Bob Saget’s Legacy: Ending Scleroderma
Even before losing his sister to the disease in 1994, Bob Saget was a devoted champion for the scleroderma community. Beginning in 1991, he performed at—and later went on to be the host and producer of—SRF’s signature Cool Comedy • Hot Cuisine fundraising event, to help raise awareness and funds for medical research.
Bob went on to serve as a member of the Board of Directors and played a pivotal role in the organization’s success by actively contributing to the day-to-day operations and strategic vision. He met with patients, built lasting relationships through his gift of laughter and storytelling, and shared his personal experiences with the tragic impact of the disease in countless press interviews to keep the media spotlight on scleroderma. Bob passionately sought to find a cure and was deeply dedicated to the mission of the SRF.
Ways You Can Continue Bob Saget’s Legacy
There are many ways to honor Bob Saget and his tireless advocacy which spanned 30 years. Below are ways you can honor Bob and his commitment to advancing scleroderma research.
If you have any questions, or for more information, contact us at [email protected] or 800.441.CURE (2873).
Contribute to the Bob Saget Memorial Scleroderma Research Fund
The Bob Saget Memorial Scleroderma Research Fund directly supports the SRF’s core research programs. This fund is, and will continue to be, instrumental to driving research forward until we find a cure.
Host An Event or Online Fundraiser
You can create your own unique event or online giving page to honor Bob’s lifelong commitment to end scleroderma.
Online Fundraising Tools
The SRF offers free, easy-to-use tools to help you set up your own online fundraising or event page and be able to invite friends, family and colleagues to support your effort.
Facebook Fundraisers
You can create a Facebook Fundraiser to help raise funds and awareness. Use the button below to get started and select “nonprofit” to look up the Scleroderma Research Foundation.
Watch For Hope
In honor of his sister Gay’s memory, 25 years ago Bob directed and executive produced a television movie for ABC that was loosely based on her story called For Hope, starring Dana Delany. Today, this film continues to raise awareness of this disease and the need for research.
Watch what Bob called a “very emotional and fulfilling project” and share with others to help raise awareness.
GRASSROOTS FUNDRAISING AND AWARENESS BUILDING
Join the Cure Crew
The SRF’s Cure Crew is a grassroots volunteer program that raises awareness about scleroderma and funds to support the SRF’s research programs. Sign up to become a Cure Crew member and join a growing community of supporters who are inspired by Bob’s lifelong dedication to the SRF’s mission. Let us know how you plan to honor his legacy through your own advocacy and support!
(Pictured here with Cure Crew members Melissa and Linda T.)
Raise Awareness
Bob’s commitment to building awareness of this rare disease will continue through the support of family, friends, and fans. Be a source of information and help raise awareness.
Education
Understand what Scleroderma is and does.
Research
See how our scleroderma research is leading toward a cure.
OUR SIGNATURE EVENT
Cool Comedy
Hot Cuisine, a tribute to Bob Saget
A special version of the SRF’s signature event, Cool Comedy • Hot Cuisine took place September 21 in Los Angeles as a tribute to Bob—raising more than $1.3 Million for research.
