How can you prioritize the needs of children when working as a patient advocate?

1 Understand the child's perspective

One of the first steps to prioritize the needs of children is to understand their perspective and experience. Children may have different ways of expressing their feelings, fears, and hopes, and they may not always understand the medical terms or procedures that affect them. As a patient advocate, you can help by listening to the child, asking open-ended questions, using simple and clear language, and validating their emotions. You can also use tools such as drawings, stories, or games to help the child communicate and process their situation.

2 Involve the child in decision-making

Another way to prioritize the needs of children is to involve them in decision-making as much as possible, depending on their age, maturity, and capacity. Children have the right to participate in decisions that affect their health and well-being, and they may feel more empowered and respected if they have a say in their care. As a patient advocate, you can help by explaining the options and consequences of different treatments or interventions, seeking the child's consent and assent, and supporting their choices. You can also help the child express their preferences and concerns to their parents, caregivers, and health care providers.

3 Collaborate with the child's family and care team

A third way to prioritize the needs of children is to collaborate with their family and care team, who play a vital role in supporting the child's physical, emotional, and social needs. Children may depend on their parents or caregivers for guidance, comfort, and advocacy, and they may also benefit from the involvement of other family members, friends, or mentors. As a patient advocate, you can help by building trust and rapport with the child's family and care team, facilitating communication and coordination among them, and respecting their values and beliefs. You can also help by providing information, resources, and referrals to address the child's and the family's needs.

4 Advocate for the child's best interests

A fourth way to prioritize the needs of children is to advocate for their best interests, especially when they face barriers or challenges in accessing quality care or services. Children may encounter difficulties in obtaining appropriate diagnosis, treatment, or support, or they may face discrimination or stigma due to their condition, age, or background. As a patient advocate, you can help by identifying and addressing the gaps or obstacles that affect the child's health and well-being, promoting their rights and dignity, and seeking solutions that are fair and beneficial for them. You can also help by empowering the child and the family to advocate for themselves.

5 Support the child's development and well-being

A fifth way to prioritize the needs of children is to support their development and well-being, beyond their medical condition. Children have diverse and holistic needs that include their physical, mental, emotional, social, and educational aspects. As a patient advocate, you can help by recognizing and respecting the child's strengths, interests, and goals, and encouraging their participation and engagement in activities that are meaningful and enjoyable for them. You can also help by providing emotional support, coping skills, and positive feedback to the child, and by connecting them with peers or groups that share their experiences or challenges.