FARE

Researchers from the Division of Allergy at the University of Rochester are conducting a study to better understand the unique experiences of students managing food allergies while living away from home. This survey aims to explore the challenges you face and the factors that impact effective allergy management during college life. Who is eligible to participate? ✔️ You are 18 years or older. ✔️ You have IgE-mediated food allergies. ✔️ You currently live away from home while attending college. Your insights will contribute to advancing medical understanding and help guide healthcare teams in providing better support for students managing food allergies in the future. 💡 Your voice matters—thank you for helping to shape the future of allergy care: https://lnkd.in/eDb-D3EE

Yesterday, Governor Kathy Hochul signed into law critical legislation requiring health insurance coverage for epinephrine auto-injectors and capping the cost of a two-pack at $100. This law will ensure nearly 2 million New Yorkers, including over 300,000 children, can access more affordable life-saving medication for anaphylaxis. FARE extends its deepest thanks to Jason O'Donnell, Gustavo Rivera, Governor Hochul, and the New York State Legislature for making this possible. FARE CEO Sung Poblete shared: “Today is a day to celebrate – thanks to the hard work and efforts of Assemblyman O’Donnell, Senator Rivera, Governor Hochul, and the entire state legislature, nearly two million New York food allergy families will now be better able to afford the only medicine that can save their lives during a food allergy reaction. Today’s bill signing sends a strong and clear message that food allergy families no longer have to worry about how they will afford their epinephrine – we are grateful to the leaders in Albany and our advocates statewide who helped make this law possible.” The law will take effect in January 2026, marking a significant step toward greater health equity. https://lnkd.in/g8AdhCsJ

Managing severe allergies just got a bit easier. With neffy, there’s now a needle-free option for treating anaphylaxis. It’s a new choice that can make a big difference for some. Always carry epinephrine and stay prepared. 💙 #foodallergyawareness

TW: This content includes reference to a food allergy reaction and death. “At FARE, we are grieving Dominique Brown’s death as a food allergy community. Our hearts go out to her family and friends, and it’s incredibly upsetting to see another senseless, unnecessary loss. Dominique’s beautiful life has been cut short by the impact of misperception, misnomers, mistakes, and a propensity to treat serious things without the seriousness they deserve. What Dominique suffered from is a disease. A life-threatening disease that affects more than 33 million people in the United States. We need for everyone to understand that food allergy is not a diet, not a preference, not a choice. The enemy is the disease—not the food, not the person—and we need to defeat the disease. I challenge everyone to Dare to Care. We all need to be aware, especially people who do not have this disease. As a community, we need to be informed and ready to act so that this doesn't happen anymore; or, if it does happen, so we are able to assist. Please send love to Dominique’s family and friends.”   —Sung Poblete, PhD, RN, CEO of FARE https://lnkd.in/gEQT8vEY

"My name is Gianna and I am 10 years old. I have been allergic to peanuts since I was 13 months old. Living with an allergy can be hard. I have to bring my EpiPens everywhere, be careful when eating new foods, and read labels to make sure foods are safe. At the start of the pandemic, I began baking to pass the time while being stuck at home. Since then I created a little bakery called Nut Free by G. I bake cookies, cakes, cupcakes, donuts, and even ice cream for family and friends. I have also made goodies that are gluten free, milk free, and egg free. I want to make sure everyone is able to enjoy yummy treats and not feel excluded. From the money I’ve earned through my business, I have donated to several foundations including Red Sneakers for Oakley and The Elijah- Alavi Foundation to help educate others about the importance of food allergy awareness. In the future, I hope to open a real allergy friendly bakery and continue to bring smiles to kids just like me." Submit your story for a chance to be featured on an upcoming #faresundaystory: https://bit.ly/3WNio3g

