Scleroderma and Raynauds UK

Scleroderma and Raynauds UK

Non-profit Organizations

London, Greater London 141 followers

The UK's only charity dedicated to improving the lives of people with scleroderma and Raynaud's phenomenon.

About us

We are the only UK charity dedicated to improving the lives of people affected by Scleroderma & Raynaud's. Our mission is to improve the lives of everyone affected by Scleroderma and Raynaud's. We do this by investing in research, improving awareness and understanding of the conditions and providing information and support to all those affected. Our Values: • Collaborative • Trusted • Compassionate • Driven

Website
https://sruk.co.uk
Industry
Non-profit Organizations
Company size
2-10 employees
Headquarters
London, Greater London
Founded
2016
Specialties
Health, Scleroderma, and Raynauds

Updates

  • Scleroderma and Raynauds UK reposted this

    Last week, we were proud to support #PHAwarenessMonth by wearing purple and joining the #PurpleForPH campaign alongside Scleroderma & Raynaud's UK (SRUK). We were honoured to be joined by Sue Farrington, Chief Executive of SRUK, as a guest speaker at our Lunch & Learn, where we gained valuable insights into Scleroderma-related PAH and the critical need for earlier diagnosis. Speaking at the event, Sue said: “There are two main barriers when it comes to a diagnosis. The first is the lack of awareness, knowledge and understanding amongst patients and professionals. The second is the limited conversations that happen between them. But one thing that comes through when speaking to patients is the resilience, positivity and ability to adapt. And those messages are important to get out to the wider community.” At J&J, we are dedicated to raising awareness of this often-underdiagnosed disease every day. A sincere thank you to Sue for her invaluable insights, and to all who joined the session. Our collective efforts are key to advancing awareness and driving progress in improving the lives of those affected by PAH. #TogetherForPH #PulmonaryHypertension #PAHAwareness CP-483922 | December 2024

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