Raphaël Beaufret

📣 On May 21st, our colleague Luc Nicolas will represent EHTEL at the Joint meeting on Semantics, the European Electronic #HealthRecord Exchange Format (#EEHRxF), and communities of interoperable practice ➡️ https://lnkd.in/e-c24mDE Join in to explore together: 💠 how we can engage the stakeholders and support each other to progressively truly achieve semantic #interoperability, in our healthcare local networks, regions, and countries and finally in Europe. 💠 how the policy makers can help drive the crystallization of this new ecosystem. See the agenda and register: ➡️ https://lnkd.in/eUbraksi? With the participation of xShare project, XpanDH Project, HL7 Europe, SNOMED International

9

Thinking about using ePRO in France for older Oncology patients? You might hit some speed bumps. 🛑 "Conclusion Our multicenter study showed a limited feasibility rate (26%) of remote ePROs monitoring for older patients with cancer, mainly because of technology barriers. Yet, among the patients who did have Internet access, most of them indeed used ePROs (66%). " 👀 The only thing I can bring to ePRO's defense is that this hospital group probably didn't consider offline data capture for ePRO, but there are other barriers as well. Just shows once again the answer isnt <<always>> ePRO. But it usually is :). PS. This was done in a care setting, but I think that translates well into research. https://lnkd.in/euxNUWp8

18

2 commentaires

A new challenge ?

1

🌟 Importance of PROs in the Future of Health Technology Evaluation 🌟 The French National Authority of Health (Haute Autorité de Santé) has opened a call for contributions on the integration of patient-reported outcomes (PROs) in health technology assessments, professional practices, and the formulation of vaccination and public health recommendations. 🔍 What are PROs? Patient-reported outcomes provide unique, patient-centered insights, capturing health outcomes directly from patients without intermediary interpretation. This data is invaluable for assessing the effectiveness of medications, medical devices, and procedures, ensuring that healthcare solutions genuinely meet patient needs. 📢 A Major Step Forward HAS is developing guidelines to set methodological standards for PROs in clinical evaluations and public health policies—an important move toward building robust, patient-centered methodologies that place patient perspectives at the heart of health assessments. At Carenity, we’ve long been dedicated to advancing patient-centered insights in healthcare. With our extensive experience in PROs, we’re thrilled to see HAS prioritizing this approach to enhance HTA assessments and deliver truly patient-centric recommendations. Together, let’s continue making patient-centered health solutions a reality! 🏥💬 #PROs #PatientOutcomes #HealthcareInnovation #PublicHealth #HAS #Carenity

5

🌍✨ Exciting insights from our recent French X-Net Patient Associations Meeting We had an impactful discussion focused on the future of health data exchange in Europe, with key topics including: 🔑 Interoperability: Emphasizing the need for a standardized European framework to enhance collaboration across the healthcare sector. 🔒 Data Protection: Patient representatives voiced concerns about data security and the importance of patients retaining control over their medical information. Blockchain technology was highlighted as a potential solution for ensuring data traceability. 🌐 Cross-Border Healthcare: We tackled the challenges patients face when seeking treatment abroad, particularly the recognition of medical examinations in different countries. 💻 Telehealth Innovations: Explored the role of telemonitoring and teleconsultation in improving care for patients with chronic conditions. A huge thank you to all participants for your contributions! Simon Lewerenz Maria Marques Carola Schulz Luisa Lima Henrique Martins Anderson Carmo Karolina Mackiewicz Catherine E Chronaki, FHL7, FIAHSI Dipak Kalra Sofia Franconi Maria Marques #XNet #PatientAssociations #DigitalHealth #HealthData #Interoperability #PatientEmpowerment

16

[Event] Promoting adherence as a key topic of public health is a vast mission, but an easier one thanks to ENABLE Adherence   Our co-founder Kevin Dolgin was invited to speak at their yearly World Adherence Forum, centered this year on a crucial subject: “Leveraging digital innovations for medication adherence and health outcomes in Europe”.   Kevin had the opportunity to present a poster describing the impact of the Atoutcoeur platform, a digital solution supporting healthcare professionals leading Patient Education Programs in cardiac rehabilitation.   The poster “Evaluation of quality of life of patients with coronary disease having gone through the Atoutcoeur cardiac rehabilitation program” demonstrates a statistically significant improvement in the quality of life of patients using the program. A proof that innovative digital solutions associated with HCP’s expertise are a key to improved health outcomes for chronic patients.   Discover this poster just below and write to us if you’d like to know more!  Kamel Abdennbi #cardiacrehabilitation #chronicpatients

