Fragile X International

Join us today to celebrate the International Fragile X Awareness Day 2024. We are a force! We are people with many strengths and we work every day to show the world the power of participation, inclusion and community. Stand with us and support us by spreading our message of rights and possibilities. To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org. #internationalfragilexawarenessday2024 #10october #XX24 #weareaforce #togethermakingadifference #fragilexsyndrome #strengths #lifeatitsfullest #fragilexawareness #fragilexinternational #iamnotmydiagnosis

Universal Health Coverage (UHC) Day. Let’s remember that the right to health belongs to everyone - including the 300 million people living with rare diseases worldwide. As Kirsten Johnson, RDI Board Chair and President of Fragile X International says, coordinated global action is essential to ensure no one is left behind. Join the movement! Raise your voice for #resolution4rare and celebrate #uhcday today! Together, we can make universal health coverage a reality for everyone. #healthitsonthegovernment #rarediseases #uhc #uhc2024 #togethermakingadifference #fragilexsyndrome #abetterworldispossible #weareaforce To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.

A day dedicated to human rights serves as a powerful reminder of the universal rights that belong to every individual, regardless of race, gender, nationality, or status. It is a day to reflect on the progress made, address ongoing injustices, and amplify the voices of those whose rights are still denied. Celebrating Human Rights Day reaffirms our shared commitment to equity, freedom and dignity for all, while inspiring collective action to build a more just, inclusive, and compassionate world. https://lnkd.in/gXJPPJq United Nations Human Rights #humanrightsday #equityfreedomdignity #togethermakingadifference #fragilexsyndrome #abetterworldispossible To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.

On December 3rd, International Day of Persons with Disabilities, we reaffirm the fundamental right of every person to choose their own path in life. United, we must ensure that the dreams, ambitions and desires of people with disabilities are fully realised. True strength lies in the freedom to decide, and the power to do so must remain in the hands of these people. It is the duty of every institution to create the conditions for everyone to be happy, regardless of the condition they live with. #december3rd #internationaldayofpersonswithdisabilities #freetochoose #mywaymyworldmylife #togethermakingadifference #fragilexsyndrome #xfragilextraordinary #research #fragilexinternational #fragilexawareness #rightsforall To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.

Fragile X International joins the Italian and global Fragile X community in mourning the loss of Professor Murgia. An extraordinary professional, she was a beacon of support and guidance for countless families and individuals living with Fragile X. Her dedication, expertise and empathy gave life to a center of excellence in Padua, that represents a remarkable example and an enduring inspiration for generations to come. We extend our deepest gratitude for her exceptional contributions and unwavering commitment to improving the lives of so many. Her legacy will continue to shine brightly in our lives. Thank you, Prof Alessandra Murgia. AssociazioneXFragile Italia Università degli Studi di Padova

We’re proud to launch the Rare Disease Day 2025 official video. This is more than just a message; it’s a call to action for everyone to stand together in raising awareness about rare diseases. With your help, we can spread knowledge, amplify voices, and work towards fair access to care and support for all. Watch the video at https://lnkd.in/dE5KGtiY, share it, and be part of the change, because together we can do more, more than you can imagine! Take part in Rare Disease Day! #RareDiseaseDay #rarediseaseday2025 #AwarenessMatters #equityforall #morethanyoucanimagine Rare Disease Day RARE DISEASES INTERNATIONAL EURORDIS-Rare Diseases Europe To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.

We wish to extend our sincere gratitude to everyone who contributed to the remarkable success of the first Fragile X International Congress in Barcelona. Our deepest thanks go to the speakers, to our sponsors, Sanofi and the CaixaBank, to the Catalan Fragile X Association for their exceptional organization and dedication; and most importantly, to the people living with Fragile X, who inspire and guide all our efforts. #FraXIcongress #togethermakingadifference #fragilexsyndrome #xfragilextraordinary #research #fragilexinternational #fragilexawareness #understanding #knowledgeforbetterlife #barcelona2024 To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.

We are incredibly grateful to Professor Claudia Bagni for her invaluable feedback following her participation in the First Fragile X International Congress. Her words perfectly capture the essence of our vision and mission. #FraXIcongress #togethermakingadifference #fragilexsyndrome #xfragilextraordinary #research #fragilexinternational #fragilexawareness #understanding #knowledgeforbetterlife #barcelona2024 To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.

Today we share another special video featuring the reflections and testimonials of some of the professionals who participated in the First Fragile X International Congress. A huge thank you to Prof Dragana Protic, Prof Jonathan Herring, Dr Paolo Alfieri, Dr Alice Montanaro and all participants who made this extraordinary event possible. #FraXIcongress #togethermakingadifference #fragilexsyndrome #xfragilextraordinary #research #fragilexinternational #fragilexawareness #understanding #knowledgeforbetterlife #barcelona2024 To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.

We are thrilled to share a special video from Professor Flora Tassone following her participation in the First Fragile X International Congress! A heartfelt thank you for her inspiring words and dedication! #FraXIcongress #togethermakingadifference #fragilexsyndrome #xfragilextraordinary #research #fragilexinternational #fragilexawareness #understanding #knowledgeforbetterlife #barcelona2024 To help FraXI achieve its vision, please donate here https://lnkd.in/dJmmv7RJ. Your support really matters to us. You can learn more about our work at www.fraxi.org.