Duchenne UK

Merry Christmas! 🎄🎅🎁 That's a wrap for #Duchenneber2024. Thank you to all the gorgeous boys who took part this year! You can still donate to our #Duchenneber appeal until the end of the year. To donate visit www.duchenneuk.org/donate (link in bio) or text GIFTHOPE to 70085 to donate £10.

❄️🎄 Duchenneber 🎄❄️ This is Freddie who is 3 and will be 4 on 27th December. Say happy birthday to Freddie! 🥳 Freddie is most looking forward to Father Christmas coming and singing Christmas songs. Donate to #Duchenneber and help us find a cure for boys like Freddie who have Duchenne muscular dystrophy: www.duchenneuk.org/donate

❄️🎄 Duchenneber 🎄❄️ Remi is 3 and is looking forward to eating chocolate and spending time with his daddy at Christmas. Share the festive cheer and give boys with DMD the gift of hope this Christmas by donating to #Duchenneber: www.duchenneuk.org/donate

🎄Duchenneber 🎄 This is Charlie. This year he says he has been a little bit naughty and a little bit nice so Santa will still come. 🎅 This is him decorating the tree pretending to be naughty! He’s looking forward to building lots and lots of Lego and watching Christmas movies. By donating to our Duchenneber appeal you're helping to fund life-saving research into new drugs and treatments that will secure the lives of boys with Duchenne muscular dystrophy, just like Charlie. Will you join our fight? duchenneuk.org/donate

❄️🎄 Duchenneber 🎄❄️ Nihaal has just turned 8 years old this December. This festive period, he is most looking forward to spending some quality time at home with his family, and being able to make his Lego sets. Give the gift of hope to boys with DMD this festive period by donating to our #Duchenneber appeal: www.duchenneuk.org/donate

Following the wonderful news on Friday that the Medicines and Healthcare products Regulatory Agency approved givinostat as a treatment for Duchenne muscular dystrophy for people who are ambulant and conditional approval for people who are non-ambulant, our campaign for access for everyone goes on. Here is an update.

❄️🎄 Duchenneber 🎄❄️ Joshua is 10 and his little brother Oliver is 8. They both have a devastating muscle-wasting disease called Duchenne muscular dystrophy (DMD). This Christmas, they are looking forward to Santa coming! This Christmas, we're asking you to give boys with DMD, like Joshua and Oliver, the most important gift of all, hope. By donating to our #Duchenneber appeal, you're helping fund research into new drugs and treatments that will secure their futures. No matter whether you can give a little or a lot, every pound makes a difference: www.duchenneuk.org/donate

We are overjoyed at the decision by the Medicines and Healthcare products Regulatory Agency (MHRA) to give approval to Duchenne muscular dystrophy (DMD) treatment givinostat for patients aged six years and older. The MHRA confirm full approval for patients, six years and older, that start treatment when ambulatory (walking), and issue a conditional approval for patients that start treatment when no longer ambulatory (non-walking).

❄️🎄 Duchenneber 🎄❄️ Mac, who is 10 years old, is most looking forward to the panto with his grandparents, going to Santa’s grotto at Honister Slate Mine and seeing his cousins.  Will you give the most important gift this Christmas... the gift of hope? Bring hope to boys with Duchenne muscular dystrophy, like Mac, by donating to #Duchenneber and help fund life-saving research into new drugs and treatments. www.duchenneuk.org/donate

❄️🎄 Duchenneber 🎄❄️ Jensen is 4 years old and has Duchenne muscular dystrophy, a rare disease that causes muscle wasting. This festive season he is most looking forward to a big Christmas dinner! By donating to our Duchenneber appeal you're helping to fund life-saving research into new drugs and treatments that will secure the lives of boys with DMD, just like Jensen. Will you join our fight? www.duchenneuk.org/donate