🎄✨ This holiday season, we’re celebrating the incredible efforts of advocates like Jess Carrillo, who is spreading awareness for food allergies in such a unique and meaningful way! ✨🎄 Jess’s food allergy awareness Christmas tree is more than just a festive decoration—it’s a powerful reminder of the importance of raising awareness about food allergies. Despite the many challenges she faced (from tracking down the perfect tree to missing teal lights and even a little rain), Jess’s determination and passion shone through, turning a chaotic situation into something beautiful and impactful. 💙 Jess’s creativity and dedication are a true testament to the power of raising awareness and how every small effort can make a big difference. We are so grateful to have advocates like Jess who use their voices and actions to support the food allergy community. Thanks to her, and so many others, we continue to move closer to a world where those with food allergies are seen, heard, and supported. 🌟 #foodallergyawareness #foodallergy #christmastree

Did you know that 1 in 4 life-threatening food allergy reactions in a school setting happen to people without diagnosed food allergies? And that, on average, there are 2 children in each U.S. school classroom with food allergies? That’s why we at FARE were so pleased to see ARS announce an initiative to make its needle-free nasal epinephrine spray, neffy, available to schools free of charge. There is more work to be done. Many states' legislation allowing unassigned epinephrine in schools is specific to epinephrine auto-injectors, drafted in a time when that was the only delivery mechanism available to food allergy patients. We hope to see that rule broadened. Furthermore, FARE is working to enable the availability of unassigned epinephrine in every school, public venue, airplane, airport, and hotel—everywhere the more than 33 million people in the U.S. with food allergies are (and that's everywhere). Read more here: https://bit.ly/3ZGRGJB

"Our son Max was only 7 months old when we discovered his food allergies. We mixed a small amount of peanut butter into his food and almost instantly knew something was wrong. Max’s body swelled so much he turned white and he was entirely covered in hives. He experienced two anaphylactic reactions in the ER, received two epinephrine doses, and we were shuttled to a children’s hospital for observation overnight. Through subsequent testing and food introductions, Max was diagnosed with life-threatening allergies to peanuts, tree nuts, eggs, and seeds, among others. After Max’s diagnosis, we scoured the internet for information on how to help our child. We had no previous history of food allergy in our family and didn’t know any other parents in a similar situation. Thankfully, we found FARE. Through FARE’s website, we learned more about food allergies, testing and treatment options. We also found FARE’s local food allergy support groups, which enabled us to connect with the wonderful food allergy community of Greenwich, CT. We were blown away by the depth of knowledge, generosity, and support offered by local families we met through FARE’s network. Max is now a cheerful and extremely social five-year-old. Even though our family ’s food allergy journey is still just getting started, FARE has made it more manageable for us to persevere through the hard times and more rewarding when we get to celebrate the small victories. We see the benefits of FARE each and every day in our care for Max, and I’ve had the opportunity to give back by leading that same local support network that helped us in our time of need." -Katie Geenberg, Food Allergy Mom & Member, FARE Board of National Ambassadors Our mission is simple yet bold: a better future for those with food allergy. With your help, that future is within reach. Let’s make it a reality together! Donate to FARE today, December 3, 2024, and your donation will be matched dollar for dollar, up to $50,000! https://bit.ly/41dzgSU

15 and Mahomies Foundation is partnering with FARE to launch "15 and FARE" in KC! This initiative is all about creating safer spaces for families managing food allergies. 💙 Look out for the "15 and FARE" logo at local restaurants soon—it’s a sign of food allergy training and commitment to safety. Let’s celebrate this amazing step towards inclusion in our community! 🏈🌟 #FoodAllergyAwareness #KansasCity https://bit.ly/3CRzHs9

🏈 This Black Friday, Patrick Mahomes didn't just lead the Kansas City Chiefs on the field—he made an impact off the field too! As part of the NFL’s My Cause My Cleats initiative, Mahomes used his platform to support 15 and Mahomies and 15 and FARE. These efforts are bringing vital resources to local communities and providing training for restaurants, making a meaningful difference for families navigating food allergies. His custom cleats shine a spotlight on this life-changing cause. 💙👟 We loved cheering on Mahomes and the Chiefs as they took on the Raiders while advocating for meaningful change. 💪 #MyCauseMyCleats #FoodAllergyAwareness https://bit.ly/3Ze7FOT