lives. 💜 “At this year’s European Respiratory Society meeting I had the honor of chairing a professional society session room filled with dedicated individuals, many of whom were even standing outside the foyer to listen in. It gave me a profound sense of purpose as we moved forward together. Although sarcoidosis remains underfunded, the unwavering commitment of clinicians, scientists, and the Foundation for Sarcoidosis Research fuels our collective determination to drive change. With our patients at the forefront, witnessing the scientific community unite for a collaborative clinical and translational session ignites hope for groundbreaking advancements in this field, despite the financial challenges we face.” -Natalia V Rivera, PhD, Karolinska University Hospital & FSR Scientific Advisory Board Member Now, more than ever, your support matters. Join us in funding research, education, and advocacy to empower sarcoidosis patients. Let’s create a world without sarcoidosis! 💻 Donate today: https://loom.ly/XPALfKA 🛍️ Shop our exclusive pop-up store: https://loom.ly/zByM20I Together, we’re driving change. 💜 #SarcoidosisAwareness #SarcoidosisResearch #FSRDriveChange #EndSarcoidosis
-
🚨 Exciting Opportunity! 🚨 FSR is now accepting applications for the 2025-2027 FSR Early Career Fellowship Grant! This prestigious grant supports early-career researchers dedicated to advancing sarcoidosis research, fostering innovation, and driving breakthroughs in understanding and treating this complex disease. 🌟 🔗 Apply now: https://loom.ly/S8Gd0Eo 📅 Deadline: Friday, February 28, 2025 Don’t miss your chance to make a lasting impact in the sarcoidosis community! #Sarcoidosis #Research #Grant #MedicalResearch #Innovation #FSRFellowship
-
💡 Fund Your Sarcoidosis Research! Don't miss the chance to secure $50,000/year for two years with the ATS/FSR Grant. Perfect for early-stage investigators focused on sarcoidosis. 🗓️ Deadline: Dec 16, 2024 🔗 Apply Here: https://loom.ly/aCXw0qU
-
🌟 FSR’s Gratitude and Giving Challenge! 🌟 This holiday season, let’s reflect on what we’re grateful for and give back to a cause that truly matters. Together, we have a bold goal to raise $125,000 to support the Foundation for Sarcoidosis Research (FSR) and the work we do on behalf of sarcoidosis patients. 💜 Here’s how YOU can participate: ✨ Identify 5 Things You’re Grateful For: Think about what brings you joy—family, friends, nature, or personal milestones—and fill out your Gratitude Graphic! ✨ Invite Friends & Family to Join: Create a fundraiser and aim to raise $200. Share your story on social media to inspire others to contribute to this vital cause. https://loom.ly/IICQigI ✨ Spread Awareness: Share your Gratitude Graphic with at least 5 people and help amplify awareness for sarcoidosis. Together, we can make a difference! 💜 Start the challenge today and let’s practice gratitude while giving back. https://loom.ly/IICQigI #GratitudeAndGiving #StopSarcoidosis #FSR
-
🚨 Limited-Time Alert! 🚨 Don’t miss your chance to grab FSR’s exclusive Gratitude and Giving crewnecks! Featuring inspiring designs—‘Hope,’ ‘Resilience,’ and ‘Stop Sarcoidosis’—these cozy, stylish must-haves ship in just 5 business days. 🗓️ Order by December 20th to ensure you don’t miss out—these limited-edition crewnecks! Every purchase supports life-changing sarcoidosis research, advocacy, and patient support. Stay warm, spread hope, and make an impact this season. 💜 👉 Shop now before they’re gone! https://loom.ly/zByM20I #StopSarcoidosis #FSRGiving #CelebrateResilience
-
Join us in congratulating Dr. Ravi Karra, MD, MHS, from Duke University, as a Recipient of the 2024 FSR Cardiac Sarcoidosis Grant for his exciting project: "Repurposing 99mTc-Tilmanocept Imaging for Cardiac Sarcoidosis." 📈 Award Amount: $100,000 🗨️ Dr. Karra shares: “With generous support from the Foundation for Sarcoidosis Research, we are excited to test whether an imaging agent specific to macrophages can be used to better diagnose and follow cardiac sarcoidosis. This work is part of a bench-to-bedside approach from my lab and has the potential to address a significant, unmet need in the field of sarcoidosis.” 🔬 Dr. Karra is a physician-scientist at Duke University specializing in heart failure and precision cardiomyopathy. His innovative research integrates developmental biology and clinical trials to bring novel therapies to patients with cardiovascular diseases. FSR is excited to support research that aims to revolutionize cardiac sarcoidosis diagnostics and treatment! 🔗 Learn more about FSR’s research grants: https://loom.ly/VMVNa8I #Sarcoidosis #CardiacSarcoidosis #SarcoidosisResearch #FSRGrants #SarcoidosisAwareness #PrecisionMedicine #CuttingEdgeResearch #InnovativeDiagnostics #ResearchForACure #HopeForSarc #SarcWarriors #AdvancingScience #PatientFocused
-
As we approach the end of the year, we invite you to share your story with us to help inspire others and make a lasting impact. Your story can help show the many faces of sarcoidosis, foster a community of resilience and hope, and play a key role in our year-end campaign. By sharing your journey, you’re helping us raise awareness and support for the sarcoidosis community. We are looking for stories from patients, newly diagnosed, caregivers, bereaved, and more. Please share your story in the comments or on our website: https://loom.ly/di4A6lQ
-
📣 Join FSR's Health Equity Consultant Khaleelah Cohen for an Engaging Webinar! The Autoimmune Registry's monthly webinar series brings together patient advocacy leaders to spotlight impactful initiatives. This month, our very own Khaleelah Cohen, Health Equity Programs Consultant at the Foundation for Sarcoidosis Research (FSR), will share insights into the Ignore No More Initiative—a groundbreaking campaign focused on improving health outcomes and clinical trial access for Black patients with sarcoidosis. ✨ Khaleelah will discuss: How Ignore No More was developed and evolved into a larger movement. Practical strategies for creating impactful health equity programs. Lessons learned to inspire and guide similar initiatives. 📅 When: Thursday, December 12th, 12-1 PM ET 📍 Where: Via Zoom Don’t miss this chance to learn from Khaleelah's expertise in health equity, advocacy, and campaign development. 👉 Register here: https://loom.ly/w8uM3fA Let’s work together to advance equity and improve outcomes for underserved communities! #HealthEquity #AutoimmuneDisease #Sarcoidosis