20

4 commentaires

🤔Curious about the hospital health data management in France? 📊 Check out my thoughts on the debate between centralized and federated approaches and their implications for real-world evidence research. 🔍💡 #HealthcareData #Innovation #DataSecurity

6

[Great milestone achieved 🔓] On April 24, 2024, the European Parliament gave the green light to the creation of the European Health Data Space (#EHDS), marking a significant leap forward in healthcare accessibility and research advancement across the EU. 🎉 Here's why it's a game-changer: 👩‍⚕️ Accessible Electronic Health Records: You'll enjoy seamless access to your electronic health records no matter where you are in the EU. From prescriptions to lab tests, all your crucial health information will be right at your fingertips. 🔬 Fueling Research Breakthroughs: With anonymized health data sharing, it's paving the way for groundbreaking research initiatives, especially into rare diseases. 🛡️ Robust Privacy Measures: Stringent privacy safeguards ensure that data sharing is strictly governed and only used for authorized purposes. Your sensitive health data will be in safe hands. But that's not all! This groundbreaking law opens doors for safe and secure health data transfers between EU countries, ensuring continuity of care, even if you relocate. 🇪🇺 Plus, downloading your health record will be free of charge, empowering you with greater control over your health journey. Read more in the press release: https://lnkd.in/dbFGMkPN #EuropeanHealthDataSpace #HealthcareRevolution #EUHealthcare #VELES #ExcellenceHub

23

4 commentaires

With the view to anticipate the implementation of the European Health Data Space, France published its strategy for secondary use of data. It is open for consultation until the beginning of November and can be downloaded (French language) here: https://lnkd.in/e2Gc9nzt #lifesciences #healthcare #data #technology #digitalhealth

8

#healthTechnologyAssessment https://lnkd.in/eKuxXU9q. Of the *nine* domains of assessment, the clinical domains identified by EU for HTA are in two sets A. Health problem and it's associated technologies B. Technology characterization and it's effectiveness The five non clinical domains identified by EU are 1. Cost and economic assessment 2. Ethical 3. Organizational 4. Social 5. Legal Essentially PEST with additions, and specialization for health technologies Disclaimer: Shared in academic interests only. Please refer to primary sources for accurate and current information. This does not constitute professional advice and any usage of the information shared must be in accordance with appropriate laws and regulations.

2

1 commentaire

Healthcare is becoming increasingly digitalised through #innovations in #information and communication technologies as well as advances in #machinelearning and #artificialintelligence #AI Advocates enthuse that this digitalisation -including monitoring devices, streaming, and data storage- will improve key aspects of #healthcare delivery such as safety, accessibility, quality of care, effectiveness, and efficiency. Others debate whether these promises can be met because of complex social, cultural, economic, and political implementation challenges 👇🏼

10

The confluence of #AI technologies in comparable use cases mandates the development of bespoke quality assessment tools to evaluate the risk of bias, the use of index tests and reference standards with appropriate thresholds, and applicability in #diagnostic accuracy studies. Such an approach could inform real-world clinical utility and, subsequently, health policy decisions

5

In today's #AudioArticle: one notable benefit of AI-powered healthcare analytics is the enhanced efficiency in data management. Don't miss Emmanuelle Brunet, CEO of Kalmy, in "Benefits, Challenges of AI-Powered Analytics in Health Systems." Out now! #MexicoBusinessNow #MexicoTech

3

[WEBINAR] 📢 Join Caroline Eteve Pitsaer, European RWD-E Analytics Director and Costantino De Palma, Real World Evidence Consultant Cegedim Health Data, as well as Krish Nirantharakumar, Professor of Health Data Science and Public Health University of Birmingham and Dan Somers, Partner at Boundary Capital   👉 to our forthcoming webinar hosted by Dexter*: Feasibility Studies using Real World Data.   🗓 16th May, 06:00pm CET / 05:00pm BST 🖐 Sign up for free 👉https://lnkd.in/eYmmsy7G   🔎 The topics we are going to address: ✅ Understanding real-world data: overview and ecosystem ✅ Explore the current challenges and opportunities in real-world data through use-cases ✅ Discover the benefits of integrating automation into research     Don't miss out on what will be an action-driven discussion!   *Dexter, a real-world evidence platform, is a fantastic and user-friendly tool which can help to maximize the potential of Real-World Data for evidence generation. Dexter can be firstly used to have in-depth feasibilities in facilitating quickly descriptive and analytical approaches in an accurate and reproducible way.   #realworlddata #rwd #realworldevidence #rwe #AI #data #Advanced Analytics

27

1 commentaire