✨ One year on: celebrating the inclusion of #Noma on the WHO's Neglected Tropical Diseases list ✨ Exactly one year ago, the World Health Organization announced the historic decision to officially recognize noma as a NTD. The decades-long advocacy, accelerating in the last five years and culminating in this recognition in the fight against a devastating disease, can't be overstated. Noma, both preventable and treatable, is a severe gangrenous disease of the mouth and face, long overlooked and underfunded. Today, we celebrate progress made in the undeniable increased global awareness and momentum dedicated to combating noma.
It is not only the speed but also the immense variety in advocacy that is remarkable; there are several lessons in this for the global health community. Noma now sits at the intersection of sectors including #NTDs, #NCD, #oralhealth, #nutrition, #ChildHealth, #CommunityHealth, #HumanRights to name a few; this allows for advocacy, research and programs to draw on manifold experiences and resources. Stakeholders have come together in myriad ways this year: examples include a pivotal event at Geneva Health Forum #WHA77; a "Spotlight on Noma" by International Society For Neglected Tropical Diseases (ISNTD); further screenings of the award-winning documentary "Restoring Dignity" Inediz Médecins Sans Frontières (MSF) and frequent media presence. Additionally, the Swiss Tropical and Public Health Institute convened a symposium to define the noma #research agenda for better understanding, prevention and treatment. The WHO hosted its first global conference to accelerate integrating oral health into broader #publichealth. Throughout all this, one cannot highlight enough the ongoing and tireless work by those on the ground in challenging environments to ensure that affected persons receive adequate care and elusive cases continue to be detected.
What really sets this community apart, however, is how survivors themselves have not only been central to but in fact led the noma effort. Noma survivors Mulikat Okanlawon and Fidel Strub are at the helm of Elysium Noma Survivors Association and were recognised internationally as TIME 100 Most Influential People in Global Health 2024. It is not only a moral imperative and collective responsibility to ensure affected persons' voices are central to any health policy and strategies, it is also the most successful way to ensure that interventions meet the actual needs of those affected.
This inspirational blueprint needs to be replicated across all sectors in public health.
As 2025 looms, more is needed: let's continue to support the efforts of those working tirelessly to provide early detection, treatment and care for those affected by noma. I'm excited that together we can make a difference and ensure that no one suffers from this disease.
#WHO #HealthForAll #beatNTDs #GlobalHealth
For more information, ISNTD Noma playlist: https://lnkd.in/e69TGsna